Hello, My name is Donna and my daughter Elizabeth(Annie)Capehart .She began showing symptoms of this desease at 16 and was diagnose after a long hard year of testing and uncertainty,the diagnosis came ...
Hello ALS Community, My name is Amy and I am the daughter of an ALS patient, John Bork. Living with ALS has been a struggle for everyone touched by the disease including my 3 sisters, brother, mom, and ...
I am looking for other families with Familial ALS who might be able to share information with me. I am curious to know if anyone has heard of any current studies going on that we could possibly be involved ...
hi to all, i was wondering if any one out there has had to deal with a family member who stubbornly says your problem is only psychological.i do,my eldest sister says this and has convinced her children ...
We are gearing up for our Long Island Walk on September 27,2008. If anyone wants to join us please go to the website. Or if you just want to donate, please do so as well ...
I've recently been diagnosed with A.L.S. and would like to know if other people experience sensory manifestations. I have a numb feeling in 3 of my toes and across the top of one foot, and get burning ...
I lost my Aunt,47 ,on June 8th. I lost her physical being but have gained an Angel. I was a caregiver and AM a friend to anyone,afflicted by this horrible disease. Boh the diagnosed and their families ...
I just want to say I'm sorry.Not that I feel responsible for this disease,but I understand anyone's pain.Both the diagnosed and the family members. All suffer.I am her e to talk to anyone who wants to ...
When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...
My mom has been diagnosed with Bulbar ALS. She is elderly and I guess I thought this was something that occurred earlier in life. Any one out there who has a parent diagnosed late in life ...
We are a family of four who live in SOUTHERN New Jersey near Philadelphia. Already familiar w/the lithium results in the Italian trials, I am a recently-diagnosed male ALS patient who is DESPERATELY trying ...
Well...I have been diagnosed over a month... I still slur my speech..(getting worse) and have problems eating and swallowing... (getting worse). I have been to a nutritionist...I did tests for him that ...
I love to read, so this weekend I picked up pleasure books from the library by two of my favorite authors to read at the river and was just a little disappointed in both-Dean Koontz' The Darkest Evening ...
hi to all :) well....it's been a while-naughty me...;) we'll be beginning "project elevator" in a few weeks which will make life much easier,big time and will facilitate getting out with greater ease,and ...
I have seen pictures of the past years, but I have not found many pictures of the 2008 National Advocacy Day in Washington. Does anyone know where these can be located or when they will be placed on the ...
Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...
Hi my Name is Donna Capehart,as you probably saw i have a blog named My daughter was diagnosed at 17yrs old, i'm curious as to see how many young people have been diagnosed or if someone knows someone ...
Hello everyone. I'm writing to let you know about some long overdue improvements that we'll be making to this site's messaging system later this week. The messages section is the most frequently visited ...
