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I am new to posting on this board but I do read, but not all the time.....maybe this is OLD info so please forgive me.....has anyone heard anything about Chronic Lyme Disease?.....I read somewhere that this can mimic ALS and its treatable with antibiotics over a long period of time?.....Is this anything that anyone has heard about?.......sounds intriquing.....thx
I had an IV in my chest for 18 months and took massive amounts of antibiotics everyday. I was diagnosed by a lab in California after testing negative everywhere else. I had high hopes but it was expensive and did nothing
IT'S MY OPINION, THAT IF YOU HAVE BEEN DIAGINOSED WITH ALS, YOU OWE IT TO YOURSELF TO MAKE EVERY EFFORT TO ELIMINATE ANY AND ALL POSSIBILITIES OF ANY OTHER ILLNESS. YOU'VE GOT NOTHING TO LOSE. I WENT TO AN INFECTIOUS DISEASE SPECIALIST. HE PUT ME ON AMOXICILLEN FOR ABOUT A YEAR. AT LEAST I KNOW FOR SURE THAT I ELIMINATED LYME DISEASE REGARDLESS OF LAB RESULTS SINCE THEY TEND TO BE INACCURATE. I ALSO HAD ALL THE AMALGAM FILLINGS REMOVED FROM MY TEETH. AS ALS PATIENTS, WE MUST DO EVERY THING POSSIBLE TO CLEAN UP OUR BODIES. REMEMBER, WE ARE FIGHTING A DISEASE THAT HAS NO KNOWN CAUSES OR CURES AND VERY LITTLE TREATMENT.
thx guys......since I wrote that msg, someone else has told me that its not really "news" and that others have tried antibiotics without success....me being a cockeyed optimist, I think answers to a lot of diseases or disorders are within the grasp of medical science and maybe some of those answers will be obscenely simple......lets hope so...L.
I can remember when my brother was diagnosed with ALS. I wanted his doctor to make sure it was not Lyme Disease. He was great he did every test out there to find out it was that terrible ALS.
My brother was on an anitobic through Canada for 18 days and he was doing much better but of course when we got back to Buffalo NY he could not get the antiboci.
I wish everyone could have something else but this disease.
I lost my brother in Jan 2008 and not a day goes by that I do not think of him. My heart hurts everyday of the week. He was ssuch a wonderful man. It alway happens to the good people.
Keep smiling everyone a cure is bound to be found.
Marcy
BUFFALO NY
FORT COLLINS CO
SMILEF@AOL.COM
Whe I was diagnosed with ALS, I asked my doctor if it could be Lyme Disease. He said no, that he had tested for that. I am not sure how he did that, but....oh well
I am pretty sure I have ALS///that is what everyone is telling me....
But you did make a good point.
Chuck
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