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Active discussions

Last year's IPLEX demonstration

Eddiespaza
  • By Eddiespaza · Posted 1:42 pm
  • In National ALS Advocacy Day · 0 replies
  • Dear Brothers and Sisters, Until our (Team IPLEX's) very noble action/demonstration last year (November 11 Veterans Day 2008) all previous attempts to procure IPLEX had failed. Despite continuous contact ...

VA ALS Benefit Claim

mike405
  • By mike405 · New reply yesterday at 11:26 am
  • In ALS and the military · 5 replies
  • This may be helpful if you're a vet filing for VA ALS benefits: As a recently diagnosed ALS patient quite by accident I discovered the Paralyzed Veterens Of America (PVA) will gladly assist in filling ...

ALS Support Groups

mike405
  • By mike405 · Posted November 5, 2009
  • In Children and families · 0 replies
  • If available in your nearby area I would encourage anyone to attend ALS support group meetings. In mine, the meetings are held at the hospital once a month and I cannot express in words how appreciative ...

Special Coat Rack

LAW
  • By LAW · New reply October 14, 2009
  • In Familial ALS · 2 replies
  • Does anyone know of a product that can help with someone that has a hard time raising their arms to get a coat on? We think it would need to be something that you can hang the coat down low and then raise ...

Unusual Situation friend with ALS

TommysSuzie
  • By TommysSuzie · New reply October 14, 2009
  • In Children and families · 3 replies
  • I have a close, close friend with ALS how can I help him? I cannot be part of his care and even get information about how he is doing. I feel like I have lost a part of my heart not knowing how he is ...

ALS VA Disability Claims

rhondape
  • By rhondape · New reply October 5, 2009
  • In ALS and the military · 25 replies
  • Hello, I'm new here. My name is Rhonda and I'm a gulf war veteran, not having served overseas. I have 4 kids and my husband is also a veteran of the gulf war who was in Saudia Arabia. I'm 37 and was diagnosed ...

Our Journey of Nineteen Month's in Hell with Lou Gehrig's Disease

CharlesHaleSrWife
  • By CharlesHaleSrWife · New reply October 3, 2009
  • In Children and families · 14 replies
  • Hello to all, I lost my Husband of 25 yrs to A.LS. 7yrs ago He was 42 and it took him in only 19 month's. I saw thing's that I wish I had not seen I stopped being a house wife and began being a caretaker.this ...

newly diagnosed teen son with ALS

imamom
  • By imamom · New reply September 29, 2009
  • In National ALS Advocacy Day · 30 replies
  • Hi! I am the mother of a son who just turned 18 and was diagnosed with ALS 2 months ago. I would love food for thought on facing the disease at this age and stage of life. My son will be a senior in high ...

Widow Widower Info - Time is of the essence!

phlesq
  • By phlesq · New reply September 21, 2009
  • In ALS and the military · 2 replies
  • http://www.alsa.org/policy/article.cfm?i d=1506 ...

Basset Hound aims to raise half a million for ALS

SusanH
  • By SusanH · Posted September 20, 2009
  • In National ALS Advocacy Day · 0 replies
  • Jack Hills, Basset Hound from Norman OK is entered in the cutest dog in American contest. His goal is to WIN and donate $500,000.00 towards ALS research. It is a 12 week contest and the dog with the most ...

ALS and other things we have in common

managerie99
  • By managerie99 · New reply September 15, 2009
  • In ALS and the military · 4 replies
  • My husband is in the early stages with a dx of ALS for 2 years. He is being turned down yet for VA benefits and has 10% for his type II diabetes only. He is a navy vet..served 2 tours in Vietnam. My son ...

IPLEX

dustycat
  • By dustycat · New reply September 5, 2009
  • In Familial ALS · 12 replies
  • I don’t know if Familia ALS really applies to what I have to say, but the other topics were not a fit at all. I am new to this website and to the ALS community. I am requesting help from anyone who is ...

Fee-basis Bowel and Bladder Care for Spinal Cord Injured Veterans

boblandstar
  • By boblandstar · Posted August 26, 2009
  • In ALS and the military · 0 replies
  • veterans Fee-basis Bowel and Bladder Care for Spinal Cord Injured Veterans In certain circumstances the VA Fee-basis office will pay for a limited amount of bowel and bladder care for spinal cord injured ...

Help with Permobil Cx00 series power wheelchair

thackerk
  • By thackerk · New reply August 19, 2009
  • In Children and families · 7 replies
  • We are searching for a power wheelchair for my father who has ALS. In particular, we are interested in the Permobil C350/400/500 and hope there is someone out there can has a similar wheelchair that can ...

Wheelchairs

jaemacdatp
  • By jaemacdatp · New reply August 16, 2009
  • In Children and families · 2 replies
  • I am an ATP (Assistive Technolgy Professional) and have a best friend diagnosed with ALS. I provide wheelchairs for those with ALS and have noted a great deal of misinformation and questions regarding ...

What are the odds that I will inherit ALS from my father?

paulandpaul
  • By paulandpaul · New reply August 12, 2009
  • In Familial ALS · 8 replies
  • My father is 47 and has ALS. I was really sad when the doctor told me this. And I did some research online and found that ALS might be hereditary. Will I get/inherit this disease? Is the chance high ...

wish granting

chick6666
  • By chick6666 · New reply August 5, 2009
  • In Children and families · 6 replies
  • Recently i was diagnosed with depression and I was wondering if there is any wish granting or similar organizations that would be willing to grant my wish. My wish is to meet the Princes of Wales. I don't ...

Alternative Treatments

WayneLampe
  • By WayneLampe · New reply July 22, 2009
  • In Medicare prescription drug benefit · 18 replies
  • I have tried many. I e-maile this DR Strande in CA He called me and offerd hope of taking natrual medicinces. I have been down that road once. Has anyone heard good or bad. Simply Healing Clinic Rockfield ...

I need some advice, please!

juniette
  • By juniette · New reply July 14, 2009
  • In Familial ALS · 10 replies
  • My brother was diagnosed with ALS November 2008; he lives in El Paso and I live in Dallas. I am torn, I don't know if I should move. In a nutshell - I want to be there for him, but I am a single parent ...

Marriage... Yet another loss due to ALS

Eddiespaza
  • By Eddiespaza · New reply July 13, 2009
  • In National ALS Advocacy Day · 7 replies
  • My name is Eddie, I am 50 years old, I was diagnosed the 2005 I live in the Chicagoland area and own my house. I have been married for 26 years, it seems like my marriage is going to be a fatality of ...

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