Alzheimer's Foundation of America Support Community

The Alzheimer's Foundation of America Support Community connects individuals with Alzheimer's disease and related dementias, and their families, friends and caregivers to provide support and improve quality of life... More about this group

Leaky or Clogged Feeding Tubes

By Duvie · New reply 12:56 am
Journal · 2 replies
Does anyone have trouble with getting tubes clogged or skin irritation from leaky feeding tubes ...

Any Trach Patients or Caregivers?

By Duvie · New reply yesterday at 8:45 pm
Journal · 8 replies
Duvie has a feeding tube and a trach, since Oct 8, 2009. Seems I'm always giving advice on feeding tube problems, but never talk about trach issues. Duvie doesn't care for most respirtory nurses to suction ...

Keeping Hydrated During Hot Summers

By Duvie · New reply yesterday at 6:50 pm
Journal · 11 replies
We all have to realize that it is more difficult for many patients to stay hydrated during warmer or hotter days. Many patients have a caregiver to help. Caregivers, such as Jo & I, need to be aware of ...

The night visitors

By Chachee · New reply yesterday at 6:07 pm
Journal · 10 replies
Again, last night, it seems we had a bunch of people in the house who were intent on taking the blankets off of RJ's bed,so he got up to help them. Of course there were no people there, no one stealing ...

"What are we going to do with our minutes"

By Grumpydawg · New reply yesterday at 5:01 pm
Journal · 3 replies
"What are we going to do with our minutes"? I thought the question Linda asked me this morning might have something to do with a phrase in a tv commercial she was watching so I asked "What minutes are ...

Just Diagnosed

By Enig97 · New reply yesterday at 3:31 pm
Discussion in Young Onset Alzheimer's disease · 30 replies
I am a 54yr old female diagnosed last week with EOAD. In a way it was a relief because otherwise I was a crazy hypochondriac. I suppose the latter would have been better. I had to leave my nursing job ...

Mom's Weekend Away

By Amgbluesky · New reply yesterday at 9:53 am
Journal · 6 replies
Well we did it. We managed to get my mother packed and to my brother's house for Friday and Saturday night. It was so stressful that I was beginning to think it wasn't even worth it, but man oh man it ...

turning point not sure where to go from here

By deberjunie · New reply yesterday at 9:22 am
Discussion in Living with Alzheimer's disease · 10 replies
my mother has dementia or alzheimers the doctor wont really give us concrete answeres. but whatever it is its in advanced stage. she is difficult beyond belief. she is stubborn about every thing. she ...

12 minutes of virtual dementia HEARTBREAKING

By Amgbluesky · New reply June 18, 2013
Discussion in Living with Alzheimer's disease · 9 replies
This came to me in an email. The video needs to be watched. I cried watching the two people do the virtual tour. An eye opening experience for sure. Take a couple of minutes to watch for yourself and ...

People who are interfering with my mother

By delaine66 · New reply June 18, 2013
Discussion in Financial issues · 8 replies
I have been helping my mother with paying her bills and life insurance I have set up an account for her S.S. check it is a very small amount right now. I am her P.O.A. and somehow my oldest son has got ...

Mom finally went home

By 1Buckeye · New reply June 18, 2013
Discussion in End-of-life decision-making · 21 replies
Making this quite short, as it's still so "raw" & very difficult to discuss... my dearly loved mom died, this past Monday evening. At least she was in her earthly home, when God called her to her brand ...

Five million

By Brian · New reply June 17, 2013
Journal · 243 replies
Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

Alzheimer's and coconut milk

By EZDon · New reply June 17, 2013
Discussion in Treatment options and clinical trials · 1 reply
I was sent this link regarding the treatment of Alzheimer's with coconut oil by a doctor's to her husband who was afficted; a worthwhile watch: http://www.youtube.com/watch_popup?v=ZZO R-Qd3QSg ...

Dance with my Father

By Grumpydawg · New reply June 17, 2013
Journal · 2 replies
I sang this song as a tribute song to honor those really good Dads on this day and to have a special remembrance to those dear Dads who have passed on but are sadly missed on this day. I didn't practice ...

How do I let go?

By Grumpydawg · New reply June 17, 2013
Journal · 1 reply
When I sang this song, I thought of all of us caregivers who have to prepare to let go at some point. And it makes me very sad to think of it. This song was hard for me to sing for another reason too ...

Mom at 100

By mtw01 · New reply June 16, 2013
Journal · 12 replies
Yep, my mom turned 100 years old this week. 100 year old is who she is not the Alzheimer's disease. I actually call her 'my bounce back kid'. She's had medical problems she faced most of my adult life ...

Another fall

By AnnieKing · New reply June 16, 2013
Journal · 7 replies
After being in the hospital twice in February my husband went to a nursing home. He got lots of PT, OT, and speech therapy for swallowing problems. End of May he went to an ALF. Very nice place. Today ...

New to site, but need advice

By ruthsdaughter · New reply June 14, 2013
Journal · 26 replies
My Mother has Alzheimers and is now living with me and my husband. I am BLESSED that I am able to care for her as I am not working. My problem is that she ALWAYS wants to talk about DEAD people. Her deceased ...

amazing but true

By Bonita6 · New reply June 14, 2013
Discussion in Living with Alzheimer's disease · 4 replies
This amazes me and I wonder if anyone else has encountered this. My mom, who has dementia and no diagnosis as to where she's at, decided last Friday that she would never forgive me for selling her home ...

What do I do now?

By 367S5th · New reply June 14, 2013
Discussion in Living with Alzheimer's disease · 5 replies
So I feel worthless and as if I failed my mother, who has this disease. But then I have my father who appears to also have issues. See, I live about 4 hours away from home and my work and family life ...