Discussion topics

National ALS Advocacy Day

Join this discussion to learn more about ALSA's annual National ALS Advocacy Day and Public Policy Conference and to share your Advocacy Day experiences with the ALS community. The discussion group also is a great way for Advocacy Day attendees to stay in contact with each other.

ALS Registry Act

Leon
  • By Leon · September 23, 2008
  • 1 reply
  • I recall half-time with my enraged football coach. He said, you men own this game even if you're losing by 21 points. Like the ALS Registry Act S.1382 we may be behind in the score but this match-up is ...

All 68 discussions...

Familial ALS

Discussion and support for people whose lives have been touched by familial ALS. Join the discussion to reconnect with friends and acquaintances from across the country, meet new people and find support from others who share the common bond of familial ALS.

Hello, I am new here, Please help me feel comfortable about opening up

Ladybug4869
  • By Ladybug4869 · Yesterday at 10:26 am
  • 1 reply
  • My name is Melissa I just recently started looking into projects that might can help my current family. My family looks something like a lot of yours. FALS A4V Sod1 mutation. There have been 7 members ...

All 8 discussions...

Medicare prescription drug benefit

On January 1, 2006 millions of Americans, including people with ALS, began to enroll in the new Medicare prescription drug benefit, the most significant change to Medicare in the program's history. For the first time, people with ALS now have access to Medicare coverage for Rilutek and other vital prescription drugs. This discussion topic is intended to provide the ALS community a forum to discuss the new Medicare prescription drug benefit, including what's working and what's not working and to share experiences - both good and bad - with the new prescription drug benefit.

Alternative Treatments

WayneLampe
  • By WayneLampe · September 15, 2008
  • 10 replies
  • I have tried many. I e-maile this DR Strande in CA He called me and offerd hope of taking natrual medicinces. I have been down that road once. Has anyone heard good or bad. Simply Healing Clinic Rockfield ...

All 5 discussions...

Children and families

Those in the ALS community know first hand that ALS is a family disease that impacts the person fighting the disease as well as their loved ones and friends. Join this discussion group to share your family's experiences and find support from others whose families have been impacted by this disease.

Speech Generating Devices

klpeterson1
  • By klpeterson1 · Yesterday at 4:58 am
  • 8 replies
  • I am a Speech Pathologist and am looking for some advice from "those who know". I have a patient who has been diagnosed with ALS. I am in the process of deciding which communication device to pursue for ...

All 50 discussions...

ALS and the military

Studies have shown that those who have served in the military are at a greater risk of ALS than those with no history of military service. This discussion topic provides the ALS community a forum to share their thoughts about the connection between ALS and military service. An excellent discussion topic for veterans and non-veterans alike.

ALS--A PRESUMPTIVE DISEASE FOR-ALL-VETERANS

timecard
  • By timecard · September 24, 2008
  • 7 replies
  • HAS ANYBODY HEARD ANY MORE ABOUT THE LEGISLATION THAT VA SECRETARY-JAMES PEARSE-SAID WOULD BE EFFECTIVE AUG. 1-TO MAKE -ALS -A PRESUMPTIVE DISEASE FOR ALL VETS. OUR VA OFFICE HERE IS MS. TOLD ME THEY ...

All 9 discussions...

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