The American Brain Tumor Association Connections Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

I did it again...

  • By hinsopa · New reply 3:47 am
  • Journal · 6 replies
  • Check out my new post at Come join us over at my blog ...

The Mental Side

  • By mathmom411 · New reply 3:43 am
  • Discussion in Living with a brain tumor · 20 replies
  • I have a question .... I just don't know exactly how to ask it. Here's the PHYSICAL stuff: My husband of 26+ years had the astroblastoma brain tumor - Rt occipital / temporal lobe area. Dx Jan 2012. Tumor ...

How do you keep your faith when your angry with your Higher Power?

  • By AmyJeanDev · New reply 12:16 am
  • Discussion in Living with a brain tumor · 11 replies
  • Hi, I'm newly diagnosed with an Oligodendroglioma low grade in Jan, 2014. I've always been a positive person and believed "Everything happens for a reason" and I am Catholic and prayed daily. After my ...

meningioma pressing on cerebellum

  • By viki789 · Posted yesterday at 11:22 pm
  • Discussion in Recovery · 0 replies
  • I had a meningioma that was pressing on my cerebellum and it was removed on 12/6/2012. The prognosis was not good, however I came out of surgery with no major deficits. 3 months later when I was walking ...

Astrocytoma Grade 2 - Age 70 - From Diagnosis Diary

  • By Karen1966 · New reply yesterday at 7:17 pm
  • Journal · 15 replies
  • I see and hear so many wanting to know what is going to happen next and I have actually kept a "diary" of sorts since my husband's diagnosis. I thought I would post my diary of what has happened with ...

A new journey begins

  • By jmvirwin · New reply yesterday at 5:52 pm
  • Discussion in Grief and loss · 26 replies
  • My beloved husband, Mike Irwin, died on Friday, April 4, 2014. His NO called his disease an unusually aggressive course. It was less than 6 months from time of diagnosis to death. I am so thankful that ...

Neuoplasm of Uncertain Behavior of Brain and Spinal Cord (HCC)

  • By ElleMadix · New reply yesterday at 3:39 pm
  • Journal · 3 replies
  • Good Afternoon Everyone, This is my first journal entry on the website, and I have to be honest with all of you when I say that my hand is shaking the entire time I'm trying to "swype" the journal entry ...

New to this site, have some questions for you

  • By Liesa-Joan · New reply yesterday at 1:04 am
  • Discussion in Newly diagnosed · 30 replies
  • I am fairly new to this site. Husband diagnosed 1/1/14 with GBM tumor. My question to you all is "what did the Doctor say was the cause?". I have done a little research on the net and it says "Men over ...

Meningioma right frontal lobe

  • By Barb67 · New reply April 19, 2014
  • Discussion in Non-malignant tumors · 9 replies
  • I was diagnosed approximately 3 years ago. Since my first MRI tumor almost doubled in size. It is now 3.2cmx2.0cmx2.?cm. I am going for another MRI on Tuesday because my headaches are really getting horrible ...


  • By jacquiS7 · Posted April 19, 2014
  • Journal · 0 replies
  • I am new to this site. My mum was diagnosed with a grade 4 glioblastoma multiforme brain tumour in June 2013, had two surgeries to debulk the tumour, followed by radiotherapy and chemo. We have recently ...

Finding the post you posted or responded to and update on my scalp lesions

  • By larrylm53 · New reply April 19, 2014
  • Journal · 13 replies
  • You can go to the top right and click on your home page, then click on post. >>>>> you can also toggle between ( new all ) and ( new active ). Sometimes when no one responds the post can move down the ...

Novocure device

  • By andy44 · New reply April 18, 2014
  • Discussion in Treatments · 5 replies
  • Hello all, I am wondering if any patients here are using the Novocure device. I understand this treatment is available in the US and in Europe. I am trying to collect some information about it, and I ...

2x survivor but depressed

  • By j2xsurvivor · New reply April 18, 2014
  • Discussion in Survivor stories · 8 replies
  • I am a 2x survivor but am depressed every day and can't get passed it because I see everyone around me walking around and wearing heels and short skirts like I "used to do" But I should really be Thanking ...


  • By mrbeck84 · New reply April 18, 2014
  • Discussion in Newly diagnosed · 4 replies
  • I just got diagnosted with a petroclivical meningioma does anybody had one before ...

A mom's journey

  • By Newyorkmom55 · New reply April 18, 2014
  • Journal · 27 replies
  • I have written and then sometimes delete because why should I add more depression to everyone. I wrote on Facebook and people wanted to know if I am ok. My story started almost twelve years ago. My middle ...

Days to go?

  • By jmvirwin · New reply April 18, 2014
  • Discussion in Caregiver corner · 15 replies
  • My husband has had a downturn. I thought we were finally turning the corner on three weeks of battling severe constipation. Things finally got moving again this weekend, and I thought finally now he can ...

My sweet mom and glioblastoma

  • By plowe · New reply April 17, 2014
  • Journal · 5 replies
  • My mom is a 73 year active "young" lady. On September 7 she told me that she had a headache for a few days. On September 8 she was standing in the kitchen and all of a sudden she couldn't talk. When words ...

GBM Support group

  • By monica523 · New reply April 17, 2014
  • Discussion in Caregiver corner · 19 replies
  • I'm helping my twin brother who has GBM stage 4 cancer. It is so difficult to watch someone you love go through all this. Just wondering if anyone in the Detroit area is going through the same thing ...

Proccluster for glioma treatment

  • By akist · New reply April 17, 2014
  • Discussion in Treatments · 8 replies
  • I was given proccluster tablets to take once a day every day for a long time, I cannot even look them up on the internet, if anyone knows what they are or has used them please let me know. Apparently ...

New to this site..Husband has Oligoastrocytoma Grade 3

  • By soxboysmom · New reply April 16, 2014
  • Journal · 27 replies
  • Well, glad to have found this site, because I really need to vent and to get support from people who can relate to what we are going through. My husband had a seizure in February of this year and after ...

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The American Brain Tumor Association Connections Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the American Brain Tumor Association, an Inspire trusted partner.