The American Brain Tumor Association Connections Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Proccluster for glioma treatment

  • By akist · New reply 8:39 pm
  • Discussion in Treatments · 6 replies
  • I was given proccluster tablets to take once a day every day for a long time, I cannot even look them up on the internet, if anyone knows what they are or has used them please let me know. Apparently ...

New to this site..Husband has Oligoastrocytoma Grade 3

  • By soxboysmom · New reply 7:57 pm
  • Journal · 27 replies
  • Well, glad to have found this site, because I really need to vent and to get support from people who can relate to what we are going through. My husband had a seizure in February of this year and after ...

How do you keep your faith when your angry with your Higher Power?

  • By AmyJeanDev · Posted 7:49 pm
  • Discussion in Living with a brain tumor · 0 replies
  • Hi, I'm newly diagnosed with an Oligodendroglioma low grade in Jan, 2014. I've always been a positive person and believed "Everything happens for a reason" and I am Catholic and prayed daily. After my ...

GBM Support group

  • By monica523 · New reply 7:11 pm
  • Discussion in Caregiver corner · 18 replies
  • I'm helping my twin brother who has GBM stage 4 cancer. It is so difficult to watch someone you love go through all this. Just wondering if anyone in the Detroit area is going through the same thing ...


  • By Krick · New reply 6:58 pm
  • Discussion in Caregiver corner · 3 replies
  • My mom has been in hospice for 1 month. It is still a difficult journey. We have an aide that comes 3 days a week for bathing her in the hospital bed. She is really great. We have a nurse that come three ...

Astrocytoma Grade 2 - Age 70 - From Diagnosis Diary

  • By Karen1966 · New reply 5:58 pm
  • Journal · 12 replies
  • I see and hear so many wanting to know what is going to happen next and I have actually kept a "diary" of sorts since my husband's diagnosis. I thought I would post my diary of what has happened with ...

How to cope as a caregiver?

  • By Liesa-Joan · New reply 5:01 pm
  • Discussion in Caregiver corner · 19 replies
  • I lost my Father last year, he was my God, he died at age 91. I grieved the whole year. On 1/1/14, my husband's right arm stopped working normally. We went to the emergency room and the CT scan showed ...

Vision Changes

  • By suzieta · New reply 4:57 pm
  • Discussion in Caregiver corner · 18 replies
  • Just wondering what experiences people are having there with vision changes. My husband is going to be 63 so I know the aging factor is very real. He's having vision changes in left eye - very blurry ...

Tumor treating fields

  • By gloria2344 · New reply 4:51 pm
  • Discussion in Treatments · 19 replies
  • Hello, Anyone have thoughts or information on this type of treatment? It is called Novo TTF. Here is the link to the Ted Talk. ncer_with_electric_fields.html My ...

A new journey begins

  • By jmvirwin · New reply 4:02 pm
  • Discussion in Grief and loss · 20 replies
  • My beloved husband, Mike Irwin, died on Friday, April 4, 2014. His NO called his disease an unusually aggressive course. It was less than 6 months from time of diagnosis to death. I am so thankful that ...

Top 10 things a caregiver needs to do for newly diagnosed GBM patient

  • By jmvirwin · New reply 3:46 pm
  • Discussion in Caregiver corner · 17 replies
  • My husband was diagnosed early Nov 2013, so it hasn't been long. Already I have learned a lot and there are a lot of things I wish I had been prepared for (but wasn't). So, if you are dealing with the ...

Neuoplasm of uncertain behavior of brain and spinal cord (HCC)

  • By ElleMadix · New reply 2:55 pm
  • Discussion in Newly diagnosed · 4 replies
  • I'm having open brain surgery on Wednesday, April 16th, due to a Neoplasm of uncertain behavior of brain and spinal cord behavior. Can anyone offer me any advice, recovery stories, wisdom etc. ? Thanks ...

Avastin plus CCNU

  • By Denise555 · New reply 2:30 pm
  • Discussion in Treatments · 1 reply
  • Dad diagnosed with glioblastoma May 2013. Had surgery, 3 weeks radiation, tried temodar but tumor grew, now on avastin for past 6 weeks and no new growth but increased weakness. Had MRI yesterday and ...

Last day of Radiation and Temodar

  • By ekann8 · Posted 1:43 pm
  • Discussion in Treatments · 0 replies
  • 4/18 is the last treatment of Radiation and Temodar for the 6 weeks of treatment since my husband was diagnosed with an inoperable GBM IV on 2/5. In addition, during the last 3 weeks he has reduced the ...

Brain Tumor News April 16, 2014

  • By ABTA_Jillann · Posted 12:59 pm
  • Discussion in ABTA events · 0 replies
  • *MGH Findings Suggest Novel Treatment Approach for Brain Tumors -findings-suggest-novel-treatment-approa ch-for-brain-tumor-0001 *Adult Cancer Drugs Offer Hope ...

My sweet mom and glioblastoma

  • By plowe · New reply 12:34 pm
  • Journal · 4 replies
  • My mom is a 73 year active "young" lady. On September 7 she told me that she had a headache for a few days. On September 8 she was standing in the kitchen and all of a sudden she couldn't talk. When words ...

Boosting immune system functioning with Avemar and modified citrus pectin?

  • By Foggle · New reply 12:24 pm
  • Discussion in Treatments · 1 reply
  • Hi everyone Great news- my most recent MRI has shown shrinkage in the high-intensity area around the primary tumour site, and improvements in the other three lesions (one operated, two not). I was found ...


  • By mrbeck84 · New reply 12:15 pm
  • Discussion in Newly diagnosed · 2 replies
  • I just got diagnosted with a petroclivical meningioma does anybody had one before ...

atypical teratoid rhabdoid tumor

  • By concerned_sister · New reply 11:27 am
  • Discussion in Newly diagnosed · 1 reply
  • Hello, i am starting a new discussion because I couldn't find a group talking about the type of tumor my sister has. I don't feel like i have very much information on the medical side of all of this ...

Vimpat for seizures?

  • By calabria1982 · New reply yesterday at 11:07 pm
  • Discussion in Living with a brain tumor · 13 replies
  • Has anyone taken Vimpat for seizures. My son Michael was given Vimpat to replace depakote for seizure prevention. He's also on 1500 mg. of keppra twice a day. So much medication:(. All he does is wean ...

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The American Brain Tumor Association Connections Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the American Brain Tumor Association, an Inspire trusted partner.