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Welcome to Inspire!
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New discussions
Voice activated speakerphone
- By jicaballero · Posted November 20, 2009
- In Familial ALS · 2 replies
- Hi, Not sure if you are passing throughout the same thing as me, but finding specialized equipment for an ALS patient is not that easy. If you know any good source please reply. Back to the main question ...
NEED SOME HELP
- By jeremyswafford · Posted November 19, 2009
- In ALS and the military · 3 replies
- Well im new to this... First and formost. But im a military veteran of OIF 1,2,3. I suffered a class 3 tear of the ACL out there and it still hurts till this day I went and got treatment at my local va ...
The Pain!
- By snowball123 · Posted November 12, 2009
- In Familial ALS · 2 replies
- for about a year and a half i have been having pain in my lower back, kidney area, i have been to doctors and have had every scan and test done. they gave me an antibiotic, after about 3 months the pain ...
Last year's IPLEX demonstration
- By Eddiespaza · Posted November 7, 2009
- In National ALS Advocacy Day · 1 reply
- Dear Brothers and Sisters, Until our (Team IPLEX's) very noble action/demonstration last year (November 11 Veterans Day 2008) all previous attempts to procure IPLEX had failed. Despite continuous contact ...
ALS Support Groups
- By mike405 · Posted November 5, 2009
- In Children and families · 0 replies
- If available in your nearby area I would encourage anyone to attend ALS support group meetings. In mine, the meetings are held at the hospital once a month and I cannot express in words how appreciative ...
VA ALS Benefit Claim
- By mike405 · Posted October 16, 2009
- In ALS and the military · 11 replies
- This may be helpful if you're a vet filing for VA ALS benefits: As a recently diagnosed ALS patient quite by accident I discovered the Paralyzed Veterens Of America (PVA) will gladly assist in filling ...
Special Coat Rack
- By LAW · Posted October 12, 2009
- In Familial ALS · 2 replies
- Does anyone know of a product that can help with someone that has a hard time raising their arms to get a coat on? We think it would need to be something that you can hang the coat down low and then raise ...
Unusual Situation friend with ALS
- By TommysSuzie · Posted October 11, 2009
- In Children and families · 3 replies
- I have a close, close friend with ALS how can I help him? I cannot be part of his care and even get information about how he is doing. I feel like I have lost a part of my heart not knowing how he is ...
Basset Hound aims to raise half a million for ALS
- By SusanH · Posted September 20, 2009
- In National ALS Advocacy Day · 0 replies
- Jack Hills, Basset Hound from Norman OK is entered in the cutest dog in American contest. His goal is to WIN and donate $500,000.00 towards ALS research. It is a 12 week contest and the dog with the most ...
Widow Widower Info - Time is of the essence!
- By phlesq · Posted September 11, 2009
- In ALS and the military · 2 replies
- http://www.alsa.org/policy/article.cfm?i d=1506 ...
Fee-basis Bowel and Bladder Care for Spinal Cord Injured Veterans
- By boblandstar · Posted August 26, 2009
- In ALS and the military · 0 replies
- veterans Fee-basis Bowel and Bladder Care for Spinal Cord Injured Veterans In certain circumstances the VA Fee-basis office will pay for a limited amount of bowel and bladder care for spinal cord injured ...
ALS and other things we have in common
- By managerie99 · Posted August 25, 2009
- In ALS and the military · 4 replies
- My husband is in the early stages with a dx of ALS for 2 years. He is being turned down yet for VA benefits and has 10% for his type II diabetes only. He is a navy vet..served 2 tours in Vietnam. My son ...
Wheelchairs
- By jaemacdatp · Posted August 16, 2009
- In Children and families · 2 replies
- I am an ATP (Assistive Technolgy Professional) and have a best friend diagnosed with ALS. I provide wheelchairs for those with ALS and have noted a great deal of misinformation and questions regarding ...
IPLEX
- By dustycat · Posted July 30, 2009
- In Familial ALS · 12 replies
- I don’t know if Familia ALS really applies to what I have to say, but the other topics were not a fit at all. I am new to this website and to the ALS community. I am requesting help from anyone who is ...
wish granting
- By chick6666 · Posted July 26, 2009
- In Children and families · 6 replies
- Recently i was diagnosed with depression and I was wondering if there is any wish granting or similar organizations that would be willing to grant my wish. My wish is to meet the Princes of Wales. I don't ...
I need some advice, please!
- By juniette · Posted July 8, 2009
- In Familial ALS · 10 replies
- My brother was diagnosed with ALS November 2008; he lives in El Paso and I live in Dallas. I am torn, I don't know if I should move. In a nutshell - I want to be there for him, but I am a single parent ...
Help with Permobil Cx00 series power wheelchair
- By thackerk · Posted July 5, 2009
- In Children and families · 7 replies
- We are searching for a power wheelchair for my father who has ALS. In particular, we are interested in the Permobil C350/400/500 and hope there is someone out there can has a similar wheelchair that can ...
iplex
- By kmsr · Posted July 3, 2009
- In Children and families · 2 replies
- Does anyone know how to get iplex in the US? If not, how would one get enrolled in Italy? My father's disease is progressing rapidly and I would really like to give iplex a try. The neurologists I have ...
STATINS AND ALS-LIKE SYNDROME
- By moaningminnie · Posted June 29, 2009
- In National ALS Advocacy Day · 1 reply
- When researching information on peripheral neuropathy I found this information: “For susceptible individuals, the use of a statin drug can interfere with proper functioning of peripheral nerves. Researchers ...
BIG FAT LOVE - My Friend Frank Teixeira
- By AnMre · Posted June 19, 2009
- In Children and families · 0 replies
- My schoolmate, Frank, was diagnosed with ALS a few years back. Before the diagnosis, he was a lifelong surfer and enjoyed riding motorcycles. He worked as a prison guard down in San Diego. At one point ...
