I recall half-time with my enraged football coach. He said, you men own this game even if you're losing by 21 points. Like the ALS Registry Act S.1382 we may be behind in the score but this match-up is ...
I am looking for other families with Familial ALS who might be able to share information with me. I am curious to know if anyone has heard of any current studies going on that we could possibly be involved ...
We are a family of four who live in SOUTHERN New Jersey near Philadelphia. Already familiar w/the lithium results in the Italian trials, I am a recently-diagnosed male ALS patient who is DESPERATELY trying ...
HAS ANYBODY HEARD ANY MORE ABOUT THE LEGISLATION THAT VA SECRETARY-JAMES PEARSE-SAID WOULD BE EFFECTIVE AUG. 1-TO MAKE -ALS -A PRESUMPTIVE DISEASE FOR ALL VETS. OUR VA OFFICE HERE IS MS. TOLD ME THEY ...
I've recently been diagnosed with A.L.S. and would like to know if other people experience sensory manifestations. I have a numb feeling in 3 of my toes and across the top of one foot, and get burning ...
I lost my Aunt,47 ,on June 8th. I lost her physical being but have gained an Angel. I was a caregiver and AM a friend to anyone,afflicted by this horrible disease. Boh the diagnosed and their families ...
I have seen pictures of the past years, but I have not found many pictures of the 2008 National Advocacy Day in Washington. Does anyone know where these can be located or when they will be placed on the ...
Please go to http://capwiz.com/alsa/home/ Under Find Your Officials enter your zip code and click Go. Ensure that Federal is selected and click your Representative. Click the link next to E-mail. As a ...
We need to hear from PALS & CALS who have made the dx by doctors of 2 - 4 years a LIE. We need your data to share with the ALS community and ALS researchers. They need to know our numbers are growing ...
Hey Everyone! I thought it would be fun to get to know you all better - so if you want to join in, copy & paste these questions with your answers... I will do the same. Four Things About Me Four jobs ...
Hi All, I haven't written much in a while. Actually, I'm not much of a conversationalist in general terms. My wife and I have been reading everyones comments on here and other sites, as well as all I ...
HI, Enclosed is a press release for all of you to review and comment on. Barry http://www.thejewishadvocate.com/this_we eks_issue/news/?content_id=3504 ...
I am new to posting on this board but I do read, but not all the time.....maybe this is OLD info so please forgive me.....has anyone heard anything about Chronic Lyme Disease?.....I read somewhere that ...
I'm worried about what lies ahead...my husband has been diagnosed with ALS. It started with his speech. We are waiting for the lithium trials to start. Any advice ...
Anyone who struggles with insurance issues or finding 'help' for this disease difficult. I highly recommend getting in touch with a MDA/ALS Chapter in you area or region. I Registered with a Regional ...
After nearly 1 full year of surfing on the Internet for answers & hope, I've seen a lot of encouraging scientific breakthroughs, yet none have even come close to delivering a basic and or effective treatment ...
We are excited to announce that Jeff Faull, a veteran with ALS from our Greater Philadelphia Chapter and the Vice-Chair of The ALS Association's VA Issue Team, is scheduled to testify before the House ...
I have tried many. I e-maile this DR Strande in CA He called me and offerd hope of taking natrual medicinces. I have been down that road once. Has anyone heard good or bad. Simply Healing Clinic Rockfield ...
Below is a Letter that I wrote my Congressman. Veterans with ALS need your help!!!. Please write your Congressman and ask for support in cosponsoring Bill H.R.5454. Thanks Bill Motley Honorable Congressman ...
Ken Patterson reaches Washington D.C. Rolling Over ALS Ken Patterson Sr. has ALS. He is riding in a motorized wheelchair from Florida to Washington, D.C. This video is from YouTube. There is news clip ...
