My mother has both ALS and FTD (frontotemporal dementia). I am wondering if there are others out there that maybe experiencing these 2 diseases hand-in-hand? She was first diagnoised with FTD and 4 months later with ALS. In her case, the FTD may be a blessing in disquise, as she doesn't really realize or dwell on the changes that are happening to her body. I think if she were cognitive of what was taking place with her body she would probably hibernate. Her legs are getting weaker, which concerns me, as she is still very determined and will walk, however, she has had falls. I have suggested to her primary caregiver, her husband, that he push her in a wheelchair as much as possible and if she did try to walk he needed to assist her. Her breathing is getting more labored, she appears to be more tired. She hasn't been able to speak for close to a year now, but she will write on a whiteboard, but is usually the same thing, her wanting to come to my house. Like I said I was just putting feelers out there to see whom else my have experiences with this 2 particular diseases.
Signed - Tanya



