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GBM4 stable, no growth since last MRI

suzieta
  • By suzieta · New reply 4:30 pm
  • Discussion in Survivor stories · 5 replies
  • We will get the official report on Tuesday, but the Onc says the MRI shows that the tumor is stable, no change, no growth, no reduction. This is great news as far as GBM4 goes, but we are disappointed ...

My greatest sorrow.

BILL16WEST (Inactive)
  • By BILL16WEST (Inactive) · New reply 2:01 pm
  • Discussion in Tumors in children · 69 replies
  • Please pray for my daughter Carrie who at the age of 33 has just been given the news that the brain tumour Carrie has is beyond any further treatment. I am her father and I am absolutely broken hearted ...

Avastin

lauraslayman
  • By lauraslayman · New reply 1:56 pm
  • Discussion in Treatments · 7 replies
  • My husband is an 8 year/3x brain tumor survivor.....anaplastic astrocytoma. Over the years he has 3 surgeries, temodar, radiation, and the latest BCNU chemotherapy. Now with the MRI on May 15 there is ...

Meningioma

serrittia
  • By serrittia · New reply 12:51 pm
  • Discussion in Newly diagnosed · 58 replies
  • I have a friend just diagnosed with a meninigoma it is in a very bad area pressing in optic nerve e and sitting on carotid artery Anyone have anything similar Anyone have surgery by Dr Eisenberg at university ...

Day three of hospice

Kbleyle
  • By Kbleyle · New reply 12:03 pm
  • Discussion in Grief and loss · 27 replies
  • It isn't the GBM that is killing my husband. He has MRSA that won't respond to antibiotics because of his PICC line. He weakened enough to fail the swallow test in the hospital. I feel so guilty in choosing ...

Grade 2 Astrocytoma?

phillyb
  • By phillyb · New reply 10:03 am
  • Journal · 2 replies
  • I joined this site some time ago. I have responded to a few posts but have never posted myself. I am having surgery on May 30, 2013. First diagnosed in 10/2007 low grade glioma. Doctors took a watch and ...

Preparing To Die

Mamike
  • By Mamike · New reply 2:45 am
  • Discussion in Metastatic tumors · 29 replies
  • How do you prepare for death? I know it's coming, it's just a matter of time. I was recently diagnosed with GBM 4 and statistics show a very poor likelihood that I'll be around in a few years. I am struggling ...

prayers for a Little Girl (Anaplastic Astrocytoma, Grade III on brain stem)

attilafromhungary
  • By attilafromhungary · New reply 2:31 am
  • Journal · 16 replies
  • Dear All, I am a father of a 5 and a half years old beautiful girl, Bogika. We live in Hungary and till February 18th 2013 we had beautiful life with Bogika and with my wife, Zsuzsi. On February 18th ...

Brain Tumor Awareness Month

ABTA_Jillann
  • By ABTA_Jillann · New reply 2:17 am
  • Discussion in ABTA events · 1 reply
  • Even if you can't make it to our Chicago BT5K, you can still be there in spirit! Buy a light bulb with your name or the name of your loved one for our Bright Ideas! Breakthrough Wall & have your name ...

Weird Incident yesterday morning

melm1965
  • By melm1965 · New reply yesterday at 8:34 pm
  • Discussion in Living with a brain tumor · 8 replies
  • Had the windows open early and music on; walked around the corner and felt "faint"...the next thing I know I am on the couch, splayed out with drool down my neck. I remember trying to call my husband ...

Support Groups

ABTA_Jillann
  • By ABTA_Jillann · Posted yesterday at 2:34 pm
  • Discussion in Living with a brain tumor · 0 replies
  • ABTA maintains a nationwide listing of brain tumor support groups, cancer groups that welcome brain tumor survivors, and caregiver/spouse support groups. To locate a support group in your area, click ...

Enjoy the long holiday weekend

ABTA_Jillann
  • By ABTA_Jillann · Posted yesterday at 1:59 pm
  • Discussion in Living with a brain tumor · 0 replies
  • Remember to make time for yourself. "Self-care is never a selfish act - it is simply good stewardship of the only gift I have, the gift I was put on earth to offer to others. Anytime we can listen to ...

GBM4 still getting smaller !

suzieta
  • By suzieta · New reply yesterday at 1:54 pm
  • Discussion in Living with a brain tumor · 72 replies
  • My husband's MRI last week shows that his GBM4 (diagnosed in Aug'12) has gotten approx. 20% smaller than his MRI in January. He had surgery in August, radiation, temodar. The MRI in November showed significant ...

septic joint infection

Emmaleigh
  • By Emmaleigh · New reply yesterday at 1:51 pm
  • Discussion in Living with a brain tumor · 10 replies
  • My husband has septic joint infection of the elbow (not sure about the spelling), does anyone have any info about this? He also has GBM ...

Trial off Avastin

HaVeHoPeAlWaYs
  • By HaVeHoPeAlWaYs · New reply yesterday at 12:05 pm
  • Discussion in Treatments · 19 replies
  • Hello all. My father has a Grade 3 Anaplastic Astrocytoma. He went through the standard treatment of surgery, radiation/chemo and then started the maintenance temodar cycle. Unfortunately he had an allergic ...

brain tumor

jojoekerns
  • By jojoekerns · New reply yesterday at 10:52 am
  • Discussion in Recovery · 15 replies
  • My daughter had a brain tumor removed in march she in haveig a hard time waking up.Doctors said that is because of the brain stem I need some information on the brain stem and how to do rehab.Any thing ...

GREAT NEWS

briggs
  • By briggs · New reply yesterday at 3:56 am
  • Discussion in Survivor stories · 17 replies
  • Thanks for your prayers. My husbands MRI was some better,and no new growth. Thanks to God and Temodar. We will have another one in two months. It is so wonderful knowing that we have our group supporting,and ...

Fatigue and Management Tips

ABTA_Mary
  • By ABTA_Mary · New reply May 23, 2013
  • Discussion in Living with a brain tumor · 10 replies
  • Fatigue is an overwhelming feeling of tiredness that is not remedied by a good night’s sleep. Some people describe fatigue as “hitting a wall.” Once experienced, fatigue becomes very real. It can be an ...

Friday radiation and chemo

bluemoon0101
  • By bluemoon0101 · New reply May 23, 2013
  • Discussion in Treatments · 5 replies
  • Well Friday I'll start radiation and chemo for Astrocytoma3 and I was wondering how is this treated like step by step on how they do this? What are the side effects and what should I expect? What about ...

Brain Tumor Information in Spanish Available

ABTA_Jillann
  • By ABTA_Jillann · Posted May 23, 2013
  • Discussion in Newly diagnosed · 0 replies
  • To help meet the needs of our Spanish-speaking population, the American Brain Tumor Association now offers electronic versions of our patient education materials in Spanish. Frequently-requested ABTA ...

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The American Brain Tumor Association Connections Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the American Brain Tumor Association, an Inspire trusted partner.