Active journals

Why are we here?

Brian
  • By Brian · Yesterday at 4:23 am
  • 94 replies
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

Hello

TheBorkFamily
  • By TheBorkFamily · September 3, 2008
  • 12 replies
  • Hello ALS Community, My name is Amy and I am the daughter of an ALS patient, John Bork. Living with ALS has been a struggle for everyone touched by the disease including my 3 sisters, brother, mom, and ...

Privacy and control

Brian
  • By Brian · September 1, 2008
  • 48 replies
  • At Inspire, we think about privacy all the time. Virtually every web site has a privacy policy; you can read ours here: http://www.inspire.com/about/privacy/. But simply following the letter of a privacy ...

Welcome!

Brian
  • By Brian · August 31, 2008
  • 20 replies
  • I am pleased to present Inspire 2.0 -- the result of many months of fun and hard work. We have made numerous improvements to your community, the vast majority of which are ideas that came from you! We ...

Over 1 month since Diagnosis

Chuck1106
  • By Chuck1106 · August 23, 2008
  • 9 replies
  • Well...I have been diagnosed over a month... I still slur my speech..(getting worse) and have problems eating and swallowing... (getting worse). I have been to a nutritionist...I did tests for him that ...

Info

fraulibby
  • By fraulibby · August 11, 2008
  • 3 replies
  • My mom has been diagnosed with Bulbar ALS. She is elderly and I guess I thought this was something that occurred earlier in life. Any one out there who has a parent diagnosed late in life ...

believing

greensmile
  • By greensmile · August 10, 2008
  • 15 replies
  • hi to all, i was wondering if any one out there has had to deal with a family member who stubbornly says your problem is only psychological.i do,my eldest sister says this and has convinced her children ...

changes and news

greensmile
  • By greensmile · August 10, 2008
  • 2 replies
  • hi to all :) well....it's been a while-naughty me...;) we'll be beginning "project elevator" in a few weeks which will make life much easier,big time and will facilitate getting out with greater ease,and ...

Daughter diagnosed at 17

Donna7
  • By Donna7 · August 7, 2008
  • 6 replies
  • Hello, My name is Donna and my daughter Elizabeth(Annie)Capehart .She began showing symptoms of this desease at 16 and was diagnose after a long hard year of testing and uncertainty,the diagnosis came ...

Long Island Walk 2008

alsgny
  • By alsgny · August 5, 2008
  • 0 replies
  • We are gearing up for our Long Island Walk on September 27,2008. If anyone wants to join us please go to the website. Or if you just want to donate, please do so as well ...

Explaining to kids

WayneLampe
  • By WayneLampe · August 3, 2008
  • 6 replies
  • Have you been able to explain things ...

Living the life in peace...

metaroc
  • By metaroc · August 2, 2008
  • 1 reply
  • Thank you God for giving me peace... I am so grateful for relative good health... I am glad to be alive... I feel good and I'm happy ...

I'M SORRY

missinmyangel
  • By missinmyangel · July 31, 2008
  • 0 replies
  • I just want to say I'm sorry.Not that I feel responsible for this disease,but I understand anyone's pain.Both the diagnosed and the family members. All suffer.I am her e to talk to anyone who wants to ...

Reading binge.

lynalee
  • By lynalee · July 25, 2008
  • 4 replies
  • I love to read, so this weekend I picked up pleasure books from the library by two of my favorite authors to read at the river and was just a little disappointed in both-Dean Koontz' The Darkest Evening ...

Support your group and raise awareness with badges

Walter
  • By Walter · July 16, 2008
  • 30 replies
  • Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...

Does anyone know of any young people diagnosed with ALS

Donna7
  • By Donna7 · July 13, 2008
  • 9 replies
  • Hi my Name is Donna Capehart,as you probably saw i have a blog named My daughter was diagnosed at 17yrs old, i'm curious as to see how many young people have been diagnosed or if someone knows someone ...

Upcoming improvements to the messaging system

Walter
  • By Walter · July 7, 2008
  • 23 replies
  • Hello everyone. I'm writing to let you know about some long overdue improvements that we'll be making to this site's messaging system later this week. The messages section is the most frequently visited ...

New feature: video!

Brian
  • By Brian · July 6, 2008
  • 10 replies
  • I am pleased to announce that we have updated Inspire to support video. You can now share a video of yourself, videos that you find inspirational or informative, and more. I've included one of myself ...

I Just Found Out

Chuck1106
  • By Chuck1106 · June 25, 2008
  • 16 replies
  • I was just diagnosed with ALS on Wednesday June 11, 2008. I had to tell my sons on Father's Day, which was not fun!! My wife has been tremendous...so protective , sometimes too protective. I do not know ...

New feature - profile completeness gauge

Tasha
  • By Tasha · June 25, 2008
  • 4 replies
  • Greetings from TeamInspire! I'm your friendly neighborhood designer, here to tell you about some new features. You might notice that today we revamped your member homepage - https://www.inspire.com/member-home.pl ...

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The ALS Advocacy Support Community connects patients, families, friends and caregivers for support and inspiration. The ALS Advocacy Support Community is sponsored by The ALS Association in partnership with Inspire.