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Lithium

lamere53
0 Recommendations

We are a family of four who live in SOUTHERN New Jersey near Philadelphia.

Already familiar w/the lithium results in the Italian trials, I am a recently-diagnosed male ALS patient who is DESPERATELY trying to locate a doctor in my area
(ZIP 08065) who is willing to dispense LITHIUM for ALS.

Thus far, I have spoken w/four local neurologists who say almost exactly the same thing:

"CAN I prescribe lithium? Yes. WILL I? NO."

All want to WAIT ... for more proof that lithium works.
WAIT while deterioration goes on and on.

Is there anyone who knows of a reputable doctor in my area who will dispense this medication?

Please respond if you have an answer. Thank you for your help!

Explore topics in this discussion:

ALS Depression Rilutek

9 replies

bigal

i live in las vegas formerly chicago.
i have never seen anything like yhe doctors that deal with als.i have bulbar onset.most als patients are not happy with doctors .the als clinic out here is starting lithium trials in about 2 months. i started 10 days ago.
300 mg twice a day.my doctor had me sign a contract with him,mainly to say i wouldn't retaliate if it doesnt work , your suposed to take rilutek with it.
since i started taking it i can swallow better.i feel generally better. i hope to god this works for all of us.
you might be able to get a psychiarist to prescribe it.
or you might be able to buy over the internet
they want you to have a .04 blood level' let me know how your making out please
al jones

joe

If you want to know how effective it is try this web site:
my friend mike from finland on taking lithium

http://www.youtube.com/watch?v=210IHwqkdp8

I have been on Rilutek since 2001 and began with Lithium in April. I do see a marked improvement in the way I walk. Not like Mike but some. Any improvement or remission is a plus. I was first told ALS in Dec of 1995, so you see I still here and still working. I feel blessed. Joe

JoyceFilippone

I have been on Rilutek for seven years and started on Lithium in early April. Haven't noticed any results as yet but hoping it has at least further slowed my progression. I guess only more time will tell.

safetrek

I had no problem getting my regular doctor putting me on lithium but In 2 month I don't see much

spinningdr

my doctor will not do anything until after December and I am losing arm strength after fully losing the legs. My wife is trying her GP. I will try anything as I have seen the Italian studies too

lamere53

spinningdr...do you have an email address?

spinningdr

I can be reached at wittmer211@verizon.net. also my wife went to see her doctor yesterday and he is coming to my house to prescribeLithium, I feel blessed to have my wife's doctor. wjw

joe

Lamere53,
I am a 58 year old male living with ALS since 1995. I have been on Lithium since early April. At first I saw some improvement in my thumbs, and ankles. Now I am not sure. My bowl movements have become labored and my feet look swollen. I will attempt to attach several sites that are from my friend Mike from Finland on taking lithium.

http://www.youtube.com/watch?v=210IHwqkdp8

Sorry I can not find the other, but it was not as positive as the first. I am sure if you contact Mikko he will send you the second video. Mikko Kehusmaa
mikko.kehusmaa@pp1.inet.fi

I doctor at the Cleveland Clinic, in Cleveland Ohio Dr. Erik Pioro.


Hope this helps in making you decession.

Joe (Iceberg) Hrezo
pappap@cvzoom.net

bobswifedeb

I do not know if this will help, Dr. Samuel Schneider is a psychiatrist in Princeton, NJ. He is wonderful and helps me weekly as I try desperately to fight depression upon the loss of my dad who had ALS. Anyway, Dr, Schneider has a tremendous heart and it would be worth the visit to his office to talk about your situation.I have a feeling he would help you anyway he can. His number is 609 9243980. God bless you and may a cure be around the corner for you. Remember, miracles occur daily and never lose hope. Warm Regards, Debbie Wewer

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