Those in the ALS community know first hand that ALS is a family disease that impacts the person fighting the disease as well as their loved ones and friends. Join this discussion group to share your family's experiences and find support from others whose families have been impacted by this disease.
- By lauralee · June 30, 2008
- 5 replies
- I am new to posting on this board but I do read, but not all the time.....maybe this is OLD info so please forgive me.....has anyone heard anything about Chronic Lyme Disease?.....I read somewhere that ...
- By lamere53 · May 23, 2008
- 19 replies
- I'm worried about what lies ahead...my husband has been diagnosed with ALS. It started with his speech. We are waiting for the lithium trials to start. Any advice ...
- By Tandamay · March 16, 2008
- 0 replies
- My name is Linda Gibson – I am caregiver to my daughter, Marcie who has ALS – Lou Gehrig’s disease. A group of CALS (caregivers of people with ALS) and PALS (people with ALS) have decided we are tired ...
- By gulfportgal · March 8, 2008
- 0 replies
- Here is a bit of information about ALS TDI: http://gulfportgalals.blogspot.com/2008/ 03/what-is-als-tdi.html Pat Harbachuk (CALS, sister) to Ruth Rogers (PALS, 5/15/47); Limb Onset Sx 8/11/04; Mis-Dx ...
- By gulfportgal · March 6, 2008
- 2 replies
- I have posted an informal survey of ALS versus different types of occupations/occupational exposure. If anyone would be interested in participating, it is a short 7 questions, and is totally anonymous ...
- By Tandamay · March 6, 2008
- 0 replies
- Lynn - maybe you will see this befoer you see the other message I just sent This board is the only way I know how to contact you I would really like to "talk" to you - we walk in the "same shoes" please ...
- By BarbH · March 5, 2008
- 2 replies
- One never really knows what is going through another person's mind. Yesterday was my husband's 45th birthday. That is amazing for her was diagnosised with ALS 14 years ago. He has done well, although ...
- By RochesterBarb · February 27, 2008
- 17 replies
- I'm wondering if there is anyone out there in the same or similar situation as I. My sister (and we were really not very close growing up, as she is 10 years older than I) is in end-stage, and I feel ...
- By Crescent · January 30, 2008
- 7 replies
- I am researching power chairs and am interested in make, models and functions that others have with their chairs. I will need one that can tilt and recline and would like the elevation feature as well ...
- By Smilef · January 28, 2008
- 0 replies
- Hello, my name is Marcy. I have a brother by the name of Sam Ward, that just passed away Jan 08 2008 from this terrible disease ALS. It really stinks that we are no farther ahead than we were in the 40:s ...
- By joe · January 13, 2008
- 1 reply
- I know that some one in this room or one of the chat rooms that I go into asked about ridged finger nails, they even included a photo of one of their nails. Does any one have a similar problem. I know ...
- By cjerica · November 7, 2007
- 11 replies
- My husband has decided against feeding tube. At this time, I am having such a hard time time having him drink 1 or 2 insures a day. This is breaking my heart watching him go down hill daily. He was diagnosed ...
- By LeeDX · October 29, 2007
- 2 replies
- On the 23Oct07, the Dr. Phil show hinted of a show about an author who wrote about a friend who had ALS, as it turned out the show was more about bad marriages than anykind of ALS Awareness, about 5-8 ...
- By LeeDX · October 14, 2007
- 2 replies
- PALS we have a member amongst us, (ShielaT) who's authored an interesting book about her early years growing up as a daughter of a coal miner and the struggle when diagnosed with Lou Gehrig's disease ...
- By BarbH · October 11, 2007
- 10 replies
- Can anyone tell me if you or your loved one that has the diagnosis of ALS ever experiences mouth pain? What I mean by mouth pain is, my husband has had ALS for 14 years and for the last several months ...
- By lyric2002 · September 29, 2007
- 3 replies
- My dad was diagnosed with ALS in 1998. As we come to the 10 year mark we are blessed to still have him with us. The disease has effected his speech, movement and his eating abilities are deteriorating ...
- By rknt50c · August 21, 2007
- 1 reply
- ALS segment expected! http://www.askaboutaimee.com ...
- By Barry2 · August 17, 2007
- 2 replies
- HI, Enclosed is a press release for all of you to review and comment on. Barry http://www.thejewishadvocate.com/this_we eks_issue/news/?content_id=3504 ...
- By Barry2 · August 2, 2007
- 1 reply
- I am looking for information as to peoples experiences with an ALS patient in a nursing home. I would like to hear comments good and bad.Thanks ...
- By Barry2 · July 12, 2007
- 11 replies
- If a residence for individuals with ALS were to be built what do you think it would have to look and feel like to make it appealing to an ALS resident. Let's assume it would be a 10 private bed room house ...
