The ALS Association Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Traveling with a feeding tube

Valerie19
  • By Valerie19 · New reply November 22, 2014
  • Discussion in National ALS Advocacy Day · 4 replies
  • I recently had a feeding tube inserted. Has anybody ever travelled with one? If so, please offer suggestions. Winning this battle together, Valerie ...

Oxaloacetate

jimmyk3
  • By jimmyk3 · New reply November 21, 2014
  • Discussion in Children and families · 2 replies
  • Oxaloacetate may neutralize the extracellular glutamate which kills nerve cells. When I looked at the prices for EndureDX (250 mg oxaloacete/pill) from www.Iherb.com it was listed at $39.99, with a suggested ...

My diagnosis of ALS

Leama65
  • By Leama65 · New reply November 19, 2014
  • Journal · 34 replies
  • I live in the UK, married with two young Daughters. I found this site in my search for making my condition a thing of the past! My diagnosis was in July 2014, with symptoms starting December 2013. I am ...

Als

Zoeellen
  • By Zoeellen · New reply November 17, 2014
  • Journal · 12 replies
  • Iam an Als sufferer first diagnosed in 2013 with Pls. Then after further testing in May this year I have Als which I was speechless as I had researched myself last year when I was diagnosed with the slow ...

Welcome to New members

Duvie
  • By Duvie · New reply November 12, 2014
  • Journal · 40 replies
  • I love Inspire's network of support groups and their amazing members. Many patients may have multiple medical issues, so it's great that Inspire offers 219 groups to choose from. I enjoy attempting to ...

Healing ALS

KandK
  • By KandK · New reply November 11, 2014
  • Discussion in Children and families · 31 replies
  • ALS affects all of the family when one member has ALS. There have been a number of people who have reversed or eliminated the symptoms of ALS. It takes a positive mental attitude to do that. It takes ...

The Suffering is Over

SBeck
  • By SBeck · New reply November 4, 2014
  • Discussion in Children and families · 16 replies
  • My mom passed away yesterday morning. Her Name was Nan. She fought the good fight for about 3 years. I took care of her in our home, which I will never regret. This horrible, horrible disease robbed her ...

People Who Are Healing From ALS Themselves

MartyMurray
  • By MartyMurray · New reply November 2, 2014
  • Discussion in Familial ALS · 72 replies
  • I have seen many people solve so called als by using holistic approaches involving diet, lifestyle changes and mind body methods. Let's get a discussion going here where people can support each other ...

Balance issues

wsw
  • By wsw · New reply November 1, 2014
  • Discussion in Children and families · 49 replies
  • I'm sure it's discussed somewhere, but I was wondering if anybody else has such an issue with balance that though they have strong legs they tend to fall over. It has been my primary problem for the last ...

Our Battle With ALS..Denny and Giz

Giz
  • By Giz · New reply November 1, 2014
  • Discussion in ALS and the military · 17 replies
  • Hello everyone.. I am sorry that I have not been in contact for so long. I have been caring for Denny and his ALS. His symptoms are going so fast. Within 5 months his breathing capacity went from 62 ...

Coconut Oil in the feeding tube

junebug65
  • By junebug65 · New reply October 31, 2014
  • Discussion in Familial ALS · 2 replies
  • Does anyone put coconut oil down their feeding tube? I cannot swallow the oil any more and am really nervous about putting it down the tube because of the residue that remains. I have put some in the ...

NECK BRACES + ALS

Yellowroses18
  • By Yellowroses18 · New reply October 31, 2014
  • Discussion in Children and families · 1 reply
  • Hello, This is my first post on the site, but I have followed the site for quite a while. I am thankful that there is an outlet for those effected by ALS to find some support and understanding. My mother ...

Speechless communication

merula
  • By merula · New reply October 23, 2014
  • Discussion in Children and families · 7 replies
  • Has anyone found an alternative communication for someone who cannot use their hands and doesn't speak? Something that would possibly use a light as the person looks at a computer screen ...

ALS

james1935
  • By james1935 · New reply October 22, 2014
  • Journal · 6 replies
  • My wife was diagnosed with ALS last year. It has been recommended that she might need either the Dynavox model T10 or Eye Gayzer at a later date. Has anyone had experience with these devices and what ...

A Trip to Sheffield!

Leama65
  • By Leama65 · New reply October 19, 2014
  • Journal · 3 replies
  • Well, A breath of fresh air! A trip to Sheffield Hospital, (England) on the 15th of this month. A VERY positive experience. My neurologist was superb. Up to speed on the Deanna protocol, a very well educated ...

This needs to end

SBeck
  • By SBeck · New reply October 15, 2014
  • Discussion in Children and families · 5 replies
  • I don't feel guilty about thinking this anymore. My mother is suffering....I thought most pals didn't feel pain....with all the morphine, atavan etc I am surprised. She has breathing and swallowing issues ...

drinking issues

harleyann
  • By harleyann · New reply October 10, 2014
  • Discussion in Familial ALS · 6 replies
  • hi I would like toknow ifanyone else hasissues drinking from acup. I cant lift a cup up tto drink from one so I am drinking with a straw which is ok in the morning but later one a real problem. does anyone ...

Rainforest plant - Potential cure for ALS

hellspawn1
  • By hellspawn1 · New reply October 7, 2014
  • Discussion in Familial ALS · 3 replies · Photos
  • I have recently published my article on newly researched natural medicinal plants and their potential for treatment of ALS and other neurodegenerative diseases. It can be found at: http://ayahuascatreatment.wordpress.com ...

Curious About The benifits Of Coconut Oil

Duvie
  • By Duvie · New reply October 5, 2014
  • Journal · 394 replies · Photos
  • This past week I've been hearing about coconut nut oil having a lot of great benefits on the body. Can anyone say for sure that coconut oil actually is working for some patients? Thanks for any responses ...

My Mom departed our world quietly

Shamshad
  • By Shamshad · New reply September 30, 2014
  • Journal · 3 replies
  • She was 72 year old, a brave mother, who took charge of family of 5 children after my father died of cancer 17 years ago. Last year June 2013, when we were noticed the blurriness in voice and after few ...

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About this community

The ALS Association Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by The ALS Association, an Inspire trusted partner.