Inspire connects patients, families, friends and caregivers for support and inspiration... More about this group

Makeup with bipap mask

jsayon
  • By jsayon · Posted April 13, 2014
  • Discussion in Living with ALS · 0 replies
  • I am a 31 yr old female who wears a bipap 24/7. I have b-day coming up and would like to wear makeup, any suggestions. I currently use a swift fx bella nasal mask ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

What can family do When the Power of Attorney won't make a decision !

WayneLampe
  • By WayneLampe · Posted February 8, 2014
  • Discussion in Family and friends · 0 replies
  • Subject : What can family do When the Power of Attorney won't make a decision ! Hello- I heard of this current situation and trying to get information to forward to this family. The Situation - A mother ...

I'm new to this

niqui225
  • By niqui225 · Posted January 18, 2014
  • Journal · 0 replies
  • So this is my first time joining a support group for anything. I am adopted and in 2006 found several members of my biological family. The unfortunate part of this wonderful news is that I learned about ...

New infographic: Inspire Rare Disease Health Communities at a Glance

John2
  • By John2 · Posted January 9, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 1/9//13 Dear members, I am writing to share with you a new infographic that Inspire published yesterday: Inspire Rare Disease Health Communities at ...

Physical activity?

drageingrid
  • By drageingrid · Posted January 4, 2014
  • Discussion in Living with ALS · 0 replies
  • Hey everyone I am from Norway have had the diagnos for about two years, So I am able to exersice. Are there any other with ALS doing training? have you seen any posetiv effect on symptoms? hope that ths ...

Thank You, From Inspire

Walter
  • By Walter · New reply December 3, 2013
  • Journal · 108 replies
  • Hello everyone, As Thanksgiving approaches, all of us at Inspire would like to take a moment to thank you for being part of our community. While we wish no one had to deal with the serious health issues ...

Shopping Amazon? Shop for Oley

oleyfriends
  • By oleyfriends · New reply November 6, 2013
  • Journal · 3 replies
  • If you're shopping on Amazon, log on through AmazonSmiles and they'll donate 0.5% of the price to Oley. Use this link: http://smile.amazon.com/ch/13-3194182 It's simple way to support Oley programs, and ...

Oley Conference Videos Available

oleyfriends
  • By oleyfriends · Posted October 1, 2013
  • Journal · 0 replies
  • If you missed the 2013 Oley Conference, or want to see a session again, borrow the DVD from the Oley library. You'll learn... • Solutions to your tube feeding troubles • How to avoid a catheter infections ...

Sep/Oct Oley Newsletter Available

oleyfriends
  • By oleyfriends · Posted September 30, 2013
  • Journal · 0 replies
  • The Oley Foundation September/October issue of the LifelineLetter is now available online. http://www.oley.org/newsletter.html#Curr ent Read articles on: • Central Venous Catheters, Biofilm, and Thrombosis ...

Five million

Brian
  • By Brian · New reply August 5, 2013
  • Journal · 261 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

A new Inspire report in collaboration with Stanford Medical School

Brian
  • By Brian · New reply July 22, 2013
  • Journal · 116 replies
  • As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...

Oley Conference for People on Tube or IV Feeding

oleyfriends
  • By oleyfriends · New reply April 27, 2013
  • Journal · 5 replies
  • Oley Conference for People on Tube or IV Feeding You can’t afford to miss this chance to learn from the experts and meet others who live similarly. Cape Codder Resort & Spa Hyannis, Massachusetts June ...

Earn $150 While Helping the Oley Foundation

oleyfriends
  • By oleyfriends · Posted April 17, 2013
  • Journal · 0 replies
  • We are looking for feedback from patients who have, or caregivers who are experienced in using, a low profile tube feeding device (sometimes called a button, MIC-KEY, or Mini-One) who live in the Boston ...

The Inspire Q&A: Inspire talks with Deanna Attai, MD

John2
  • By John2 · New reply April 16, 2013
  • Journal · 16 replies
  • Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...

Oley Newsletter with Conference Registration!

oleyfriends
  • By oleyfriends · Posted April 8, 2013
  • Journal · 0 replies
  • The Oley Foundation March/April issue of the LifelineLetter and conference brochure is now available online. http://www.oley.org/newsletter.html#Curr ent Some of the featured articles include: • 28th ...

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