Not sure if I chose the right "topic" for this question.
My brother has fought a two year battle with gbm. For the past six weeks, he's been under hospice care, needing total care because he can do nothing except hold a cup with his left hand. He hasn't been out of the hospital bed since he got into it six weeks ago. He cries when we visit and begs to be released from his suffering. It almost seems like something is prolonging the dying process against his wishes.
He's on 16 mg/day of Decadron. I'm interested in hearing the experiences of others. Is this a pallative dose or is it only prolonging the dying process? I have a call in to his oncologist but I haven't heard from him yet.
Further info: my brother is/has been eating very little, drinking only a small amount of water/day. He's lost so much weight and muscle mass. He has little pain--small doses of morphine control that pain. He has much more agitation than pain. Ativan and Haldol seem to bring it under control. But sometimes, his wife doesn't get it into him quickly enough.
I've looked at the timelines on the brainhospice website and it seems like he's stuck at 1-3 weeks from death for the past 6-8 weeks.
I almost feel guilty for posting this question. It might seem like I want my brother to die. His death will be very hard but seeing him as he's been for the past six weeks is horrible also.