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ALS Registry Act

Leon
  • By Leon · Yesterday at 2:00 pm
  • In National ALS Advocacy Day · 0 replies
  • I recall half-time with my enraged football coach. He said, you men own this game even if you're losing by 21 points. Like the ALS Registry Act S.1382 we may be behind in the score but this match-up is ...

Anyone out there with Familial ALS?

jtrump
  • By jtrump · August 10, 2008
  • In Familial ALS · 24 replies
  • I am looking for other families with Familial ALS who might be able to share information with me. I am curious to know if anyone has heard of any current studies going on that we could possibly be involved ...

Lithium

lamere53
  • By lamere53 · August 8, 2008
  • In Familial ALS · 9 replies
  • We are a family of four who live in SOUTHERN New Jersey near Philadelphia. Already familiar w/the lithium results in the Italian trials, I am a recently-diagnosed male ALS patient who is DESPERATELY trying ...

ALS--A PRESUMPTIVE DISEASE FOR-ALL-VETERANS

timecard
  • By timecard · August 8, 2008
  • In ALS and the military · 1 reply
  • HAS ANYBODY HEARD ANY MORE ABOUT THE LEGISLATION THAT VA SECRETARY-JAMES PEARSE-SAID WOULD BE EFFECTIVE AUG. 1-TO MAKE -ALS -A PRESUMPTIVE DISEASE FOR ALL VETS. OUR VA OFFICE HERE IS MS. TOLD ME THEY ...

sensory symptoms

Gebbie
  • By Gebbie · August 3, 2008
  • In Familial ALS · 3 replies
  • I've recently been diagnosed with A.L.S. and would like to know if other people experience sensory manifestations. I have a numb feeling in 3 of my toes and across the top of one foot, and get burning ...

Need to talk?

missinmyangel
  • By missinmyangel · July 31, 2008
  • In Children and families · 0 replies
  • I lost my Aunt,47 ,on June 8th. I lost her physical being but have gained an Angel. I was a caregiver and AM a friend to anyone,afflicted by this horrible disease. Boh the diagnosed and their families ...

Pictures of the 2008 National Advocacy Day?

jon55
  • By jon55 · July 17, 2008
  • In National ALS Advocacy Day · 2 replies
  • I have seen pictures of the past years, but I have not found many pictures of the 2008 National Advocacy Day in Washington. Does anyone know where these can be located or when they will be placed on the ...

H.R. 5454 Advocacy

ZenArcher
  • By ZenArcher · July 7, 2008
  • In ALS and the military · 0 replies
  • Please go to http://capwiz.com/alsa/home/ Under Find Your Officials enter your zip code and click Go. Ensure that Federal is selected and click your Representative. Click the link next to E-mail. As a ...

ALS's only OVER 5 CLUB

Ranger
  • By Ranger · July 6, 2008
  • In National ALS Advocacy Day · 6 replies
  • We need to hear from PALS & CALS who have made the dx by doctors of 2 - 4 years a LIE. We need your data to share with the ALS community and ALS researchers. They need to know our numbers are growing ...

Four Things About Me

donhing
  • By donhing · July 2, 2008
  • In Children and families · 7 replies
  • Hey Everyone! I thought it would be fun to get to know you all better - so if you want to join in, copy & paste these questions with your answers... I will do the same. Four Things About Me Four jobs ...

Thoughts & Goals

Charlie3
  • By Charlie3 · July 2, 2008
  • In National ALS Advocacy Day · 3 replies
  • Hi All, I haven't written much in a while. Actually, I'm not much of a conversationalist in general terms. My wife and I have been reading everyones comments on here and other sites, as well as all I ...

ALS RESIDENCE

Barry2
  • By Barry2 · July 2, 2008
  • In Children and families · 2 replies
  • HI, Enclosed is a press release for all of you to review and comment on. Barry http://www.thejewishadvocate.com/this_we eks_issue/news/?content_id=3504 ...

chronic lyme disease???

lauralee
  • By lauralee · July 2, 2008
  • In Children and families · 5 replies
  • I am new to posting on this board but I do read, but not all the time.....maybe this is OLD info so please forgive me.....has anyone heard anything about Chronic Lyme Disease?.....I read somewhere that ...

What am I in for?

lamere53
  • By lamere53 · June 30, 2008
  • In Children and families · 19 replies
  • I'm worried about what lies ahead...my husband has been diagnosed with ALS. It started with his speech. We are waiting for the lithium trials to start. Any advice ...

MDA/ALS Clinic Has been a Positive Light for me -

LeeDX
  • By LeeDX · June 25, 2008
  • In National ALS Advocacy Day · 0 replies
  • Anyone who struggles with insurance issues or finding 'help' for this disease difficult. I highly recommend getting in touch with a MDA/ALS Chapter in you area or region. I Registered with a Regional ...

"I Believe They're Ahead of the Pack"

Eddiespaza
  • By Eddiespaza · June 21, 2008
  • In National ALS Advocacy Day · 0 replies
  • After nearly 1 full year of surfing on the Internet for answers & hope, I've seen a lot of encouraging scientific breakthroughs, yet none have even come close to delivering a basic and or effective treatment ...

Call to Action for All Veterans with ALS

ZenArcher
  • By ZenArcher · June 6, 2008
  • In ALS and the military · 0 replies
  • We are excited to announce that Jeff Faull, a veteran with ALS from our Greater Philadelphia Chapter and the Vice-Chair of The ALS Association's VA Issue Team, is scheduled to testify before the House ...

Alternative Treatments

WayneLampe
  • By WayneLampe · June 1, 2008
  • In Medicare prescription drug benefit · 8 replies
  • I have tried many. I e-maile this DR Strande in CA He called me and offerd hope of taking natrual medicinces. I have been down that road once. Has anyone heard good or bad. Simply Healing Clinic Rockfield ...

Contact your Congressman, Request support on H.R.5454

codeman
  • By codeman · May 30, 2008
  • In ALS and the military · 0 replies
  • Below is a Letter that I wrote my Congressman. Veterans with ALS need your help!!!. Please write your Congressman and ask for support in cosponsoring Bill H.R.5454. Thanks Bill Motley Honorable Congressman ...

Ken Patterson reaches Washington D.C.

BobbyB
  • By BobbyB · May 16, 2008
  • In National ALS Advocacy Day · 2 replies
  • Ken Patterson reaches Washington D.C. Rolling Over ALS Ken Patterson Sr. has ALS. He is riding in a motorized wheelchair from Florida to Washington, D.C. This video is from YouTube. There is news clip ...

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