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All new and active discussions & journals
Sharing our progress
- By Dannygirl · New reply November 18, 2009
- Discussion in Living with ALS · 2 replies
- Would any one like to share your day to day progress with me? It is hard to talk to others about what is happening to me so I thought others with the same diagnosis could help answer questions or give ...
ALS and my beloved aunt
- By Sue13 · New reply November 18, 2009
- Journal · 11 replies
- Hi there I am new here and have been reading alot regarding ALS and searching for little new discoveries but not much yet. My aunt 63 years has been suffering from ALS for the past 2 years now and has ...
Why I am Thankful for My Son
- By Chuck1106 · New reply October 17, 2009
- Journal · 7 replies
- I had a great thanksgiving. We went to my son Rick's pad for dinner. All four of my sons were there. It was awesome for me. Family is everything to me.. After the dinner and watching football, my wife ...
ALS in Denial
- By Jeff28 · New reply September 19, 2009
- Discussion in Newly diagnosed · 5 replies
- My father was diagnosed with ALS in March 2009 and may very well have had it for over a year as that is when the symptoms set in. Since his diagnosis he has been emotionally shut down and will not even ...
Small children interacting with parent with ALS
- By nannyny · New reply September 19, 2009
- Discussion in Family and friends · 3 replies
- I am nannying for a 7 year old whose father was recently diagnosed with ALS, but his disease has prgressed extremley fast. He was running everyday in Nov. 08 and now he cannot move anything and is permnently ...
Guestbooks are now live!
- By TeamInspire · New reply August 15, 2009
- Journal · 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
Scheduled maintenance this evening
- By TeamInspire · New reply August 12, 2009
- Journal · 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
Energy Boosting Natural Remedies? Chinese Medicine?
- By katiefi · New reply July 24, 2009
- Discussion in Family and friends · 1 reply
- My father was recently diagnosed with ALS. He keeps telling me that he just wants someone to treat him like he can get better instead of treating him like a dead man. He wants to be able to go into a ...
ALS and fluid in pleural space of lungs
Children of patients
- By bschaeler · New reply July 22, 2009
- Discussion in Family and friends · 3 replies
- My husband was diagnosed with ALS almost a year ago; he has bulbar als, so his progression has been very rapid. I fear he is at the end of this journey as he is exhibiting signs of getting ready to 'let ...
ICU
- By Chuck1106 · New reply July 22, 2009
- Discussion in Living with ALS · 2 replies
- I just got back from the hospital. I went there to the ER because I was vomiting a lot and my wife feared I would be dehydrated, They kept me there for four days. While I was there, the tests they did ...
Share your story via video!
- By TeamInspire · New reply June 23, 2009
- Journal · 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · New reply June 12, 2009
- Journal · 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · New reply June 9, 2009
- Journal · 35 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
Moms, you rock!
- By TeamInspire · Posted May 1, 2009
- Journal · 0 replies
- Looking for a unique and extraordinary way to say "thank you" to your mom? In honor of Mother's Day, good friend of Inspire Dr. Gwenn (of http://www.PediatricsNow.com and http://www.DrGwennIsIn.com) will ...
UltraVoice PlusII
- By Chuck1106 · New reply March 31, 2009
- Journal · 3 replies
- I checked out this site on the internet, and they sent me information on this voice program. I have Bulbar, and am unable to talk to any extent that people can understand. This says it will allow me to ...
Newsweek Magazine wk of November 10, 2008
- By Chuck1106 · New reply November 12, 2008
- Journal · 7 replies
- I just received my Newsweek magazine. I was flipping through it, and in the MY TURN page a story about a man who has ALS. Michael Goldsmith wrote an interesting article about ALS. I would put the whole ...
4 Months Since Diagnosis
- By Chuck1106 · New reply October 13, 2008
- Journal · 5 replies
- It has been nearly four months since my diagnosis. To say I have learned a lot about ALS would be a complete understatement. I have done these things. 1. I got active in the ALS Associations Walk to D'Feat ...
Over 1 month since Diagnosis
- By Chuck1106 · New reply August 23, 2008
- Journal · 9 replies
- Well...I have been diagnosed over a month... I still slur my speech..(getting worse) and have problems eating and swallowing... (getting worse). I have been to a nutritionist...I did tests for him that ...
Info
- By fraulibby · New reply August 11, 2008
- Journal · 3 replies
- My mom has been diagnosed with Bulbar ALS. She is elderly and I guess I thought this was something that occurred earlier in life. Any one out there who has a parent diagnosed late in life ...
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Inspire connects patients, families, friends and caregivers for support and inspiration. Read more about our work.