Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Discussions
iplex
- By kmsr · Posted yesterday at 11:16 pm
- In Children and families · 0 replies
- Does anyone know how to get iplex in the US? If not, how would one get enrolled in Italy? My father's disease is progressing rapidly and I would really like to give iplex a try. The neurologists I have ...
STATINS AND ALS-LIKE SYNDROME
- By moaningminnie · Posted June 29, 2009
- In National ALS Advocacy Day · 0 replies
- When researching information on peripheral neuropathy I found this information: “For susceptible individuals, the use of a statin drug can interfere with proper functioning of peripheral nerves. Researchers ...
BIG FAT LOVE - My Friend Frank Teixeira
- By AnMre · Posted June 19, 2009
- In Children and families · 0 replies
- My schoolmate, Frank, was diagnosed with ALS a few years back. Before the diagnosis, he was a lifelong surfer and enjoyed riding motorcycles. He worked as a prison guard down in San Diego. At one point ...
Our Journey of Nineteen Month's in Hell with Lou Gehrig's Disease
- By CharlesHaleSrWife · Posted June 14, 2009
- In Children and families · 0 replies
- Hello to all, I lost my Husband of 25 yrs to A.LS. 7yrs ago He was 42 and it took him in only 19 month's. I saw thing's that I wish I had not seen I stopped being a house wife and began being a caretaker.this ...
Spiritual Encouragement
- By WayneLampe · Posted June 1, 2009
- In Familial ALS · 0 replies
- Hello, Some of you may be familuar with a weeb page Oneplace.com. I invite you to visit as I play a recording from Dec 2006. I disscuss being diagnosed with ALS and depending on Jesuss Christ http://www.oneplace.com/ministries/worsh ...
What are the odds that I will inherit ALS from my father?
- By paulandpaul · Posted May 25, 2009
- In Familial ALS · 7 replies
- My father is 47 and has ALS. I was really sad when the doctor told me this. And I did some research online and found that ALS might be hereditary. Will I get/inherit this disease? Is the chance high ...
IPLEX - New York Times
- By Eddiespaza · Posted May 20, 2009
- In National ALS Advocacy Day · 2 replies
- Dear friends/PALS, A very dear & close friend, Kathy Thompson a.k.a. Fighting Mom (Team IPLEX Capt.) her son, Josh Thompson (PALS) were featured in the New York Times., The New York Times has just published ...
Spiritual Encouragement Radio Apperance
- By WayneLampe · Posted May 20, 2009
- In Children and families · 1 reply
- To all, May 21st 7pm I have been invited, through my friend Jaquiline Hilliard, on a Christian radio show on 91.5 in Holly Hill Florida. We will be discussing Lou Gehrig's disease, my web site and spiritual ...
Advocacy conference proceedings?
- By joe_c · Posted April 13, 2009
- In National ALS Advocacy Day · 0 replies
- Will session information or presentations from advocacy conference be available online for those who can't go? Thank you ...
Marriage... Yet another loss due to ALS
- By Eddiespaza · Posted March 31, 2009
- In National ALS Advocacy Day · 6 replies
- My name is Eddie, I am 50 years old, I was diagnosed the 2005 I live in the Chicagoland area and own my house. I have been married for 26 years, it seems like my marriage is going to be a fatality of ...
Sleepwalking on ambien
- By LargentALS · Posted March 24, 2009
- In Medicare prescription drug benefit · 1 reply
- Maybe this has been discussed before, nevertheless.......This is just a heads up. My ALS husband who has been put on a C-pap was also put on Ambien to help him sleep. Guess what, one morning there was ...
Rilutek
- By excelwithkat · Posted March 20, 2009
- In Medicare prescription drug benefit · 6 replies
- Can some of you who are taking this drug tell me how long you've been taking it, if you've seen results (hopefully you have!) and if you experience any side effects please? Thank you! --Kat ...
IPLEX, And the IND Process
- By Eddiespaza · Posted March 8, 2009
- In National ALS Advocacy Day · 0 replies
- Dear friends, A very dear and close friend, Kathy Thompson a.k.a. fighting mom (Team IPLEX Capt.), posted this excellent retort on ALSTDI last night. This says it all ...
Please send success stories! How are you fighting/beating ALS?
- By excelwithkat · Posted March 3, 2009
- In Familial ALS · 10 replies
- Hi. I was diagnosed 1 month ago after 8 long months of testing for everything from carpul tunnel to osteoarthritis. I need to hear your success stories...how are you slowing or STOPPing the progression ...
IPLEX and the Telephone Game”: -[Response ]
- By Eddiespaza · Posted February 27, 2009
- In National ALS Advocacy Day · 0 replies
- Response to “IPLEX and the Telephone Game”: Conflicting Paradigms Mihaly Lenart Blaming the Victim? In their paper (1), Drs. Richard S. Bedlack, Vicenzo Silani, and Ester Cudkowicz (in the following “Au-thors ...
Help Improve the Americans with Disabilties Act for all!!!
- By MarkV64 · Posted February 25, 2009
- In Familial ALS · 0 replies
- Hey all! So proud to be a part of this online community! A research team at the Center for Inclusive Design and Environmental Access (IDEA), a research center at the State University of New York’s School ...
Team IPLEX - We Need Your Help
- By Eddiespaza · Posted February 25, 2009
- In National ALS Advocacy Day · 0 replies
- Dear friends, family, & supporters, I am once again, requesting help from any and all family, friends, & supporters . Please Review the above attachments we (Team IPLEX) have provided... You can... cut ...
ALS living in Shreveport, LA-needs doc
- By Jennifer05 · Posted February 17, 2009
- In Familial ALS · 3 replies
- HI all...I'm trying to locate a good ALS doctor for my friend in the Louisiana area. We could make a day trip out of it if you know someone in the surrounding states. I don't live down in that area so ...
The IPLEX debacle
- By Eddiespaza · Posted February 5, 2009
- In National ALS Advocacy Day · 2 replies
- Dear brothers and sisters, In regard to the recent "Telephone Game" article which apparently has influenced the mighty FDA... well all I can say about yet another bogus, don't get out of line, hopeless ...
pesticides and als
- By eric59nj · Posted January 31, 2009
- In Familial ALS · 2 replies
- I am researching the connection between als and pesticides. I was employed on a terminal for 11 years where imported fruit is fumigated several times a week. I am suspected its how I contracted ALS. Does ...
