Journals

Info

fraulibby
  • By fraulibby · 12:21 am
  • 1 reply
  • My mom has been diagnosed with Bulbar ALS. She is elderly and I guess I thought this was something that occurred earlier in life. Any one out there who has a parent diagnosed late in life ...

changes and news

greensmile
  • By greensmile · Yesterday at 8:40 am
  • 0 replies
  • hi to all :) well....it's been a while-naughty me...;) we'll be beginning "project elevator" in a few weeks which will make life much easier,big time and will facilitate getting out with greater ease,and ...

Over 1 month since Diagnosis

Chuck1106
  • By Chuck1106 · July 22, 2008
  • 4 replies
  • Well...I have been diagnosed over a month... I still slur my speech..(getting worse) and have problems eating and swallowing... (getting worse). I have been to a nutritionist...I did tests for him that ...

Reading binge.

lynalee
  • By lynalee · July 4, 2008
  • 3 replies
  • I love to read, so this weekend I picked up pleasure books from the library by two of my favorite authors to read at the river and was just a little disappointed in both-Dean Koontz' The Darkest Evening ...

New feature: video!

Brian
  • By Brian · June 28, 2008
  • 10 replies
  • I am pleased to announce that we have updated Inspire to support video. You can now share a video of yourself, videos that you find inspirational or informative, and more. I've included one of myself ...

I believe they're ahead of the pack

Eddiespaza
  • By Eddiespaza · June 21, 2008
  • 0 replies
  • After nearly 1 full year of nonstop surfing on the Internet for answers & hope, I've seen a lot of encouraging scientific breakthroughs, yet none have even come close to delivering a basic and or effective ...

Support your group and raise awareness with badges

Walter
  • By Walter · June 20, 2008
  • 30 replies
  • Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...

I Just Found Out

Chuck1106
  • By Chuck1106 · June 17, 2008
  • 16 replies
  • I was just diagnosed with ALS on Wednesday June 11, 2008. I had to tell my sons on Father's Day, which was not fun!! My wife has been tremendous...so protective , sometimes too protective. I do not know ...

New feature - profile completeness gauge

Tasha
  • By Tasha · June 12, 2008
  • 4 replies
  • Greetings from TeamInspire! I'm your friendly neighborhood designer, here to tell you about some new features. You might notice that today we revamped your member homepage - https://www.inspire.com/member-home.pl ...

Improvements to the message system are complete

Walter
  • By Walter · June 10, 2008
  • 14 replies
  • Hello everyone. Just a quick note to let you know that the improvements to the message system that I wrote about previously are complete. You can check them out now. You'll notice that we've grouped your ...

Doctors know Best!!!!

Dee8
  • By Dee8 · June 4, 2008
  • 10 replies
  • My husband was diagnosed with ALS in 2006. His progression is slow. We recently moved and had to deal with finding new doctor. My fustration is dealing with idiots because he can still move his arms and ...

**Updated** System maintenance: Tuesday June 10th, 5 am - 7 am Eastern

Walter
  • By Walter · June 4, 2008
  • 1 reply
  • ** Updated ** Due to power outages caused by storms in the Washington, DC area, we need to postpone this maintenance until Tuesday June 10th, from 5 am to 7 am. Thanks for your patience. ** Updated ...

Upcoming improvements to the messaging system

Walter
  • By Walter · June 1, 2008
  • 23 replies
  • Hello everyone. I'm writing to let you know about some long overdue improvements that we'll be making to this site's messaging system later this week. The messages section is the most frequently visited ...

my life with ALS

ro44bo55
  • By ro44bo55 · May 28, 2008
  • 7 replies
  • now today I can no longer walk and I can't dress myself either.living with ALS sucks ...

Persistence Pays Off

flyfisher
  • By flyfisher · May 24, 2008
  • 0 replies
  • ALS New Mexico Partner now has all of our New Mexico Delegation signed on to the ALS Registry Act, when Senator Pete Domenici added his name as a Co-Sponsor. Please go to: http://nmindependent.mypublicsquare.com ...

Missing my mother

una4dable
  • By una4dable · May 24, 2008
  • 2 replies
  • Mother's Day is always hard to get through...but this year was even more difficult as my daughter graduated from high school the Sunday following Mother's Day. My mother wanted so badly to live long enough ...

Sometimes we make mistakes

Brian
  • By Brian · May 23, 2008
  • 35 replies
  • Two months ago, when we launched Inspire 2.0, we added a group called 'Team Inspire'. We did this with the best intentions: we wanted the group to be a space for new members to get oriented, ask questions ...

Service Update

Beth
  • By Beth · May 14, 2008
  • 0 replies
  • We have some security updates to apply to our servers and we're planning to install the updates on Friday morning at 7:00 AM EST. There will be a brief period of downtime for all sites (expected to be ...

pics

greensmile
  • By greensmile · May 13, 2008
  • 2 replies
  • well ,,hello to all, i've finally put a pic of me up together with my grandsmile.he loves sitting on my lap and doing bagels(doughnuts) and always holds on to my hoses.it's funny because he thinks that ...

New feature - additional reply notifications

Walter
  • By Walter · May 5, 2008
  • 19 replies
  • Hello everyone. We just added a new feature to help you follow the conversations that you are participating in. You will now get a notification whenever someone replies directly to one of your replies ...

You

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The ALS Advocacy Support Community connects patients, families, friends and caregivers for support and inspiration. The ALS Advocacy Support Community is sponsored by The ALS Association in partnership with Inspire.