Anyone who struggles with insurance issues or finding 'help' for this disease difficult. I highly recommend getting in touch with a MDA/ALS Chapter in you area or region.
I Registered with a Regional office in Eugene, Or., which covers my area here in N. Cal.
I was sent afew forms to complete, and before long I had been sent an appointment with Providence Hospital's MDA/ALS Clinic Team.
A Four person Team, neurologist included, evaulated me, which went very Positively and Smoothly. I was told I was Approved under The MDA/ALS Grant system.
I've had subsequent appointment's for the OT, Speech Specialist, Wheelchair evaluation, Barium swallow testing, and a Sleep study interview.
Last wednesday I stayed over at the Sleep Study clinic where I was wire up with an aray of overnite monitors to analyze my breathing and sleep process. I'll have results in early July to see if I qualify for a Bi-Pap.
During my 3rd appointment with the OT for a wheelchair evaulation, the OT and Wheelchair Vendor told me the MDA/ALS Grant was going to 'TOTALLY' Cover the bill for a New Permoble C300 powerchair with absolutely 'NO' out of pocket cost to me. Once we heard that abit of Emotional Liability was observed, couldn't believe it.
Being all I have for Insurance is Social Security Part A & B and the VA, there's been a struggle dealing with getting the applications that will give me a more comfortable future with my ALS Progression.
To sum it up, These Folks are Terrific, Effective, cut to the chase Professionals. If your having a difficult time, have no substantual insurance coverage, I highly recommend contacting a MDA/ALS Regional Clinic in your area.
Below is a MDA/ALS Regional Clinic Locator link.
Good Luck ~
Lee
http://www.als-mda.org/clinics/alsserv.html
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