The American Brain Tumor Association Connections Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

A new journey begins

  • By jmvirwin · New reply 1:13 pm
  • Discussion in Grief and loss · 24 replies
  • My beloved husband, Mike Irwin, died on Friday, April 4, 2014. His NO called his disease an unusually aggressive course. It was less than 6 months from time of diagnosis to death. I am so thankful that ...

New to this site, have some questions for you

  • By Liesa-Joan · New reply 9:20 am
  • Discussion in Newly diagnosed · 25 replies
  • I am fairly new to this site. Husband diagnosed 1/1/14 with GBM tumor. My question to you all is "what did the Doctor say was the cause?". I have done a little research on the net and it says "Men over ...

Finding the post you posted or responded to and update on my scalp lesions

  • By larrylm53 · New reply 8:31 am
  • Journal · 9 replies
  • You can go to the top right and click on your home page, then click on post. >>>>> you can also toggle between ( new all ) and ( new active ). Sometimes when no one responds the post can move down the ...

Neuoplasm of Uncertain Behavior of Brain and Spinal Cord (HCC)

  • By ElleMadix · New reply 12:40 am
  • Journal · 1 reply
  • Good Afternoon Everyone, This is my first journal entry on the website, and I have to be honest with all of you when I say that my hand is shaking the entire time I'm trying to "swype" the journal entry ...

Novocure device

  • By andy44 · New reply yesterday at 9:44 pm
  • Discussion in Treatments · 5 replies
  • Hello all, I am wondering if any patients here are using the Novocure device. I understand this treatment is available in the US and in Europe. I am trying to collect some information about it, and I ...

Meningioma right frontal lobe

  • By Barb67 · New reply yesterday at 9:24 pm
  • Discussion in Non-malignant tumors · 8 replies
  • I was diagnosed approximately 3 years ago. Since my first MRI tumor almost doubled in size. It is now 3.2cmx2.0cmx2.?cm. I am going for another MRI on Tuesday because my headaches are really getting horrible ...

2x survivor but depressed

  • By j2xsurvivor · New reply yesterday at 9:06 pm
  • Discussion in Survivor stories · 8 replies
  • I am a 2x survivor but am depressed every day and can't get passed it because I see everyone around me walking around and wearing heels and short skirts like I "used to do" But I should really be Thanking ...


  • By mrbeck84 · New reply yesterday at 3:05 pm
  • Discussion in Newly diagnosed · 4 replies
  • I just got diagnosted with a petroclivical meningioma does anybody had one before ...

A mom's journey

  • By Newyorkmom55 · New reply yesterday at 12:32 pm
  • Journal · 27 replies
  • I have written and then sometimes delete because why should I add more depression to everyone. I wrote on Facebook and people wanted to know if I am ok. My story started almost twelve years ago. My middle ...

Days to go?

  • By jmvirwin · New reply yesterday at 11:51 am
  • Discussion in Caregiver corner · 15 replies
  • My husband has had a downturn. I thought we were finally turning the corner on three weeks of battling severe constipation. Things finally got moving again this weekend, and I thought finally now he can ...

Astrocytoma Grade 2 - Age 70 - From Diagnosis Diary

  • By Karen1966 · New reply yesterday at 10:13 am
  • Journal · 14 replies
  • I see and hear so many wanting to know what is going to happen next and I have actually kept a "diary" of sorts since my husband's diagnosis. I thought I would post my diary of what has happened with ...

How do you keep your faith when your angry with your Higher Power?

  • By AmyJeanDev · New reply yesterday at 7:42 am
  • Discussion in Living with a brain tumor · 5 replies
  • Hi, I'm newly diagnosed with an Oligodendroglioma low grade in Jan, 2014. I've always been a positive person and believed "Everything happens for a reason" and I am Catholic and prayed daily. After my ...

My sweet mom and glioblastoma

  • By plowe · New reply April 17, 2014
  • Journal · 5 replies
  • My mom is a 73 year active "young" lady. On September 7 she told me that she had a headache for a few days. On September 8 she was standing in the kitchen and all of a sudden she couldn't talk. When words ...

GBM Support group

  • By monica523 · New reply April 17, 2014
  • Discussion in Caregiver corner · 19 replies
  • I'm helping my twin brother who has GBM stage 4 cancer. It is so difficult to watch someone you love go through all this. Just wondering if anyone in the Detroit area is going through the same thing ...

Proccluster for glioma treatment

  • By akist · New reply April 17, 2014
  • Discussion in Treatments · 8 replies
  • I was given proccluster tablets to take once a day every day for a long time, I cannot even look them up on the internet, if anyone knows what they are or has used them please let me know. Apparently ...

New to this site..Husband has Oligoastrocytoma Grade 3

  • By soxboysmom · New reply April 16, 2014
  • Journal · 27 replies
  • Well, glad to have found this site, because I really need to vent and to get support from people who can relate to what we are going through. My husband had a seizure in February of this year and after ...


  • By Krick · New reply April 16, 2014
  • Discussion in Caregiver corner · 3 replies
  • My mom has been in hospice for 1 month. It is still a difficult journey. We have an aide that comes 3 days a week for bathing her in the hospital bed. She is really great. We have a nurse that come three ...

How to cope as a caregiver?

  • By Liesa-Joan · New reply April 16, 2014
  • Discussion in Caregiver corner · 19 replies
  • I lost my Father last year, he was my God, he died at age 91. I grieved the whole year. On 1/1/14, my husband's right arm stopped working normally. We went to the emergency room and the CT scan showed ...

Vision Changes

  • By suzieta · New reply April 16, 2014
  • Discussion in Caregiver corner · 18 replies
  • Just wondering what experiences people are having there with vision changes. My husband is going to be 63 so I know the aging factor is very real. He's having vision changes in left eye - very blurry ...

Tumor treating fields

  • By gloria2344 · New reply April 16, 2014
  • Discussion in Treatments · 19 replies
  • Hello, Anyone have thoughts or information on this type of treatment? It is called Novo TTF. Here is the link to the Ted Talk. ncer_with_electric_fields.html My ...

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The American Brain Tumor Association Connections Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the American Brain Tumor Association, an Inspire trusted partner.