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Journals

statins and bulpar palsy

mimi5
  • By mimi5 · Posted March 12, 2008
  • 1 reply
  • My friend has bulpar pulsy. He is also on cholesterol lowering drugs (statin). Lately there is a lot of information about statins and their connection to ALS. Has anyone who has bulpar also been on statins ...

Urge Congress to Join Our Fight for a Treatment!

AdvocacyDepartment
  • By AdvocacyDepartment · Posted March 10, 2008
  • 0 replies
  • Continue Funding for the Peer Reviewed ALS Research Program at the Department of Defense We need your help today to continue critical ALS research taking place at the Department of Defense. Please ask ...

Another Year...

donhing
  • By donhing · Posted March 9, 2008
  • 0 replies
  • A little over three years ago I was diagnosed with ALS. I spend most of my time reading the Living with ALS (on Yahoo) but it's been over a year since I have posted a Blog on this site. I maintain a Blog ...

Thank you for your response

Chrystal
  • By Chrystal · Posted March 3, 2008
  • 5 replies
  • I would like to thank everyone who has responded to my blog. Since I found this site it has been a good source of comfort to me to know that i can contact others that know how hard this is to deal with ...

New Arrival - How to Stay Ahead of the Game?

windclan
  • By windclan · Posted February 28, 2008
  • 3 replies
  • I am a new arrival to the ALS Community dating back to my diagnosis in Sept 2007. I guess I am technically still "suspected ALS" as I have only shown LMN disfunction to date with the bulbar region being ...

Missing my Father

Chrystal
  • By Chrystal · Posted February 28, 2008
  • 6 replies
  • Hello all, My father passed away three weeks ago from ALS. It was a hard road for him and he was tired towards the end and said he was ready to go. I know he is free from being locked in his body. However ...

Getting Started

GaryJensen
  • By GaryJensen · Posted January 31, 2008
  • 0 replies
  • I've made several attempts at starting a web page; now it's my turn to try my hand at a blog. I've read other peoples' blogs and found them interesting, so it's time to start my own. Once I see how this ...

Navigating Through ALS - Ventilation and Caregivers/Family

awallac1
  • By awallac1 · Posted January 30, 2008
  • 0 replies
  • Hi All, The final installment of my vent project has been posted to my blog. It addresses the issues facing caregivers and families with PALS on the vent. I really hope to hear your stories and feedback ...

Navigating Through ALS - PALS who have NOT chosen the vent

awallac1
  • By awallac1 · Posted January 29, 2008
  • 0 replies
  • Hi All, The third installment of my vent project has been posted to my blog. The first installment addressed a pantheon of things for all PALS to consider. The second addressed those PALS who have chosen ...

Navigating Through ALS - PALS who have chosen the vent

awallac1
  • By awallac1 · Posted January 25, 2008
  • 0 replies
  • Hi All, The second installment of my vent project has been posted to my other blog. While the first installment addressed a pantheon of things for all PALS to consider, my current post is targeted at ...

Hello

TheBorkFamily
  • By TheBorkFamily · Posted January 21, 2008
  • 12 replies
  • Hello ALS Community, My name is Amy and I am the daughter of an ALS patient, John Bork. Living with ALS has been a struggle for everyone touched by the disease including my 3 sisters, brother, mom, and ...

Navigating Through ALS - The Vent Decision

awallac1
  • By awallac1 · Posted January 16, 2008
  • 0 replies
  • Hi All, I have begun another series on my blog; this time it discusses the ventilator decision. I have spent considerable time thinking and researching the vent decision. The result of this work is a ...

15 years living with ALS

BarbH
  • By BarbH · Posted January 14, 2008
  • 0 replies
  • Where does one begin, Well first of all my husband was diagnosised with ALS at the age of 29, he will soon be 45, the same as I. We have two lovely daughters one is 24 and the other is 21. The youngest ...

Navigating Through ALS - Pets for PALS

awallac1
  • By awallac1 · Posted January 13, 2008
  • 0 replies
  • I've added thoughts to my (other) blog on the benefits of pets for PALS. http://navigatingthroughals.blogspot.com Please feel free to share your own thoughts/stories through the comments link (in green ...

The DNR Dilemna

awallac1
  • By awallac1 · Posted January 11, 2008
  • 2 replies
  • Do you as a PALS or CALS fully understand the complexities of a DNR? I have posted about the dilemna here: http://navigatingthroughals.blogspot.com I look forward to your comments on that page. (There ...

ALSA vs. MDA

awallac1
  • By awallac1 · Posted January 9, 2008
  • 1 reply
  • I am saddened by the seeming rivalry between the ALSA and the MDA . I've expressed my thoughts here: http://navigatingthroughals.blogspot.com and would love to start a discussion on the topic. My site ...

Navigating Through ALS - VA vs. Medicare - Completion

awallac1
  • By awallac1 · Posted January 6, 2008
  • 0 replies
  • Hi All, I've finished up my blog series on the VA versus Medicare. Parts 7,8 and 9 address minivans, hospitalization and respiratory assistance. Even if you were not formerly in the service, I am trying ...

Navigating Through ALS - VA vs. Medicare Parts 5 and 6

awallac1
  • By awallac1 · Posted January 4, 2008
  • 1 reply
  • Hi All, I've continued my blog series on the VA versus Medicare. Parts 5 and 6 address power chairs and orthotic devices. In the coming days I'll write on conversion vans, home improvements and respiratory ...

Great to be alive in 2008...

metaroc
  • By metaroc · Posted January 3, 2008
  • 1 reply
  • www.mikerayl.com I am pretty much the same one year later... i have'nt been walking because my left leg has range of motion problems ...

Navigating Through ALS - VA versus Medicare Parts 3 & 4

awallac1
  • By awallac1 · Posted January 1, 2008
  • 0 replies
  • Hi All, Parts 3 and 4 of my paper on the VA versus Medicare have been added to my blog. They address home-based care and medical specialists. In the coming days I'll write on power chairs, conversion ...

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