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New discussions
Last year's IPLEX demonstration
- By Eddiespaza · Posted yesterday at 1:42 pm
- In National ALS Advocacy Day · 0 replies
- Dear Brothers and Sisters, Until our (Team IPLEX's) very noble action/demonstration last year (November 11 Veterans Day 2008) all previous attempts to procure IPLEX had failed. Despite continuous contact ...
ALS Support Groups
- By mike405 · Posted November 5, 2009
- In Children and families · 0 replies
- If available in your nearby area I would encourage anyone to attend ALS support group meetings. In mine, the meetings are held at the hospital once a month and I cannot express in words how appreciative ...
VA ALS Benefit Claim
- By mike405 · Posted October 16, 2009
- In ALS and the military · 5 replies
- This may be helpful if you're a vet filing for VA ALS benefits: As a recently diagnosed ALS patient quite by accident I discovered the Paralyzed Veterens Of America (PVA) will gladly assist in filling ...
Special Coat Rack
- By LAW · Posted October 12, 2009
- In Familial ALS · 2 replies
- Does anyone know of a product that can help with someone that has a hard time raising their arms to get a coat on? We think it would need to be something that you can hang the coat down low and then raise ...
Unusual Situation friend with ALS
- By TommysSuzie · Posted October 11, 2009
- In Children and families · 3 replies
- I have a close, close friend with ALS how can I help him? I cannot be part of his care and even get information about how he is doing. I feel like I have lost a part of my heart not knowing how he is ...
Basset Hound aims to raise half a million for ALS
- By SusanH · Posted September 20, 2009
- In National ALS Advocacy Day · 0 replies
- Jack Hills, Basset Hound from Norman OK is entered in the cutest dog in American contest. His goal is to WIN and donate $500,000.00 towards ALS research. It is a 12 week contest and the dog with the most ...
Widow Widower Info - Time is of the essence!
- By phlesq · Posted September 11, 2009
- In ALS and the military · 2 replies
- http://www.alsa.org/policy/article.cfm?i d=1506 ...
Fee-basis Bowel and Bladder Care for Spinal Cord Injured Veterans
- By boblandstar · Posted August 26, 2009
- In ALS and the military · 0 replies
- veterans Fee-basis Bowel and Bladder Care for Spinal Cord Injured Veterans In certain circumstances the VA Fee-basis office will pay for a limited amount of bowel and bladder care for spinal cord injured ...
ALS and other things we have in common
- By managerie99 · Posted August 25, 2009
- In ALS and the military · 4 replies
- My husband is in the early stages with a dx of ALS for 2 years. He is being turned down yet for VA benefits and has 10% for his type II diabetes only. He is a navy vet..served 2 tours in Vietnam. My son ...
Wheelchairs
- By jaemacdatp · Posted August 16, 2009
- In Children and families · 2 replies
- I am an ATP (Assistive Technolgy Professional) and have a best friend diagnosed with ALS. I provide wheelchairs for those with ALS and have noted a great deal of misinformation and questions regarding ...
IPLEX
- By dustycat · Posted July 30, 2009
- In Familial ALS · 12 replies
- I don’t know if Familia ALS really applies to what I have to say, but the other topics were not a fit at all. I am new to this website and to the ALS community. I am requesting help from anyone who is ...
wish granting
- By chick6666 · Posted July 26, 2009
- In Children and families · 6 replies
- Recently i was diagnosed with depression and I was wondering if there is any wish granting or similar organizations that would be willing to grant my wish. My wish is to meet the Princes of Wales. I don't ...
I need some advice, please!
- By juniette · Posted July 8, 2009
- In Familial ALS · 10 replies
- My brother was diagnosed with ALS November 2008; he lives in El Paso and I live in Dallas. I am torn, I don't know if I should move. In a nutshell - I want to be there for him, but I am a single parent ...
Help with Permobil Cx00 series power wheelchair
- By thackerk · Posted July 5, 2009
- In Children and families · 7 replies
- We are searching for a power wheelchair for my father who has ALS. In particular, we are interested in the Permobil C350/400/500 and hope there is someone out there can has a similar wheelchair that can ...
iplex
- By kmsr · Posted July 3, 2009
- In Children and families · 2 replies
- Does anyone know how to get iplex in the US? If not, how would one get enrolled in Italy? My father's disease is progressing rapidly and I would really like to give iplex a try. The neurologists I have ...
STATINS AND ALS-LIKE SYNDROME
- By moaningminnie · Posted June 29, 2009
- In National ALS Advocacy Day · 1 reply
- When researching information on peripheral neuropathy I found this information: “For susceptible individuals, the use of a statin drug can interfere with proper functioning of peripheral nerves. Researchers ...
BIG FAT LOVE - My Friend Frank Teixeira
- By AnMre · Posted June 19, 2009
- In Children and families · 0 replies
- My schoolmate, Frank, was diagnosed with ALS a few years back. Before the diagnosis, he was a lifelong surfer and enjoyed riding motorcycles. He worked as a prison guard down in San Diego. At one point ...
Our Journey of Nineteen Month's in Hell with Lou Gehrig's Disease
- By CharlesHaleSrWife · Posted June 14, 2009
- In Children and families · 14 replies
- Hello to all, I lost my Husband of 25 yrs to A.LS. 7yrs ago He was 42 and it took him in only 19 month's. I saw thing's that I wish I had not seen I stopped being a house wife and began being a caretaker.this ...
Spiritual Encouragement
- By WayneLampe · Posted June 1, 2009
- In Familial ALS · 0 replies
- Hello, Some of you may be familuar with a weeb page Oneplace.com. I invite you to visit as I play a recording from Dec 2006. I disscuss being diagnosed with ALS and depending on Jesuss Christ http://www.oneplace.com/ministries/worsh ...
What are the odds that I will inherit ALS from my father?
- By paulandpaul · Posted May 25, 2009
- In Familial ALS · 8 replies
- My father is 47 and has ALS. I was really sad when the doctor told me this. And I did some research online and found that ALS might be hereditary. Will I get/inherit this disease? Is the chance high ...
