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Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

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Children and families

Those in the ALS community know first hand that ALS is a family disease that impacts the person fighting the disease as well as their loved ones and friends. Join this discussion group to share your family's experiences and find support from others whose families have been impacted by this disease.

Depression/anxiety/winter blahs'

By BarbH · New reply May 15, 2008
2 replies
One never really knows what is going through another person's mind. Yesterday was my husband's 45th birthday. That is amazing for her was diagnosised with ALS 14 years ago. He has done well, although ...

I Don't Understand...A Rant

By rodger · New reply March 24, 2008
5 replies
We spent the better part of five hours in the emergency room overnight Saturday into Sunday. Not sure of the cause but inability to urinate was the symptom and emergency catheterization was the result ...

Banding Together for ALS

By Tandamay · Posted March 16, 2008
0 replies
My name is Linda Gibson – I am caregiver to my daughter, Marcie who has ALS – Lou Gehrig’s disease. A group of CALS (caregivers of people with ALS) and PALS (people with ALS) have decided we are tired ...

anger, sorrow over being a sibling caregiver

By RochesterBarb · New reply March 12, 2008
17 replies
I'm wondering if there is anyone out there in the same or similar situation as I. My sister (and we were really not very close growing up, as she is 10 years older than I) is in end-stage, and I feel ...

ALS TDI

By gulfportgal · Posted March 8, 2008
0 replies
Here is a bit of information about ALS TDI: http://gulfportgalals.blogspot.com/2008/ 03/what-is-als-tdi.html Pat Harbachuk (CALS, sister) to Ruth Rogers (PALS, 5/15/47); Limb Onset Sx 8/11/04; Mis-Dx ...

Informal Survey of ALS vs. Occupations

By gulfportgal · New reply March 8, 2008
2 replies
I have posted an informal survey of ALS versus different types of occupations/occupational exposure. If anyone would be interested in participating, it is a short 7 questions, and is totally anonymous ...

looking for Lynn - mom to Alex age 17 with ALS

By Tandamay · Posted March 6, 2008
0 replies
Lynn - maybe you will see this befoer you see the other message I just sent This board is the only way I know how to contact you I would really like to "talk" to you - we walk in the "same shoes" please ...

My brother of 12 plus years just passed.

By Smilef · Posted January 28, 2008
0 replies
Hello, my name is Marcy. I have a brother by the name of Sam Ward, that just passed away Jan 08 2008 from this terrible disease ALS. It really stinks that we are no farther ahead than we were in the 40:s ...

flat and ridged nails

By joe · New reply January 16, 2008
1 reply
I know that some one in this room or one of the chat rooms that I go into asked about ridged finger nails, they even included a photo of one of their nails. Does any one have a similar problem. I know ...

Husband with ALS

By cjerica · New reply November 12, 2007
11 replies
My husband has decided against feeding tube. At this time, I am having such a hard time time having him drink 1 or 2 insures a day. This is breaking my heart watching him go down hill daily. He was diagnosed ...

Oprah Winfrey Show Topic Suggestion - ALS Awarenes

By LeeDX · New reply October 30, 2007
2 replies
On the 23Oct07, the Dr. Phil show hinted of a show about an author who wrote about a friend who had ALS, as it turned out the show was more about bad marriages than anykind of ALS Awareness, about 5-8 ...

nursing homes

By Barry2 · New reply October 20, 2007
1 reply
I am looking for information as to peoples experiences with an ALS patient in a nursing home. I would like to hear comments good and bad.Thanks ...

'Hard Times' by Shiela Tarter

By LeeDX · New reply October 16, 2007
2 replies
PALS we have a member amongst us, (ShielaT) who's authored an interesting book about her early years growing up as a daughter of a coal miner and the struggle when diagnosed with Lou Gehrig's disease ...

Mouth Pain

By BarbH · New reply October 15, 2007
10 replies
Can anyone tell me if you or your loved one that has the diagnosis of ALS ever experiences mouth pain? What I mean by mouth pain is, my husband has had ALS for 14 years and for the last several months ...

Traveling with a PALS

By lyric2002 · New reply October 2, 2007
3 replies
My dad was diagnosed with ALS in 1998. As we come to the 10 year mark we are blessed to still have him with us. The disease has effected his speech, movement and his eating abilities are deteriorating ...

Helen

By SheilaT · New reply August 27, 2007
3 replies
I just wanted to let you all know that Helen passed away today. Her daughter emailed me with the news. She is, as her daughter said, "Free of the disease now." We lost a beautiful person and a good friend ...

ABC Nightline - Wednesday, August 22

By rknt50c · New reply August 22, 2007
1 reply
ALS segment expected! http://www.askaboutaimee.com ...

Is there Financial Support Available??

By sukisas75 · New reply May 9, 2007
6 replies
I am at a loss. I'm doing everything that I can to help my mother. She has progressed now to a point where she can no longer pull herself up to move from a bed/chair to her wheelchair. I am the only one ...

Tracheostomy ????

By Joyce6 · New reply May 1, 2007
12 replies
I would like more information on making a decision to have a tracheostomy when you have Progressive Bulbar Palsy ALS. How long can a person with bulbar ALS live on tracheostomy? What will be the quality ...

4 things about me

By Chris8 · New reply April 5, 2007
1 reply
Four Things About Me Four jobs I have had in my life: 1. Oil field worker 2. School Teacher 3. Advertising Salesman 4. Business Owner Four movies I would watch over and over: 1. xx 2. xx 3. xx 4. xx Four ...