Hello, my name is Marcy. I have a brother by the name of Sam Ward, that just passed away Jan 08 2008 from this terrible disease ALS. It really stinks that we are no farther ahead than we were in the 40:s. How sad is that?
My brother had Bulbar. He really had the will to live. He was a strong man.
I want to be able to help any paitents out there that I can.
I hope that some day I can make it to Washington and be right up front to be able to speak about this disease.
If anyone needs to talk please email me directly at Smilef@Aol.com
I live in Fort Collins Co. If there are any patients out there I am willing to help out. I do have medical background.
Hope to hear from you all soon.
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