The ALS Association Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

My diagnosis of ALS

  • By Leama65 · New reply 8:28 am
  • Journal · 26 replies
  • I live in the UK, married with two young Daughters. I found this site in my search for making my condition a thing of the past! My diagnosis was in July 2014, with symptoms starting December 2013. I am ...

Newby @ALS

  • By BlueEyesOhio · New reply 6:57 am
  • Discussion in Children and families · 18 replies · Photos
  • I just thought I'd introduce myself. I was diagnosed June 17, 2014. So, I'm rather new at this. It's been a rough 6 weeks! We have been on a roller coaster of emotions. Hello to all who are fighting the ...


  • By james1935 · New reply yesterday at 12:29 pm
  • Journal · 2 replies
  • My wife was diagnosed with ALS last year. It has been recommended that she might need either the Dynavox model T10 or Eye Gayzer at a later date. Has anyone had experience with these devices and what ...


  • By greensmile · New reply September 15, 2014
  • Journal · 6 replies
  • i am blessed with life no fear,no regrets good tidings feeling refreshed fresh bliss like a newborn all is good all is pristine no cancer,no threat God gives,and reinforces for the abundant years ahead ...

shingles and ALS???

  • By chiropkv · New reply September 14, 2014
  • Journal · 5 replies
  • Does anyone have an experience or connection with having shingles before their symptoms of ALS began ...

Curious About The benifits Of Coconut Oil

  • By Duvie · New reply September 10, 2014
  • Journal · 370 replies · Photos
  • This past week I've been hearing about coconut nut oil having a lot of great benefits on the body. Can anyone say for sure that coconut oil actually is working for some patients? Thanks for any responses ...

Lunasin: New Frontier and Hope for ALS

  • By jljan · New reply September 10, 2014
  • Discussion in Children and families · 51 replies
  • For WSW, As you asked I will open up the topic about Lunasin. . . There is much exciting and very PROFOUND information to share with the ALS community. I have shared in anotherTeam Inspire ALS discussion ...

L- serine


Rainforest plant - Potential cure for ALS

  • By hellspawn1 · New reply September 9, 2014
  • Discussion in Familial ALS · 1 reply
  • I have recently published my article on newly researched natural medicinal plants and their potential for treatment of ALS and other neurodegenerative diseases. It can be found at: ...

ice bucket challenge

  • By JimmyMac · New reply September 1, 2014
  • Discussion in National ALS Advocacy Day · 8 replies · Photos
  • how come there aren't any postings on this site about the ice bucket challenge? Or at least I don't see them. Jim ...

Medical Marijuana

  • By elliemae911 · New reply August 31, 2014
  • Discussion in Medicare prescription drug benefit · 18 replies
  • Has anyone tried it. I would think smoke in the lungs of an ALS sufferer would not be good but maybe juicing would be beneficial. The neurologist even suggested I try it. Some online advocates swear by ...



My dad

  • By missemilie8 · New reply August 29, 2014
  • Journal · 4 replies
  • In less than a month it will be 5 years since my dad died of ALS. All the publicity ALS has been getting with the ice bucket challenge is great... but it has also been hard on me. To see "ALS" plastered ...


  • By wsw · New reply August 26, 2014
  • Discussion in Children and families · 12 replies
  • I think this is not the proper topic, but perhaps someone would like to open a discussion about Lunasin ...

Another Battle Ends

  • By Ms-Mee · New reply August 26, 2014
  • Discussion in Children and families · 10 replies · Photos
  • Thank you all who have given advise and support. My brother Matthew has found a new home, an new life, and some relief from the all of the symptoms of ALS ...

Botox for Spasticity

  • By elliemae911 · Posted August 25, 2014
  • Discussion in Medicare prescription drug benefit · 0 replies
  • Hi Everyone, I'm debating whether I should bother getting another injection. My knees rub together when I walk and it's very difficult to walk at a normal speed. in the past Botox helped for a short time ...

Balance issues

  • By wsw · New reply August 21, 2014
  • Discussion in Children and families · 48 replies
  • I'm sure it's discussed somewhere, but I was wondering if anybody else has such an issue with balance that though they have strong legs they tend to fall over. It has been my primary problem for the last ...

Near the end with my mother

  • By SBeck · New reply August 20, 2014
  • Discussion in Children and families · 20 replies
  • I have been following this forum for a while, mostly listening. My mother has had als for about 3 yrs...cannot move below waist, losing strength in arms. Having swallowing problems, everything is put ...

Bulbar Onset ALS

  • By ghevener · New reply August 19, 2014
  • Discussion in Medicare prescription drug benefit · 19 replies
  • I would like to hear from someone who has been diagnosed with ALS who had bulbar onset. I would also like to hear from someone with this onset who was misdiagnosed ...

Finally, A Revolution in Swallowing Restoration

  • By Duvie · New reply August 18, 2014
  • Journal · 21 replies
  • Has anyone else noticed what appears to be a revolution within the medical community to gain control of patient's ability to swallow in order to enjoy all the enjoyment that comes with being able to eat ...

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The ALS Association Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by The ALS Association, an Inspire trusted partner.