Good morning to all. Since writing is my outlet, bear with me please.
As a nurse who has cared for ALS patients, I have never had to deal with the insurance side of this disease until I became a patient service coordinator. It seems that every time I get off the phone with the insurance agencies I want to scream, throw things, or see my doctor for blood pressure meds! I do not understand how people can be so unfeeling and callous when my patients NEED equipment! Not to mention this silly 5 month waiting period for SSI that I spent two hours on the phone arguing with someone on how absurd that "rule" is! I grow tired of the run around I seem to get, but that is the nature of the beast. I just would like to say for everyone out there dealing with this disease (including the caregivers) my hat is off to you for dealing with all the things that go with it. I find it sad and I am ashamed that our medical field is not more understanding and caring when it comes to helping people get things they need, having some kind of bedside manners, and basically being human.