The American Brain Tumor Association Connections Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

skull base tumor

  • By Amandabfa · New reply 6:20 pm
  • Discussion in Newly diagnosed · 6 replies
  • Hi. My name is Amanda and I have recently been diagnosed with a skull base tumor. I have a 7mm A typical benign mixed density tumor on my clivus. This is very new to me and from what I understand a very ...

Avastin plus CCNU

  • By Denise555 · New reply 5:34 pm
  • Discussion in Treatments · 5 replies
  • Dad diagnosed with glioblastoma May 2013. Had surgery, 3 weeks radiation, tried temodar but tumor grew, now on avastin for past 6 weeks and no new growth but increased weakness. Had MRI yesterday and ...

Possible causes of head/neck tumors being investigated

  • By RobinMB · New reply 4:35 pm
  • Discussion in In the news · 2 replies
  • 22?nlid=55603_2703&src=wnl_edit_dail&uac =190441FX ...

Other adults with Pilocytic Astrocytoma?

  • By swagus · New reply 4:12 pm
  • Discussion in Living with a brain tumor · 3 replies
  • Hi everyone, I am new here, but I am wondering if there are others out there in a situation similar to mine. Here's my journey so far.... I was first diagnosed with a brain tumor in 2006 (Pilocytic Astrocytoma ...

My Mother's Battle with the Demon Glioblastoma Multiforme Grade 4 has ended

  • By Jenni72 · New reply 4:08 pm
  • Journal · 3 replies
  • I haven't posted in a while, due to the events that have been going on for the last couple of months. My last journal entry was March 3rd. On March 4th, my mom became completely bed ridden. On March 9th ...

Meningioma right frontal lobe

  • By Barb67 · New reply 3:44 pm
  • Discussion in Non-malignant tumors · 13 replies
  • I was diagnosed approximately 3 years ago. Since my first MRI tumor almost doubled in size. It is now 3.2cmx2.0cmx2.?cm. I am going for another MRI on Tuesday because my headaches are really getting horrible ...


  • By grammydorcas · New reply 2:49 pm
  • Discussion in Caregiver corner · 6 replies
  • Hi, I'm writing this about my Mom. She was a very young acting 84 year old and this past October she had stroke symptoms. We took her to the ER and the CT Scan showed all was fine. The next day at hospital ...

Astrocytoma Grade 2 - Age 70 - From Diagnosis Diary

  • By Karen1966 · New reply 1:40 pm
  • Journal · 18 replies
  • I see and hear so many wanting to know what is going to happen next and I have actually kept a "diary" of sorts since my husband's diagnosis. I thought I would post my diary of what has happened with ...

AAIII Tumor on Left Side

  • By tsully · New reply 1:29 pm
  • Journal · 4 replies
  • Hi! In November 2013 my husband has been diagnosed with Anaplastic Astrocytoma III tumor on the left side of his brain which is inoperable. He did not have any symptoms prior to the blurry vision, loss ...

Current treatments for GBM slide show from Dana Farber

  • By RobinMB · New reply 1:28 pm
  • Discussion in Treatments · 2 replies
  • This is a great slideshow narrated by Dr. Patrick Wen on current and upcoming treatments for Glioblastoma. nical-trials-for-brain-tumor-patients-pa trick-y-wen-md ...

Searching for answers

  • By Amandabfa · New reply 12:55 pm
  • Journal · 5 replies
  • I just joined this amazing community to look for help emotionally as I struggle w the diagnosis of a skull base tumor. I hope to gain friends along w information as I continue on this journey. Here's ...

Got Cannabis? Let's Talk About This Plant!

  • By floridaherbhouse · New reply 11:13 am
  • Journal · 1 reply
  • Okay well first off, well, ummm, yes so many of us are tired of the worthless posts stating that cannabis is basically worthless because there have been no studies conducted here in the USA. Well BAHUMBUG ...

Agitation - Your Experiences

  • By mcort · New reply 9:44 am
  • Discussion in Living with a brain tumor · 4 replies
  • My wife was Dx'd in Oct 2012 with GBM. Been down the radiation/drugs/chemo roads. Thursday through Saturday increasing levels of agitation. I have read various things on and ...

Always sick....

  • By ILoveMyCop · New reply 8:16 am
  • Discussion in Caregiver corner · 8 replies
  • Hey guys.... just curious....... I know that I've been incredibly stressed out, dealing with biopsies, 2nd opinions, radiation, chemo, etc, etc- for my wife, Danah. But is it possible for the stress to ...


  • By pugsy2001 · New reply 8:01 am
  • Discussion in Recovery · 2 replies
  • I am back.. Have another question... My husband seems to be doing good one day and a few days later he is reclining again... Twice since Sept. we were thinking we would need hospice soon. The second round ...

MRI was great!

  • By michelle39 · New reply 7:41 am
  • Journal · 9 replies
  • Just got home from getting the results of my husbands latest MRI and the Doctor said it looks great! 31 months on wednesday since he was diagnosed. I will sleep so good tonight ...

Diagnosis not determined

  • By hinsopa · New reply yesterday at 10:36 pm
  • Discussion in Newly diagnosed · 7 replies
  • I would appreciate your advice. I am a 2 time ovarian cancer surviver that is trying to help my dearest friend. She began having numbness and some changes in use of her left side about 9 months ago. Stroke ...

Side effect of surgery eye nerve

  • By ingridmks · Posted yesterday at 7:32 pm
  • Discussion in Tumors in children · 0 replies
  • Dear all, My daughter 12yo,, after finishing her chemo regimen for optic nerve glioma for 1 and a half years. The result is steble glioma, but the eye go to blind during chemo. Now, we're back to boston ...

Vitamins and supplements

  • By susanjc · New reply yesterday at 1:26 pm
  • Discussion in Recovery · 15 replies
  • Ok folks who are recovering from brain tumor surgery and/or treatment I am interested to know what vitamins or supplements you have added to your diet that seem to be making a difference in your recovery ...

another primary cancer

  • By meliora · New reply yesterday at 1:02 pm
  • Discussion in Newly diagnosed · 4 replies
  • Hi wonder if anyone out here has developed another primary cancer along with their brain tumor? I think my new thyroid cancer (thyroidectomy and central neck dissection a month ago) was a result of my ...

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The American Brain Tumor Association Connections Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the American Brain Tumor Association, an Inspire trusted partner.