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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Recommended discussions
The IPLEX debacle
- By Eddiespaza · Posted February 5, 2009
- In National ALS Advocacy Day · 4 recommendations
- Dear brothers and sisters, In regard to the recent "Telephone Game" article which apparently has influenced the mighty FDA... well all I can say about yet another bogus, don't get out of line, hopeless ...
www.stealingpieces.org
- By joe_c · Posted January 7, 2009
- In National ALS Advocacy Day · 4 recommendations
- www.stealingpieces.org Powerful message ...
Iplex
- By Eddiespaza · Posted September 9, 2008
- In National ALS Advocacy Day · 4 recommendations
- September 11, 2008 DePaul University College of Law RE: URGENT APPEAL: Legal Assistance to the Disadvantaged legal aid/pro bono programs etc. Re: Class-action lawsuit Dean of the Law School ALS I am writing ...
WE NEED TO STEP UP TO THE PLATE AND WE NEED TO HIT BACK.
- By BobbyB · Posted March 18, 2008
- In National ALS Advocacy Day · 4 recommendations
- we all have faces. but all the work that has gone into the als registry and then one man puts a stop to it. WE NEED TO STEP UP TO THE PLATE AND WE NEED TO HIT BACK. we are writing letters and sending ...
ALS Advocacy News Updates
- By Leon · Posted September 5, 2008
- In National ALS Advocacy Day · 3 recommendations
- I stumbled onto this site that is scanning and posting news and informative articles that relate to ALS Advocacy. http://www.alsadvocacy.com/ For example, Jonathan Eig, author of "Luckiest Man" has an ...
VA ALS Benefit Claim
- By mike405 · Posted October 16, 2009
- In ALS and the military · 2 recommendations
- This may be helpful if you're a vet filing for VA ALS benefits: As a recently diagnosed ALS patient quite by accident I discovered the Paralyzed Veterens Of America (PVA) will gladly assist in filling ...
What am I in for?
- By lamere53 · Posted May 23, 2008
- In Children and families · 2 recommendations
- I'm worried about what lies ahead...my husband has been diagnosed with ALS. It started with his speech. We are waiting for the lithium trials to start. Any advice ...
So, you're going to write your Congressman?
- By BobbyB · Posted March 18, 2008
- In National ALS Advocacy Day · 2 recommendations
- Letters to Congress So, you're going to write your Congressman? Good idea. Make it a good letter. People who think members of Congress pay little or no attention to constituent mail, are plain wrong ...
IPLEX and the Telephone Game”: -[Response ]
- By Eddiespaza · Posted February 27, 2009
- In National ALS Advocacy Day · 1 recommendation
- Response to “IPLEX and the Telephone Game”: Conflicting Paradigms Mihaly Lenart Blaming the Victim? In their paper (1), Drs. Richard S. Bedlack, Vicenzo Silani, and Ester Cudkowicz (in the following “Au-thors ...
Team IPLEX - We Need Your Help
- By Eddiespaza · Posted February 25, 2009
- In National ALS Advocacy Day · 1 recommendation
- Dear friends, family, & supporters, I am once again, requesting help from any and all family, friends, & supporters . Please Review the above attachments we (Team IPLEX) have provided... You can... cut ...
ALS-Major League Baseball - Lou Gehrig Day
- By pjf · Posted December 31, 2008
- In National ALS Advocacy Day · 1 recommendation
- "Batting for the Cure" Newsweek, Nov. 1, 2008 advocates July 4, 2009 as Lou Gehrig Day - a FUNDRAISER for ALS. The 70th anniversary of Lou Gehrig's famous speech at Yanke Stadium. What role is ALS National ...
Petition to make July 4th National ALS Day
- By BobbyB · Posted December 8, 2008
- In National ALS Advocacy Day · 1 recommendation
- Petition to make July 4th National ALS Day http://www.petitiononline.com/122296/pet ition.html To: All Major and Minor League Baseball Franchises, US Congress, US House of Representatives On April 30th ...
Need to talk?
- By missinmyangel · Posted July 31, 2008
- In Children and families · 1 recommendation
- I lost my Aunt,47 ,on June 8th. I lost her physical being but have gained an Angel. I was a caregiver and AM a friend to anyone,afflicted by this horrible disease. Boh the diagnosed and their families ...
H.R. 5454 Advocacy
- By ZenArcher · Posted July 7, 2008
- In ALS and the military · 1 recommendation
- Please go to http://capwiz.com/alsa/home/ Under Find Your Officials enter your zip code and click Go. Ensure that Federal is selected and click your Representative. Click the link next to E-mail. As a ...
Call to Action for All Veterans with ALS
- By ZenArcher · Posted June 6, 2008
- In ALS and the military · 1 recommendation
- We are excited to announce that Jeff Faull, a veteran with ALS from our Greater Philadelphia Chapter and the Vice-Chair of The ALS Association's VA Issue Team, is scheduled to testify before the House ...
BiPap intervention
- By Ann8 · Posted January 10, 2007
- In Familial ALS · 1 recommendation
- My neurologist has suggested I start using BiPap since I have had a slight decrease in my ability for intake of air. I would appreciate any comments pro or con regarding experiences with BiPap. God Bless ...
Welcome to the ALS Registry
- By BobbyB · Posted August 16, 2006
- In National ALS Advocacy Day · 1 recommendation
- Welcome to the ALS Registry http://www.patientslikeme.com/registry There are 345 PALS in the registry from 33 countries. This is the registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ...
