The ALS Association Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

The Suffering is Over

SBeck
  • By SBeck · New reply yesterday at 7:57 pm
  • Discussion in Children and families · 5 replies
  • My mom passed away yesterday morning. Her Name was Nan. She fought the good fight for about 3 years. I took care of her in our home, which I will never regret. This horrible, horrible disease robbed her ...

Speechless communication

merula
  • By merula · New reply October 23, 2014
  • Discussion in Children and families · 7 replies
  • Has anyone found an alternative communication for someone who cannot use their hands and doesn't speak? Something that would possibly use a light as the person looks at a computer screen ...

ALS

james1935
  • By james1935 · New reply October 22, 2014
  • Journal · 6 replies
  • My wife was diagnosed with ALS last year. It has been recommended that she might need either the Dynavox model T10 or Eye Gayzer at a later date. Has anyone had experience with these devices and what ...

A Trip to Sheffield!

Leama65
  • By Leama65 · New reply October 19, 2014
  • Journal · 3 replies
  • Well, A breath of fresh air! A trip to Sheffield Hospital, (England) on the 15th of this month. A VERY positive experience. My neurologist was superb. Up to speed on the Deanna protocol, a very well educated ...

People Who Are Healing From ALS Themselves

MartyMurray
  • By MartyMurray · New reply October 17, 2014
  • Discussion in Familial ALS · 62 replies
  • I have seen many people solve so called als by using holistic approaches involving diet, lifestyle changes and mind body methods. Let's get a discussion going here where people can support each other ...

My diagnosis of ALS

Leama65
  • By Leama65 · New reply October 16, 2014
  • Journal · 26 replies
  • I live in the UK, married with two young Daughters. I found this site in my search for making my condition a thing of the past! My diagnosis was in July 2014, with symptoms starting December 2013. I am ...

This needs to end

SBeck
  • By SBeck · New reply October 15, 2014
  • Discussion in Children and families · 5 replies
  • I don't feel guilty about thinking this anymore. My mother is suffering....I thought most pals didn't feel pain....with all the morphine, atavan etc I am surprised. She has breathing and swallowing issues ...

Healing ALS

KandK
  • By KandK · New reply October 12, 2014
  • Discussion in Children and families · 26 replies
  • ALS affects all of the family when one member has ALS. There have been a number of people who have reversed or eliminated the symptoms of ALS. It takes a positive mental attitude to do that. It takes ...

drinking issues

harleyann
  • By harleyann · New reply October 10, 2014
  • Discussion in Familial ALS · 6 replies
  • hi I would like toknow ifanyone else hasissues drinking from acup. I cant lift a cup up tto drink from one so I am drinking with a straw which is ok in the morning but later one a real problem. does anyone ...

Coconut Oil in the feeding tube

junebug65
  • By junebug65 · New reply October 10, 2014
  • Discussion in Familial ALS · 1 reply
  • Does anyone put coconut oil down their feeding tube? I cannot swallow the oil any more and am really nervous about putting it down the tube because of the residue that remains. I have put some in the ...

Rainforest plant - Potential cure for ALS

hellspawn1
  • By hellspawn1 · New reply October 7, 2014
  • Discussion in Familial ALS · 3 replies · Photos
  • I have recently published my article on newly researched natural medicinal plants and their potential for treatment of ALS and other neurodegenerative diseases. It can be found at: http://ayahuascatreatment.wordpress.com ...

Curious About The benifits Of Coconut Oil

Duvie
  • By Duvie · New reply October 5, 2014
  • Journal · 394 replies · Photos
  • This past week I've been hearing about coconut nut oil having a lot of great benefits on the body. Can anyone say for sure that coconut oil actually is working for some patients? Thanks for any responses ...

My Mom departed our world quietly

Shamshad
  • By Shamshad · New reply September 30, 2014
  • Journal · 3 replies
  • She was 72 year old, a brave mother, who took charge of family of 5 children after my father died of cancer 17 years ago. Last year June 2013, when we were noticed the blurriness in voice and after few ...

ice bucket challenge

JimmyMac
  • By JimmyMac · New reply September 27, 2014
  • Discussion in National ALS Advocacy Day · 7 replies · Photos
  • how come there aren't any postings on this site about the ice bucket challenge? Or at least I don't see them. Jim ...

Newby @ALS

BlueEyesOhio
  • By BlueEyesOhio · New reply September 25, 2014
  • Discussion in Children and families · 26 replies · Photos
  • I just thought I'd introduce myself. I was diagnosed June 17, 2014. So, I'm rather new at this. It's been a rough 6 weeks! We have been on a roller coaster of emotions. Hello to all who are fighting the ...

How it started

KandK
  • By KandK · Posted September 25, 2014
  • Journal · 0 replies
  • I am Kim Cherry, a 66 year old male diagnosed with ALS on November 22, 2011, after some 16 months of tests, guesses, and unproductive treatments, which included open heart surgery. I was told at the diagnosis ...

MY FATHER DIED DUE TO ALS

RSB14
  • By RSB14 · New reply September 23, 2014
  • Discussion in Children and families · 9 replies
  • For almost five years my father tried to fight this disease but still he ended with no hope. This is the worst experience in our lives and I wish that other victim of ALS and their families will not suffer ...

Welcome to New members

Duvie
  • By Duvie · New reply September 21, 2014
  • Journal · 23 replies
  • I love Inspire's network of support groups and their amazing members. Many patients may have multiple medical issues, so it's great that Inspire offers 219 groups to choose from. I enjoy attempting to ...

MY REGIMEN - A Life story from Australia

Leama65
  • By Leama65 · New reply September 20, 2014
  • Journal · 2 replies
  • http://home.goulburn.net.au/~shackel/myr egimen.htm Noe more positive in the fight ...

life

greensmile
  • By greensmile · New reply September 15, 2014
  • Journal · 6 replies
  • i am blessed with life no fear,no regrets good tidings feeling refreshed fresh bliss like a newborn all is good all is pristine no cancer,no threat God gives,and reinforces for the abundant years ahead ...

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About this community

The ALS Association Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by The ALS Association, an Inspire trusted partner.