My mom has been diagnosed with Bulbar ALS. She is elderly and I guess I thought this was something that occurred earlier in life. Any one out there who has a parent diagnosed late in life ...
I've recently been diagnosed with A.L.S. and would like to know if other people experience sensory manifestations. I have a numb feeling in 3 of my toes and across the top of one foot, and get burning ...
hi to all :) well....it's been a while-naughty me...;) we'll be beginning "project elevator" in a few weeks which will make life much easier,big time and will facilitate getting out with greater ease,and ...
Well...I have been diagnosed over a month... I still slur my speech..(getting worse) and have problems eating and swallowing... (getting worse). I have been to a nutritionist...I did tests for him that ...
I have seen pictures of the past years, but I have not found many pictures of the 2008 National Advocacy Day in Washington. Does anyone know where these can be located or when they will be placed on the ...
Please go to http://capwiz.com/alsa/home/ Under Find Your Officials enter your zip code and click Go. Ensure that Federal is selected and click your Representative. Click the link next to E-mail. As a ...
I love to read, so this weekend I picked up pleasure books from the library by two of my favorite authors to read at the river and was just a little disappointed in both-Dean Koontz' The Darkest Evening ...
I am new to posting on this board but I do read, but not all the time.....maybe this is OLD info so please forgive me.....has anyone heard anything about Chronic Lyme Disease?.....I read somewhere that ...
I am pleased to announce that we have updated Inspire to support video. You can now share a video of yourself, videos that you find inspirational or informative, and more. I've included one of myself ...
Anyone who struggles with insurance issues or finding 'help' for this disease difficult. I highly recommend getting in touch with a MDA/ALS Chapter in you area or region. I Registered with a Regional ...
After nearly 1 full year of nonstop surfing on the Internet for answers & hope, I've seen a lot of encouraging scientific breakthroughs, yet none have even come close to delivering a basic and or effective ...
After nearly 1 full year of surfing on the Internet for answers & hope, I've seen a lot of encouraging scientific breakthroughs, yet none have even come close to delivering a basic and or effective treatment ...
Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...
I was just diagnosed with ALS on Wednesday June 11, 2008. I had to tell my sons on Father's Day, which was not fun!! My wife has been tremendous...so protective , sometimes too protective. I do not know ...
We are a family of four who live in SOUTHERN New Jersey near Philadelphia. Already familiar w/the lithium results in the Italian trials, I am a recently-diagnosed male ALS patient who is DESPERATELY trying ...
Greetings from TeamInspire! I'm your friendly neighborhood designer, here to tell you about some new features. You might notice that today we revamped your member homepage - https://www.inspire.com/member-home.pl ...
Hello everyone. Just a quick note to let you know that the improvements to the message system that I wrote about previously are complete. You can check them out now. You'll notice that we've grouped your ...
We are excited to announce that Jeff Faull, a veteran with ALS from our Greater Philadelphia Chapter and the Vice-Chair of The ALS Association's VA Issue Team, is scheduled to testify before the House ...
My husband was diagnosed with ALS in 2006. His progression is slow. We recently moved and had to deal with finding new doctor. My fustration is dealing with idiots because he can still move his arms and ...
** Updated ** Due to power outages caused by storms in the Washington, DC area, we need to postpone this maintenance until Tuesday June 10th, from 5 am to 7 am. Thanks for your patience. ** Updated ...
