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Lunasin: New Frontier and Hope for ALS

jljan
  • By jljan · New reply 12:50 pm
  • Discussion in Children and families · 19 replies
  • For WSW, As you asked I will open up the topic about Lunasin. . . There is much exciting and very PROFOUND information to share with the ALS community. I have shared in anotherTeam Inspire ALS discussion ...

It is free from side effects

dalbert123
  • By dalbert123 · New reply 10:25 am
  • Discussion in National ALS Advocacy Day · 1 reply
  • I question and yeah he had three of them yeah I did not manage to get of him and take home a hit today yeah accident certainly got your YouTube oh I just started as guy today feel free to write on it ...

ice bucket challenge

JimmyMac
  • By JimmyMac · New reply yesterday at 8:28 pm
  • Discussion in National ALS Advocacy Day · 7 replies · Photos
  • how come there aren't any postings on this site about the ice bucket challenge? Or at least I don't see them. Jim ...

Medical Marijuana

elliemae911
  • By elliemae911 · New reply yesterday at 3:06 pm
  • Discussion in Medicare prescription drug benefit · 18 replies
  • Has anyone tried it. I would think smoke in the lungs of an ALS sufferer would not be good but maybe juicing would be beneficial. The neurologist even suggested I try it. Some online advocates swear by ...

Edema!

Louislouis

My dad

missemilie8
  • By missemilie8 · New reply August 29, 2014
  • Journal · 4 replies
  • In less than a month it will be 5 years since my dad died of ALS. All the publicity ALS has been getting with the ice bucket challenge is great... but it has also been hard on me. To see "ALS" plastered ...

Lunasin

wsw
  • By wsw · New reply August 26, 2014
  • Discussion in Children and families · 12 replies
  • I think this is not the proper topic, but perhaps someone would like to open a discussion about Lunasin ...

Another Battle Ends

Ms-Mee
  • By Ms-Mee · New reply August 26, 2014
  • Discussion in Children and families · 10 replies · Photos
  • Thank you all who have given advise and support. My brother Matthew has found a new home, an new life, and some relief from the all of the symptoms of ALS ...

Botox for Spasticity

elliemae911
  • By elliemae911 · Posted August 25, 2014
  • Discussion in Medicare prescription drug benefit · 0 replies
  • Hi Everyone, I'm debating whether I should bother getting another injection. My knees rub together when I walk and it's very difficult to walk at a normal speed. in the past Botox helped for a short time ...

Balance issues

wsw
  • By wsw · New reply August 21, 2014
  • Discussion in Children and families · 48 replies
  • I'm sure it's discussed somewhere, but I was wondering if anybody else has such an issue with balance that though they have strong legs they tend to fall over. It has been my primary problem for the last ...

Near the end with my mother

SBeck
  • By SBeck · New reply August 20, 2014
  • Discussion in Children and families · 20 replies
  • I have been following this forum for a while, mostly listening. My mother has had als for about 3 yrs...cannot move below waist, losing strength in arms. Having swallowing problems, everything is put ...

Bulbar Onset ALS

ghevener
  • By ghevener · New reply August 19, 2014
  • Discussion in Medicare prescription drug benefit · 19 replies
  • I would like to hear from someone who has been diagnosed with ALS who had bulbar onset. I would also like to hear from someone with this onset who was misdiagnosed ...

Finally, A Revolution in Swallowing Restoration

Duvie
  • By Duvie · New reply August 18, 2014
  • Journal · 21 replies
  • Has anyone else noticed what appears to be a revolution within the medical community to gain control of patient's ability to swallow in order to enjoy all the enjoyment that comes with being able to eat ...

speaking devices

Ms-Mee
  • By Ms-Mee · New reply August 12, 2014
  • Discussion in Children and families · 12 replies
  • Trying to communicate with my brother about so many things, his voice is what I would describe as garbbled. I know he wants to still communicate via his voice, but it has become a source of frustration ...

ALS FATHER

RSB14
  • By RSB14 · New reply August 11, 2014
  • Discussion in Children and families · 3 replies
  • My father is suffering ASL almost five years now and we suffered a lot. The worst case is my father's claims is denied due to discrepancies on his documents. He strive a lot in fighting this disease and ...

Newby @ALS

BlueEyesOhio
  • By BlueEyesOhio · New reply August 11, 2014
  • Discussion in Children and families · 6 replies · Photos
  • I just thought I'd introduce myself. I was diagnosed June 17, 2014. So, I'm rather new at this. It's been a rough 6 weeks! We have been on a roller coaster of emotions. Hello to all who are fighting the ...

Anyone Experiencing Feeding Tube Leakage or Clogs

Duvie
  • By Duvie · New reply August 9, 2014
  • Journal · 50 replies · Photos
  • Hello Everyone, Feeding tube leakage can be a nightmare if, like us, were not informed in how to reduce the risk or what products to use in eliminating the skin irritation caused by stomach acid eating ...

retigabine

PM_SR
  • By PM_SR · New reply August 9, 2014
  • Discussion in Familial ALS · 2 replies
  • Any one trying out this drug for ALS? Seems like a major development : http://news.harvard.edu/gazette/story/20 14/04/new-hope-for-treating-als/ PM ...

Bowel movements

Kdpersn
  • By Kdpersn · New reply August 2, 2014
  • Discussion in Medicare prescription drug benefit · 8 replies
  • I hate having such a private matter be a public concern...but I have ALS...so everything goes. When you have no core muscle strength what can you do to get the process moving? I take stool softeners but ...

The Thief

Raysdisease
  • By Raysdisease · New reply July 26, 2014
  • Journal · 9 replies
  • Amyotrophic Lateral Sclerosis came into our home like a thief in the night. Ray was a son, brother, husband, lover, father and friend. Over time ALS stole the height of this proud man, leaving him bent ...

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The ALS Association Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by The ALS Association, an Inspire trusted partner.