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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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National ALS Advocacy Day
Join this discussion to learn more about ALSA's annual National ALS Advocacy Day and Public Policy Conference and to share your Advocacy Day experiences with the ALS community. The discussion group also is a great way for Advocacy Day attendees to stay in contact with each other.
Last year's IPLEX demonstration
- By Eddiespaza · New reply November 9, 2009
- 1 reply
- Dear Brothers and Sisters, Until our (Team IPLEX's) very noble action/demonstration last year (November 11 Veterans Day 2008) all previous attempts to procure IPLEX had failed. Despite continuous contact ...
newly diagnosed teen son with ALS
- By imamom · New reply September 29, 2009
- 30 replies
- Hi! I am the mother of a son who just turned 18 and was diagnosed with ALS 2 months ago. I would love food for thought on facing the disease at this age and stage of life. My son will be a senior in high ...
Basset Hound aims to raise half a million for ALS
- By SusanH · Posted September 20, 2009
- 0 replies
- Jack Hills, Basset Hound from Norman OK is entered in the cutest dog in American contest. His goal is to WIN and donate $500,000.00 towards ALS research. It is a 12 week contest and the dog with the most ...
Marriage... Yet another loss due to ALS
- By Eddiespaza · New reply July 13, 2009
- 7 replies
- My name is Eddie, I am 50 years old, I was diagnosed the 2005 I live in the Chicagoland area and own my house. I have been married for 26 years, it seems like my marriage is going to be a fatality of ...
STATINS AND ALS-LIKE SYNDROME
- By moaningminnie · New reply July 13, 2009
- 1 reply
- When researching information on peripheral neuropathy I found this information: “For susceptible individuals, the use of a statin drug can interfere with proper functioning of peripheral nerves. Researchers ...
IPLEX - New York Times
- By Eddiespaza · New reply May 22, 2009
- 2 replies
- Dear friends/PALS, A very dear & close friend, Kathy Thompson a.k.a. Fighting Mom (Team IPLEX Capt.) her son, Josh Thompson (PALS) were featured in the New York Times., The New York Times has just published ...
Advocacy conference proceedings?
- By joe_c · Posted April 13, 2009
- 0 replies
- Will session information or presentations from advocacy conference be available online for those who can't go? Thank you ...
IPLEX, And the IND Process
- By Eddiespaza · Posted March 8, 2009
- 0 replies
- Dear friends, A very dear and close friend, Kathy Thompson a.k.a. fighting mom (Team IPLEX Capt.), posted this excellent retort on ALSTDI last night. This says it all ...
IPLEX and the Telephone Game”: -[Response ]
- By Eddiespaza · Posted February 27, 2009
- 0 replies
- Response to “IPLEX and the Telephone Game”: Conflicting Paradigms Mihaly Lenart Blaming the Victim? In their paper (1), Drs. Richard S. Bedlack, Vicenzo Silani, and Ester Cudkowicz (in the following “Au-thors ...
Team IPLEX - We Need Your Help
- By Eddiespaza · Posted February 25, 2009
- 0 replies
- Dear friends, family, & supporters, I am once again, requesting help from any and all family, friends, & supporters . Please Review the above attachments we (Team IPLEX) have provided... You can... cut ...
The IPLEX debacle
- By Eddiespaza · New reply February 7, 2009
- 2 replies
- Dear brothers and sisters, In regard to the recent "Telephone Game" article which apparently has influenced the mighty FDA... well all I can say about yet another bogus, don't get out of line, hopeless ...
So, you're going to write your Congressman?
- By BobbyB · New reply January 15, 2009
- 2 replies
- Letters to Congress So, you're going to write your Congressman? Good idea. Make it a good letter. People who think members of Congress pay little or no attention to constituent mail, are plain wrong ...
ALS-Major League Baseball - Lou Gehrig Day
- By pjf · New reply January 13, 2009
- 6 replies
- "Batting for the Cure" Newsweek, Nov. 1, 2008 advocates July 4, 2009 as Lou Gehrig Day - a FUNDRAISER for ALS. The 70th anniversary of Lou Gehrig's famous speech at Yanke Stadium. What role is ALS National ...
www.stealingpieces.org
- By joe_c · Posted January 7, 2009
- 0 replies
- www.stealingpieces.org Powerful message ...
Petition to make July 4th National ALS Day
- By BobbyB · New reply December 17, 2008
- 2 replies
- Petition to make July 4th National ALS Day http://www.petitiononline.com/122296/pet ition.html To: All Major and Minor League Baseball Franchises, US Congress, US House of Representatives On April 30th ...
Inspire
- By afbtttl · Posted December 16, 2008
- 0 replies
- http://www.xconomy.com/boston/2008/12/11 /online-communities-meet-clinical-trials -inspires-co-founder-on-social-networkin g-health-20-and-trust ...
Team IPLEX demonstration in Washington DC -- 11/11/08
- By Eddiespaza · Posted November 1, 2008
- 0 replies
- http://www.youtube.com/v/Qx_7S0eNIZo Dear friends, family, PALS, Please review/double click the Hyperlink above. This video basically says it all about the mission Edward W. Esparza 847-678-1874 e.esparza@comcast.net ...
LOU GEHRIG’S DISEASE DEMONSTRATION!
- By Eddiespaza · New reply November 1, 2008
- 3 replies
- URGENT! FORWARD THIS IMPORTANT INFORMATION TO ALS PATIENTS, FAMILY AND FRIENDS NOW! BE THERE IF YOU CAN! YOUR SUPPORT IS IMPERATIVE! WITH YOUR HELP WE CAN SUCCEED! ONLY 2 WEEKS LEFT! FOR IMMEDIATE RELEASE ...
Veterans' Day demonstration for the release of IPLEX, Washington, DC
- By Eddiespaza · New reply October 11, 2008
- 1 reply
- FOR IMMEDIATE RELEASE LOU GEHRIG’S DISEASE DEMONSTRATION! TUESDAY, NOVEMBER 11, 2008 10AM to 4PM U.S. Capitol Building West Front Lawn (handicapped accessible), WASHINGTON, D.C. ALS Patients Protest Legal ...
ALS Registry Act
- By Leon · New reply September 23, 2008
- 1 reply
- I recall half-time with my enraged football coach. He said, you men own this game even if you're losing by 21 points. Like the ALS Registry Act S.1382 we may be behind in the score but this match-up is ...
