I've recently been diagnosed with A.L.S. and would like to know if other people experience sensory manifestations. I have a numb feeling in 3 of my toes and across the top of one foot, and get burning ...
I have seen pictures of the past years, but I have not found many pictures of the 2008 National Advocacy Day in Washington. Does anyone know where these can be located or when they will be placed on the ...
Please go to http://capwiz.com/alsa/home/ Under Find Your Officials enter your zip code and click Go. Ensure that Federal is selected and click your Representative. Click the link next to E-mail. As a ...
I am new to posting on this board but I do read, but not all the time.....maybe this is OLD info so please forgive me.....has anyone heard anything about Chronic Lyme Disease?.....I read somewhere that ...
Anyone who struggles with insurance issues or finding 'help' for this disease difficult. I highly recommend getting in touch with a MDA/ALS Chapter in you area or region. I Registered with a Regional ...
After nearly 1 full year of surfing on the Internet for answers & hope, I've seen a lot of encouraging scientific breakthroughs, yet none have even come close to delivering a basic and or effective treatment ...
We are a family of four who live in SOUTHERN New Jersey near Philadelphia. Already familiar w/the lithium results in the Italian trials, I am a recently-diagnosed male ALS patient who is DESPERATELY trying ...
We are excited to announce that Jeff Faull, a veteran with ALS from our Greater Philadelphia Chapter and the Vice-Chair of The ALS Association's VA Issue Team, is scheduled to testify before the House ...
Below is a Letter that I wrote my Congressman. Veterans with ALS need your help!!!. Please write your Congressman and ask for support in cosponsoring Bill H.R.5454. Thanks Bill Motley Honorable Congressman ...
I'm worried about what lies ahead...my husband has been diagnosed with ALS. It started with his speech. We are waiting for the lithium trials to start. Any advice ...
Ken Patterson reaches Washington D.C. Rolling Over ALS Ken Patterson Sr. has ALS. He is riding in a motorized wheelchair from Florida to Washington, D.C. This video is from YouTube. There is news clip ...
Letters to Congress So, you're going to write your Congressman? Good idea. Make it a good letter. People who think members of Congress pay little or no attention to constituent mail, are plain wrong ...
we all have faces. but all the work that has gone into the als registry and then one man puts a stop to it. WE NEED TO STEP UP TO THE PLATE AND WE NEED TO HIT BACK. we are writing letters and sending ...
Same as the last one I did: anonymous 6 short questions data may go to Steve Perrin, Chief Scientific Officer for ALS TDI Go here to view the survey results: http://www.quibblo.com/quiz/13-fcSS/ALS- and-Environmenatal-Exposure ...
My name is Linda Gibson – I am caregiver to my daughter, Marcie who has ALS – Lou Gehrig’s disease. A group of CALS (caregivers of people with ALS) and PALS (people with ALS) have decided we are tired ...
Here is a bit of information about ALS TDI: http://gulfportgalals.blogspot.com/2008/ 03/what-is-als-tdi.html Pat Harbachuk (CALS, sister) to Ruth Rogers (PALS, 5/15/47); Limb Onset Sx 8/11/04; Mis-Dx ...
I have posted an informal survey of ALS versus different types of occupations/occupational exposure. If anyone would be interested in participating, it is a short 7 questions, and is totally anonymous ...
I need some advice...Could anyone post a link to the 'best' blog they have found re: Lithium? My husbands lithium level seems to be staying at .2, even tho the doctor has been upping the dosage each week ...
Lynn - maybe you will see this befoer you see the other message I just sent This board is the only way I know how to contact you I would really like to "talk" to you - we walk in the "same shoes" please ...
One never really knows what is going through another person's mind. Yesterday was my husband's 45th birthday. That is amazing for her was diagnosised with ALS 14 years ago. He has done well, although ...
