Discussion and support for people whose lives have been touched by familial ALS. Join the discussion to reconnect with friends and acquaintances from across the country, meet new people and find support from others who share the common bond of familial ALS.
- By Gebbie · Yesterday at 11:11 pm
- 2 replies
- I've recently been diagnosed with A.L.S. and would like to know if other people experience sensory manifestations. I have a numb feeling in 3 of my toes and across the top of one foot, and get burning ...
- By lamere53 · June 13, 2008
- 6 replies
- We are a family of four who live in SOUTHERN New Jersey near Philadelphia. Already familiar w/the lithium results in the Italian trials, I am a recently-diagnosed male ALS patient who is DESPERATELY trying ...
- By jtrump · February 2, 2007
- 19 replies
- I am looking for other families with Familial ALS who might be able to share information with me. I am curious to know if anyone has heard of any current studies going on that we could possibly be involved ...
- By Ann8 · January 10, 2007
- 15 replies
- My neurologist has suggested I start using BiPap since I have had a slight decrease in my ability for intake of air. I would appreciate any comments pro or con regarding experiences with BiPap. God Bless ...
- By Rosella · December 19, 2006
- 1 reply
- Hi, Recently my husband cannot sleep. He blames this on pain in the joints of his knees and ankles. He does not have the ability to move these joints on his own. We've been trying pillows, and my moving ...
- By pam_ogella · November 25, 2006
- 5 replies
- My mom has been experiencing muscle loss since 2002. Currently she has the use of only her index and thumb on her right hand and no use of her left hand. She has also experienced upper torso muscle loss ...
