The ALS Association Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Bowel movements

  • By Kdpersn · New reply 11:30 am
  • Discussion in Medicare prescription drug benefit · 7 replies
  • I hate having such a private matter be a public concern...but I have everything goes. When you have no core muscle strength what can you do to get the process moving? I take stool softeners but ...

Anyone Experiencing Feeding Tube Leakage or Clogs

  • By Duvie · New reply 10:13 am
  • Journal · 35 replies
  • Hello Everyone, Feeding tube leakage can be a nightmare if, like us, were not informed in how to reduce the risk or what products to use in eliminating the skin irritation caused by stomach acid eating ...

Finally, A Revolution in Swallowing Restoration

  • By Duvie · New reply yesterday at 11:58 am
  • Journal · 17 replies
  • Has anyone else noticed what appears to be a revolution within the medical community to gain control of patient's ability to swallow in order to enjoy all the enjoyment that comes with being able to eat ...

The Thief

  • By Raysdisease · New reply July 26, 2014
  • Journal · 9 replies
  • Amyotrophic Lateral Sclerosis came into our home like a thief in the night. Ray was a son, brother, husband, lover, father and friend. Over time ALS stole the height of this proud man, leaving him bent ...

My Sister Laura lost her brave battle to ALS

  • By Judeluvslaura · New reply July 23, 2014
  • Journal · 10 replies
  • Diagnosed 17 months ago Laura was given 3-5 years, but she did not get even close to that much time, but she cherished every moment she had. My big sis Laura ( one of 5 "BAKER GIRLS") was the "go to gal ...

Welcome to New members

  • By Duvie · New reply July 18, 2014
  • Journal · 21 replies
  • I love Inspire's network of support groups and their amazing members. Many patients may have multiple medical issues, so it's great that Inspire offers 219 groups to choose from. I enjoy attempting to ...

Webinar-adult human tongue stem cell research

  • By Duvie · New reply July 16, 2014
  • Journal · 7 replies
  • This is a copy of an email sent to me. I hope some members who suffer from Dysphagia, swallowing disorder, take the time to check it out. Dr Belafsky is perhaps the most dedicated physician I have ran ...

what shoes

  • By harleyann · New reply July 13, 2014
  • Discussion in Children and families · 7 replies
  • hi since im new at this im wondering if any ladies who experience drop foot could sugest summer footwear as running shoes are hot ...

ALS VA SMC Rating?

  • By martinla · New reply July 11, 2014
  • Discussion in ALS and the military · 14 replies
  • Does anyone have information on what the VA does to rate a Veteran with ALS as far as figuring SMC (Special Monthly Compensation)? I see every site says 100% (consider the need for SMC). I know that ALS ...

Happy 4th of July

  • By Duvie · New reply July 4, 2014
  • Journal · 17 replies
  • Wishing everyone a great 4th of July. However, lets keep our Inspire members in our prayers who may be affected by Hurricane Arthur including our friends in Canada. Also members who may be facing more ...

Our 2014 Oley Conference Experience

  • By Duvie · New reply July 3, 2014
  • Journal · 39 replies
  • As members arrive for the start of the 2014 Oley Foundation's Conference it will be nice for us to get there early in hopes of meeting other members. With new connections coming out later this year, possibly ...

Fast ALS Progression

  • By Hellosully · New reply June 30, 2014
  • Discussion in Children and families · 12 replies
  • My father passed away from ALS 2 years ago this July 3. He was 70. His ALS symptoms started in Dec 2011 and he passed away on July 3, 2013 (7 months). Surprisingly a neighbor of theirs in AZ had the same ...

Near the end with my mother

  • By SBeck · New reply June 27, 2014
  • Discussion in Children and families · 13 replies
  • I have been following this forum for a while, mostly listening. My mother has had als for about 3 yrs...cannot move below waist, losing strength in arms. Having swallowing problems, everything is put ...

my sons als

  • By rockabillysteve · New reply June 26, 2014
  • Discussion in Children and families · 28 replies
  • my son andy is two years into this awful desiese ,from being a fit top sportsman and one of the best guitarists around it has slowly taken his legs and now his arms are getting weak it takes him sometimes ...

Near the end cont.

  • By SBeck · New reply June 26, 2014
  • Discussion in Children and families · 2 replies
  • I am sorry about rambling. It has not been a good night. Can anyone give me advice on end of life protocol for a peaceful passing ...

Curious About The benifits Of Coconut Oil

  • By Duvie · New reply June 25, 2014
  • Journal · 345 replies
  • This past week I've been hearing about coconut nut oil having a lot of great benefits on the body. Can anyone say for sure that coconut oil actually is working for some patients? Thanks for any responses ...

75th Anniversary of Lou Gehrig's Speech


Happy Father's Day

  • By Duvie · New reply June 18, 2014
  • Journal · 14 replies
  • Want to wish all the fathers a very Happy Father's Day. To all the single moms doing the job of both, mom & dad, then I guess it's Happy Parent's Day for you. In any case, I hope everyone has a great ...

keyless door entry

  • By Ms-Mee · New reply June 17, 2014
  • Discussion in Children and families · 3 replies
  • I'm looking for a way to make a traditional apartment door lock and key work without changing the existing lock. I've heard of strike plate electric devices~ does anyone have information to pass on. I've ...

Essential Oils and ALS

  • By Valerie19 · New reply June 16, 2014
  • Discussion in National ALS Advocacy Day · 2 replies
  • Has anybody had any experience with Essential Oils treating ALS? I was told Frankincense, Helichrysum, Sandalwood, Brain Power and the Raindrop Kit might help with symptoms ...

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The ALS Association Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by The ALS Association, an Inspire trusted partner.