4 Months Since Diagnosis

It has been nearly four months since my diagnosis. To say I have learned a lot about ALS would be a complete understatement.
I have done these things.
1. I got active in the ALS Associations Walk to D'Feat ALS. I got a lot of my friends and family involved and we have raised over a thousand bucks. Cool.
2. I got a Feeding tube put in. That was no problem. However the problem is trying to get the food to put in the feeding tube. Doctors in my case are not talking to one another. I am trying to unravel this.
3. My speaking and swallowing abilities have further gone down. ALS association provided me with a computer that helps me communicate. Thanks a lot.
But with my loss of speaking, my wife has become my advocate. And boy is she good!
4. I have seen nurses, physical therapists, speech and swallowing therapists, and doctors.
One thing for sure, the medical profession is doing its best.
But one thing I have learned..that the average person in society does not know what ALS is, let alone what the patient is going through.
I have been trying to educate them, gently.

But all in all, I keep my positive attitude...I will last longer than they say. My goal is much more than what the doctors predict.
My best advice to all...is to keep learning, and do not be afraid to ask questions. And learn. And be your own advocate.

Love to all
Chuck