The American Brain Tumor Association Connections Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Motivation, Desire, Determination

Jer_
  • By Jer_ · Posted 12:17 am
  • Journal · 0 replies
  • I have been an athlete all my life. I slowed down significantly from 2003 until now. During this slowdown period, I've had three major surgeries due to chronic illness. 1) nasal polypectomy due to acute ...

We've both been diagnosed with cancer

suzieta
  • By suzieta · New reply 12:07 am
  • Discussion in Newly diagnosed · 4 replies
  • What are the odds that we'd both get a cancer diagnosis???? Just yesterday I found out that the cyst removed from my neck last week is thyroid cancer. Luckily, very treatable etc. I'm a little freaked ...

Brain Metastases Overview

ABTA_Jillann
  • By ABTA_Jillann · New reply yesterday at 9:35 pm
  • Discussion in Metastatic tumors · 1 reply
  • A supplement to the March 2013 issue of Surgical Neurology International is dedicated to brain metastases and is available online without a subscription. The issue provides an overview of the epidemiology ...

Tired of Waiting

kcjones1965
  • By kcjones1965 · New reply yesterday at 12:33 pm
  • Journal · 10 replies
  • I was diagnosed with Migraines in 2008 at the age of 42 and then Hemiplegic Migraines (HM) in 2010 (with a 5mm meningioma). My new neurologist isn't convinced I every had HM's, maybe a TIA, she has finally ...

Prednisone

kcjones1965
  • By kcjones1965 · Posted yesterday at 10:50 am
  • Journal · 0 replies
  • While awaiting insurance approval of a new migraine medicine and an appointment with the neuro-surgeon, my neurologist has tried me on prednisone for head pain. 3 days, 40mgs each day. Has anyone else ...

Living with a Brain Tumor: A Holistic Approach

ABTA_Jillann
  • By ABTA_Jillann · Posted yesterday at 10:43 am
  • Discussion in ABTA events · 0 replies
  • We invite you to join us for the 2013 ABTA Patient & Family Conference Living with a Brain Tumor: A Holistic Approach at the Renaissance Chicago O'Hare Suites Hotel. Friday, July 26 through Saturday ...

Brain Tumor News June 19, 2013

ABTA_Jillann
  • By ABTA_Jillann · Posted yesterday at 10:22 am
  • Discussion in In the news · 0 replies
  • *Valerie Harper’s Cancer Battle is Focus of NBC Special http://www.usatoday.com/story/life/tv/20 13/06/18/valerie-harper-cancer-special-n bc/2434515/ *Antibody Therapy Helps Immune System Fight Tumors ...

Live in or around Minneapolis?

ABTA_Jillann
  • By ABTA_Jillann · New reply yesterday at 7:57 am
  • Discussion in ABTA events · 1 reply
  • Minneapolis Volunteer Network Meeting If you're in or from the Twin Cities area, please plan to join us on Wednesday, July 10 for an informal dinner and introduction to the ABTA Minnesota Volunteer Network ...

Is "wait and see if it grows" normal path for tumors?

Denise555
  • By Denise555 · New reply yesterday at 6:23 am
  • Discussion in Newly diagnosed · 38 replies
  • My dad started have seizures a month ago. Went to doctor and initially thought it was related to medication so took him off those meds and waited another 10 days with no improvement. Went in for MRI and ...

GBM4 stable, no growth since last MRI

suzieta
  • By suzieta · New reply yesterday at 4:45 am
  • Discussion in Survivor stories · 31 replies
  • We will get the official report on Tuesday, but the Onc says the MRI shows that the tumor is stable, no change, no growth, no reduction. This is great news as far as GBM4 goes, but we are disappointed ...

MRI - Wait and Worry

KarenLeslie
  • By KarenLeslie · New reply June 18, 2013
  • Journal · 9 replies
  • Well here I am a year and a half from my 12+ hour operation for removal of a very large meningioma on my brain stem, thankfully, most of the BT was removed (lower right hand side)....in subsequent MRI's ...

Support Groups for Siblings

GrayMatters2me2
  • By GrayMatters2me2 · New reply June 18, 2013
  • Discussion in Caregiver corner · 4 replies
  • Looking for local support group New York, Queens Nassau boarder ...

Brain Tumor News June 18, 2013

ABTA_Jillann
  • By ABTA_Jillann · Posted June 18, 2013
  • Discussion in In the news · 0 replies
  • * DNAtrix, Inc. to Present Clinical Study Results for DNX-2401 (Delta 24-RGD), A Conditionally Replication-Competent Adenovirus http://online.wsj.com/article/PR-CO-2013 0617-907867.html *This communication ...

Avastin and nosebleeds

careg
  • By careg · New reply June 18, 2013
  • Discussion in Treatments · 2 replies
  • I head one treatment of avastin but in the two weeks I have had two. Nosebleeds and am concerned that after reading others who have had. Terrible problems on i After mi initial surgery I had the usualbyutbecameseriously ...

Five million

Brian
  • By Brian · New reply June 17, 2013
  • Journal · 243 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

MRI dyes

LTS
  • By LTS · New reply June 17, 2013
  • Discussion in Living with a brain tumor · 36 replies
  • Does anyone out there have problems with the dye injected for the MRI? Mine was done in the hospital after being premedicated. Some doctors insist that the dye is nessesary, others have not. I have many ...

Making Breakthroughs on the West Coast

ABTA_Jillann
  • By ABTA_Jillann · Posted June 17, 2013
  • Discussion in ABTA events · 0 replies
  • The next Breakthrough for Brain Tumors 5K Run & Walk is less than a week away. On Saturday, June 22, hundreds of ABTA supporters will gather at the beautiful Los Angeles County Arboretum and Botanic Garden ...

Brain Tumor News June 17, 2013

ABTA_Jillann
  • By ABTA_Jillann · Posted June 17, 2013
  • Discussion in In the news · 0 replies
  • *Roche’s Avastin Approved in Japan for Treatment of the Most Aggressive Form of Brain Cancer http://www.europeanpharmaceuticalreview. com/19422/news/industry-news/roches-avas tin-approved-in-japan-for-treatment-of-t ...

Social Workers discuss Personal Emergency Kit

ABTA_Jillann
  • By ABTA_Jillann · New reply June 17, 2013
  • Discussion in Living with a brain tumor · 1 reply
  • An important but difficult topic to discuss. This webchat from OncoLink talks about the importance of creating a personal emergency kit and how to do so. Something we all need to think about doing. Great ...

Brain tumors

smilie6997
  • By smilie6997 · New reply June 17, 2013
  • Discussion in Newly diagnosed · 11 replies
  • Hello , I just had surgury two mths ago . an was curious on what to expect ...

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The American Brain Tumor Association Connections Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the American Brain Tumor Association, an Inspire trusted partner.