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Has anyone had success with coconut oil or other remedies?

  • By KelseyCalhoon · New reply yesterday at 11:08 pm
  • Discussion in Children and families · 24 replies
  • I found a few discussions and articles of ALS patients using coconut oil and even magnesium water to slow progression. Did anyone actually track their progress or find something that worked for them ...

Feeding tubes

  • By seattlelori · New reply yesterday at 3:55 pm
  • Discussion in Familial ALS · 9 replies
  • My doctors have recommended a feeding tube, although I still eat (albeit slowly and small pieces). I have lost some weight but not more than I would have liked to if I was normal. I feel like I eat healthy ...

My Life with ALS ... so far

  • By jellis86 · New reply yesterday at 11:41 am
  • Journal · 30 replies
  • It's been nearly 2 years since being diagnosed with ALS (Feb 14, 2013). I suspected as much a good 6 months prior. But doctors don't want to talk about maybe....especially when it comes to an incurable ...

Numbness and Bulbar ALS

  • By Spree123 · New reply December 18, 2014
  • Discussion in National ALS Advocacy Day · 6 replies
  • I have been living with slurred speech for almost two years now. It has gotten worse since May of this year. I didn't realize it was ALS until September 2014. Shocking to say the least. I am experiencing ...

als cure

  • By melloddc · New reply December 14, 2014
  • Discussion in Familial ALS · 2 replies
  • I find it interesting that a cure has not been found for ALS. Polio was first noted in the 1700's and a vaccine was successfully developed in the 1950's. ALS was first noticed in the early 1800's and ...

Traveling with a feeding tube

  • By Valerie19 · New reply December 14, 2014
  • Discussion in National ALS Advocacy Day · 7 replies
  • I recently had a feeding tube inserted. Has anybody ever travelled with one? If so, please offer suggestions. Winning this battle together, Valerie ...

My Son Is At Peace...

  • By shortstuff42 · New reply December 13, 2014
  • Discussion in Children and families · 5 replies
  • I would like to thank everyone on this great site for just being there for me. I lost my wonderful son on November 26, 17 months from his first sign, 10 months since he was diagnosed. Many of you might ...

The Suffering is Over.... I Love You Denny Shields!!

  • By Giz · New reply December 7, 2014
  • Discussion in ALS and the military · 11 replies · Photos
  • Denny Shields passed away November 26, 2014 from his battle with ALS. He was 50. I have never seen something so cruel happen to a human being. The last couple of months for Denny were unbearable for him ...

Coconut Oil in the feeding tube

  • By junebug65 · New reply December 4, 2014
  • Discussion in Familial ALS · 3 replies
  • Does anyone put coconut oil down their feeding tube? I cannot swallow the oil any more and am really nervous about putting it down the tube because of the residue that remains. I have put some in the ...


  • By greensmile · Posted December 2, 2014
  • Journal · 0 replies
  • infinities of differing lengths differing expansions progressions a few regressions futures approaching attainable some near,some far spanning across the universe passing from room to room exploring each ...


  • By jimmyk3 · New reply November 21, 2014
  • Discussion in Children and families · 2 replies
  • Oxaloacetate may neutralize the extracellular glutamate which kills nerve cells. When I looked at the prices for EndureDX (250 mg oxaloacete/pill) from it was listed at $39.99, with a suggested ...

My diagnosis of ALS

  • By Leama65 · New reply November 19, 2014
  • Journal · 34 replies
  • I live in the UK, married with two young Daughters. I found this site in my search for making my condition a thing of the past! My diagnosis was in July 2014, with symptoms starting December 2013. I am ...


  • By Zoeellen · New reply November 17, 2014
  • Journal · 12 replies
  • Iam an Als sufferer first diagnosed in 2013 with Pls. Then after further testing in May this year I have Als which I was speechless as I had researched myself last year when I was diagnosed with the slow ...

Welcome to New members

  • By Duvie · New reply November 12, 2014
  • Journal · 40 replies
  • I love Inspire's network of support groups and their amazing members. Many patients may have multiple medical issues, so it's great that Inspire offers 219 groups to choose from. I enjoy attempting to ...

Healing ALS

  • By KandK · New reply November 11, 2014
  • Discussion in Children and families · 31 replies
  • ALS affects all of the family when one member has ALS. There have been a number of people who have reversed or eliminated the symptoms of ALS. It takes a positive mental attitude to do that. It takes ...

The Suffering is Over

  • By SBeck · New reply November 4, 2014
  • Discussion in Children and families · 16 replies
  • My mom passed away yesterday morning. Her Name was Nan. She fought the good fight for about 3 years. I took care of her in our home, which I will never regret. This horrible, horrible disease robbed her ...

People Who Are Healing From ALS Themselves

  • By MartyMurray · New reply November 2, 2014
  • Discussion in Familial ALS · 72 replies
  • I have seen many people solve so called als by using holistic approaches involving diet, lifestyle changes and mind body methods. Let's get a discussion going here where people can support each other ...

Balance issues

  • By wsw · New reply November 1, 2014
  • Discussion in Children and families · 49 replies
  • I'm sure it's discussed somewhere, but I was wondering if anybody else has such an issue with balance that though they have strong legs they tend to fall over. It has been my primary problem for the last ...

Our Battle With ALS..Denny and Giz

  • By Giz · New reply November 1, 2014
  • Discussion in ALS and the military · 17 replies
  • Hello everyone.. I am sorry that I have not been in contact for so long. I have been caring for Denny and his ALS. His symptoms are going so fast. Within 5 months his breathing capacity went from 62 ...


  • By Yellowroses18 · New reply October 31, 2014
  • Discussion in Children and families · 1 reply
  • Hello, This is my first post on the site, but I have followed the site for quite a while. I am thankful that there is an outlet for those effected by ALS to find some support and understanding. My mother ...

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The ALS Association Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by The ALS Association, an Inspire trusted partner.