Folks in this email support group- those of you currently alive with GBM ( Glioblastoma Multiforme, grade 4 tumorous malignant cancer) or those spouses who have already died of their GBM.
I have been really pondering and wondering to know if I am the only one with this problem or is it a standard symptom of all GBM patients. It is driving me crazy and I really would like to know if this is normal symptom for all GBM patients or only if your GBM is located in a different part of the brain.
As you are all probably aware, we all have different brain lobes, and each is responsible for different job functions for our human body. My cancer is in the right temporal lobe ( right side of my head) . Do all of you who also have /had GBM in this area of the brain or in other parts of the brain? How many of you have it in the Right Temporal Lobe like me and have lost their short term memory??? I'm anxious to know this!
This is what I really want to know, am I normal in my symptoms with my GBM or not, meaning are there any others of you who do not suffer from any memory loss? I have totally lost my short term memory. I cannot remember what day of the week it is, I do not know what today's date is, my memory cannot remember people's names, and i cannot remember what my schedule or appointments are for the day or the week without looking at my handy Planner calendar notebook and having White Boards plastered all over my rooms to remind me. I used to have an excellent memory for years, and loosing it now has been very difficult and depressing to me. Fortuntately, there is another part of our brain lobes for all of us that stores our long term memory to remember for example growing up as a child, going to school, getting married, raising children, etc. I am grateful that I have NOT lost my long term memory of those experiences. But the short term memory is gone ( like a computer that fizzled out) and my cancer doctor told me that unfortunately my short term will never come back to me because of the cancer being ther, and the trauma of having surgery of my tumor in that location too. I grieve that deeply.
I am very curious to grow if it is me only dealing with this in my GBM, or only because I have it in the right temporal lobe and others of you with GBM do not have any problems with short term memory because your GBM cancer is in a different location?
Please tell me your experience or what you have heard about this symptom in GBM cancer patients. Thanks much! I need some peace and working hard on "accepting the things I cannot change..."