I've been studying the symptom timeline on brainhospice.com and in many symptoms my brother is in his last weeks. But he is not sleeping much. Instead, he is often awake and not happy with his care, wanting something ? but not knowing what that something is. He is getting low dose oral morphine for pain control; Ativan, sleeping pills,etc. He can have Haldol but the one time he had Haldol he had hallucinations and it seemed to make his agitation worse instead of calming him.
My brother's original tumor was in the frontal lobe. I've been doing a lot of research on injury to the frontal lobe and he is displaying so many of the symptoms/behaviors of frontal lobe injury. That explains "why" he acting the way he is but it doesn't make it any easier to watch.
Watching a loved one die of any kind of cancer is difficult but having that cancer alter his personality so that he says/does things that he would never have said/done before it just pure torture.
I wish my brother were sleeping most of the day. My greatest fear is that he will linger in his present condition for weeks or months.
Background: My brother has been bedfast for more than three weeks; needs total care. Hospice comes to the house almost every day for some type of care. The cancer took his right side and the Decadron (?) and cancer took most of his left side also. He was dignosed in June 2010 and has outlived all his doctor's expectations.