Already a member? Sign in
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
I have tried many. I e-maile this DR Strande in
CA
He called me and offerd hope of taking natrual medicinces. I have been down that road once. Has anyone heard good or bad.
Simply Healing Clinic
Rockfield Business Center 15520 Rockfield Blvd. Suite E1 Irvine, CA 92618
949-587-1513
Cancer Duragesic Chronic pain Amyotrophic lateral sclerosis (ALS) Beta-carotene Methadone Chronic fatigue syndrome Morphine Rheumatoid arthritis Lupus Fibromyalgia Osteoarthritis Cortisol Stress Arthritis Multiple sclerosis Breast cancer Oxycontin ALS Pain Depression Percocet
Hello Wayne:
I just happened to notice your question about Dr. Strande. I am a new patient of his and would be willing to keep you posted on my progress if you'd like.
I suffer from chronic pain, severe clinical depression, degenerative osteoarthritis, herniated discs, ....I'll spare you the rest..
I have been diagnosed with everything from CFS to Fibromyalgia to hypochondria to "we don't know what to think". I've recently been on Morphine, Percocet, Methadone, Oxycontin, Duragesic along with a host of other pills too long to list. I got sick and tired of having the dr's putting me through torture including the act of sticking 8 needles into different nerves in my back, having dye shot into my spine, etc. so I looked on line for natural help.
Let me preface this by saying that my neighbor and friend who is well educated in natural medicine had been trying to help me over the years but I wasn't very compliant. Also my mother had Stage IV breast cancer and was given 6 mos. to live. She went natural and lived for 12 more years. Anyway, I decided that no matter what I had nothing to lose. No dr could help, only make things worse.
I stumbled across his website and read his dissertation as well as his testimonials. It made sense to me. Two days ago I gave in and contacted Dr. Strande. He is a VERY fast moving person. He consulted me over the phone since I don't have a way of getting to his office. He asked me to define my symptoms (w/o the diagnosis) and how long I've been suffering. So I listed all the things I'm sick of dealing with and the amount of time I've had it.
He asked me a boat load of questions in his rapid-fire manner and proceeded to tell me what he was going to send me. Then he told me I'd see results within 7 days and in 3 mos, would have no need for him or the herbs.
Yesterday I received his box, gave myself a pep talk and began the regimine which to me is very extreme. He has me taking huge doses of herbs in liquid, pill and powder form and I'll be the first to tell you it tastes just like the stuff my mom had, the most vile thing you can think of. People on his website referred to it as "bug juice" and "vodoo juice" and I'm inclined to agree. But....I'm gonna keep doing it.
Yesterday I took the lunch, dinner, and bedtime doses and this morning endured the morning dose. But I did not take any pain meds last night or this morning and by now I'd be in a real pickle. The stuff he has me on is a natural anti-inflammatory (for one) and I'm sure that's helped.
I could find nothing bad about him anywhere on the web and I used key words like his name and "horrible nightmare", "bad advice", "quack", you name it. All I found is good.
As I said if you'd like I can keep you posted on my progress. Should you decide to give him a try I will forewarn you; his consultation is reasonable however the herbs are expensive so don't be surprised. He also hits you hard in the beginning and then tapers off the herbs so you'll only have to suffer at first. Secondly again, the stuff is the nastiest stuff you ever had. Get some fruit juice and whatever you can to get the taste out (a 'chaser') and prepare yourself mentally.
Best wishes,
Lorri
Thank you for repling. My condition is Lou Gehrig's disease. I have decided to stop any alternative treatments. I already wasted $15,000 down that road. I am entering a study for a diaphram stimulator wich would not allow me to take anything anyway.
Hopefully the stuff will help you. I a skeptical of a doctor who seams to prescribe everyone the same thing and without any visit.
Be aware I got one previous response that said he received things in ziplock bags and would not respond to him. He found out the address was in an industrial parcel.
Hello Wayne
I will pray for you. Just keep fighting and NEVER give up. I know it is easier said than done, but my brother was diagnosed at 32 years old and live 12 years with this terriblke disease. He fought till he could no longer fight.
I went to Washington and heard alot about the diaphram go do it. I heard alot of great response with that.
Hang in there.
Marcy
Smilef@aol.com
hi wayne
i have the same disease. im starting lithium tommorrow. the italian study was encouraging.
im in nevada and wull be the first one to start it.
the als clinic is waiting for approval to due clinical trial of lithium. my doctor is starting me on his own.
can u tell me about the diaphgram
thanks wayne
al jones,e mail bigal9999us@hotmail.com
The diaphram stimulator is new study. It is like an external pace maker for the diaphram. They insert wires to muscle not be used around diaphram. 4 small wires come out and connect yo a box about 5x5 inches. It stimulates the muscle. Studies have shown it reduces FVC going down in half.
Wayne, what is FVC? My 37 yr old son was diagnosed w/ALS in October. He cannot use his left arm, has trouble walking and speech is becoming tough. Is there a site to look at the diaphram stimulator that you know of?
http://www.als-mda.org/Publications/als/als10_8.html
This is a link to MDA site that has a picture and explains it.
Has your son had a pulmanary function test? That measures breathing capacicity. FVC is Forced Vital Capacity. 100% is normal. I was still at 100% when first diagnosed. As the diaphram and muscles around it weaken, the number goes down.
I am at 74% which is a 25% drop in 30 months. That is about a 5% drop every 6 months in breathing strength. That number is typical. The stimulator has shown to cut the drop in half thus prolonging life.
What other symptoms does he have. Has he had a barium swallow test? This measures swalling difficulties. The sooner you can get a feeding tube put in the better. I had one put in Oct 2006. Currently I am still mouth eating but ready to switch.
Wayne
Just writing to see how you are doing?
Marcy
My Fiancee who has schizoaffective disorder Bipolar type somehow found this Dr. I dont even want to call him one as you should read his disclaimer on his website. He almost got him killed with his herbs and amino acid fish oil treatment. I was so furious that someone who can have the potential to get psychotic was allowed to be bought in by his FAKE and expensive treatment of herbs and laxatives which he could have gotten from walgreends for 1 fifth of the price. Unfoturnately I live in canada and he is in the states and he got off all his medications thinking that in 90 days he will be CURED. I donno about other ppl who use his treatment but HE almost got my fiancee killed b.c he was delusional and paranoid. It is my fiancees fault to think this mad man quack could have curied him but thank god He got help when it did get so bad and he bacame manic and we had to get the police to get him in the hospital to get proper medical treatment.
All i say is if you have mental illness DO NOT trust this fake doctor he has a phd and how on earth can you have the nerves to take so much money from pppl who seem desprate to get treated but knowing that they WILL NEVER BE CURED. I HATE THIS Dr. Strande with a passion now. He robbed my fiancee of over 6500 USD and almost got him killed.
be very careful if u think alternative treatment works.
I am sorry. I never went through with it. Somone from the community warned me first.
How can I pray for you?
Hi, Lorri,
Hope you are doing better and better.
How is the treatment with Dr. Strande going?
STAY AWAY FROM DR. STRANDE. The man is the epitome of the word "quack." I went to him because he told me he could cure my vulvodynia in 3 months. I am only 22 years old and was desperate. He nearly killed me with massive oversupplementation. I had to quit going after two months due to being hospitalized. please everyone stay away from this man.
...not to mention I got nowhere near improving, and actually got new symptoms towards the end of his "treatment."
FALS gives us the key to SALS. Because FALS and SALS are the same basic disease, they must have a similar underlying cause. FALS is due to various genetic defects in the copper-zinc superoxide dismutase (CuZnSOD) enzyme, which render this protective enzyme ineffective. So SALS likely has ineffective CuZnSOD too, but for a different reason. What could that reason be? How about an environmental factor instead of a genetic factor – SALS could be due to a healing trauma or insult, which knocks CuZnSOD enzyme production into impaired hypoactivity (functional exhaustion); and this causes the disease in the same way that genetic defects in CuZnSOD cause the impaired, hypoactive enzyme functioning found in FALS.
The following scientific paper confirms the central role of zinc in ALS...
Trends Neurosci. 2001 Nov;24(11 Suppl):S15-20.
“Superoxide dismutase and the death of motoneurons in ALS.”
Beckman JS, Estévez AG, Crow JP, Barbeito L. Linus Pauling Institute, and Dept of Biochemistry and Biophysics, Oregon State University, Corvallis 97331, USA.
"Amyotrophic lateral sclerosis (ALS) is a lethal disease that is characterized by the relentless death of motoneurons. Mutations to Cu-Zn superoxide dismutase (SOD), though occurring in just 2-3% of individuals with ALS, remain the only proven cause of the disease. These mutations structurally weaken SOD, which indirectly decreases its affinity for Zn. Zn-deficient SOD induces apoptosis in motoneurons through a mechanism involving peroxynitrite. Importantly, Zn-deficient wild-type SOD is just as toxic as Zn-deficient ALS mutant SOD, suggesting that the loss of Zn from wild-type SOD could be involved in the other 98% of cases of ALS. Zn-deficient SOD could therefore be an important therapeutic target in all forms of ALS."
And so what is the cause of SALS?
"LOSS OF ZINC," WHICH CAUSES ZINC-COPPER-IRON MISMANAGEMENT AND "ZN-DEFICIENT WILD-TYPE SOD."
There must be a SALS triggering event! The likely triggering event is a healing trauma or insult, whether war, smoking, auto accident, Lou Gehrig’s 2130 consecutive baseball games, etc. It can definitely be “physical trauma,” but a better term is “physiological trauma.” Such a physiological healing trauma or insult (mild to severe) uses up all healing nutrients (slowly to rapidly), leading to nutrient deprivation, notably zinc deprivation, which then pushes copper-zinc superoxide dismutase (CuZnSOD) enzyme production into functional exhaustion and impaired hypoactivity.
Yes, iron can be an important feature of SALS. As zinc deprivation approaches "zero zinc," zinc-iron homeostasis is lost, and iron mismanagement would occur with devastating results. BUT this is an effect, NOT a cause! “Cause and effect” is an important scientific principle. Almost all ALS research involves studying the endlessly varied and complex pathology of the disease. However, this destructive pathology is the effect. And iron’s destructive pathology fits in here. Of course, to the extent that iron might contribute to development of zinc deprivation, then iron could be a contributing cause too.
A new theory of human health and disease, Equilibrium Theory, can explain all the chronic diseases in one paradigm! According to the theory, SALS develops from an initial, minor dysfunction in the body’s energy/nervous system. Something as simple as too much coffee can cause the nervous system to become hyperactive and lose its homeostasis. The second cause and trigger for SALS is a healing trauma or insult, which uses up all healing nutrients in an effort to cope with the trauma, producing nutrient deprivation (especailly of zinc) and eventually pushing copper-zinc superoxide dismutase (CuZnSOD) enzyme production over a “DISEASE CLIFF.” CuZnSOD enzyme production falls/collapses into impaired, hypoactive functioning. This brings on the ALS dis-ease in the same way that genetic defects in CuZnSOD cause the impaired, hypoactive enzyme functioning found in FALS.
PREVENTING SALS after a healing trauma or insult requires generously supplying all healing nutrients, especially zinc to prevent zinc deprivation, loss of zinc-copper-iron homeostasis, and loss of the CuZnSOD protective enzyme.
CURING SALS after a healing trauma or insult requires much more! The impaired CuZnSOD hypoactivity must be overcome. To accomplish this, HYPOACTIVE functioning must be nourished with HYPERACTIVE complete nutrition. So, the solution to SALS lies in a powerful synergy of functionally on-target and homeostatically-balanced complete nutrition, including copper (trace metal for energy/nerves) and zinc (trace metal for healing) to propel CuZnSOD and possibly other zinc dysfunctions up and over the “disease cliff” of impaired, hypoactive functioning and to back to normal health and homeostasis.
_____________
WHAT IS A THEORY?
Significant advances in science often come through theories, for example Pasteur’s germ theory, Darwin’s theory of evolution and Einstein’s theory of relativity. In these and many other theories, an underlying general principle explains complicated observations and phenomena. By finding this general principle, a theory organizes and simplifies knowledge in a particular field. It transforms thinking – the old familiar world gives way to new understanding.
The search for truth remains the grand adventure of life. The human mind has two ways of thinking and coming to the truth about anything in existence, and the ancient Greeks were the first to describe and put names to both methods: (1) empiricism is practical experience – what your senses, observations and experiences tell you about this complicated world. Your mind interprets these facts; therefore empiricism is subjective. And (2) rationalism is the search for truth independent of experience. Rationalism is objective, i.e. evidence determines true or false. It is reason over opinion and belief. These two different ways of thinking can be at loggerheads, or they can be combined to solve difficult problems. This combined effort is the essence and purpose of a theory – integrate proven, objective science with subjective insight and discovery to explain the currently unexplainable and understand the world more completely. Rationalism supplies the pieces to a jigsaw puzzle; empiricism can put the puzzle together to form a beautiful picture!
__________
Equilibrium Theory provides the following new understanding of the inner workings of human physiology and homeostasis. Within the human body and its network of glands and organs, four interconnected functions (or systems) – ENERGY, HEALING, STRESS and IMMUNE – work in healthy equilibrium, or internal balance. The body’s response to all internal needs and external forces lies within and must adhere to this four-part harmony. Moreover, these tasks are the template for nutrition. Thus with the perfect symmetry of nature, each of the four food types, for example, nourishes one of these four functions: carbohydrates for energy, proteins for healing, fats for stress (cells burn fat instead of glucose, a true definition of stress!), and fibers including phyto-compounds for immune. Significantly, the same direct relationship and necessary equilibrium apply to other nutrients and their nutritional categories: B vitamins, fatty acids, trace metals (minerals), and herbs.
For the scientific paper on Equilibrium Theory, go to: http://www.townsendletter.com/July2008/equilib0708.htm
Equilibrium Theory also reveals the pathogenesis, correct pathology, and physiological remedies (needed to restore normal, healthy homeostasis) for osteoarthritis (OA), rheumatoid arthritis (RA), multiple sclerosis (MS), amyotrophic lateral sclerosis (ALS), lupus, fibromyalgia, chronic fatigue syndrome, and many more chronic diseases. One paradigm encompasses and describes all the major chronic diseases! For the first time, a theory can explain the mystery of chronic diseases. Anecdotally, Equilibrium Theory has been used successfully to cure rheumatoid arthritis and chronic fatigue syndrome. These cures employ a synergy of functionally on-target and homeostatically balanced nutrients to bring impaired, hypoactive functions back to life and full functioning.
Equilibrium Theory is such a simple idea (basically hiding in plain sight), but the applications are profound, starting with the: (1) new template for nutrition, and (2) new chronic disease paradigm. The nutritional template works well in everyday life to build health and vitality, OR in conjunction with the chronic disease paradigm to cure these dis-eases.
Equilibrium Theory has supporting evidence. Two objective findings give immediate credence and weight to this theory: (1) the central concept of a four-part harmony in Energy, Healing, Stress and Immune functions/systems explains all observed human physiology including copper-zinc antagonism and the puzzling results of beta-carotene cardiovascular and cancer studies; and (2) Equilibrium Theory correctly predicts the pathologies of chronic diseases, for example, it reveals why arthritis divides into two types, and then describes the pathology of both osteoarthritis and rheumatoid arthritis precisely, i.e. osteoarthritis is a degenerative disease in the protein structures of cartilage, while rheumatoid arthritis is an autoimmune disease in the connective tissue of cartilage.
Equilibrium Theory also explains very detailed scientific observations, such as molybdenum-tungsten metaloenzyme antagonism found in nature and possibly in man; and why the B vitamin pantothenic acid, a precursor of epinephrine, increases immunoglobulin and neutrophil phagocyte numbers.
Chronic dis-ease doesn’t not respond well to Western drugs, because homeostasis cannot be achieved through drugs! For example, a common worldwide scenario is a lifetime of too much stress. This wears out and exhausts cortisol functioning and stress ability in your body, creating an imbalance between stress and immune systems. The immune system dominates, leading to autoimmune disease arthritis. Cortisone, a chemically-similar steroidal hormone to the human body’s own cortisol, is an imperfect attempt by MDs to restore proper functioning to your stress system and balance to the stress-immune equilibrium; BUT it brings only temporary relief from arthritis because natural cortisol remains suppressed, and so homeostasis cannot be achieved. What is needed to permanently cure arthritis is a natural way of restoring cortisol functioning and overall stress-immune equilibrium. This is what Equilibrium Theory is all about – finding that natural solution to chronic disease in physiology and in nutrition, nature’s original and only true chemistry for the human body.
Impaired, hypoactive CuZnSOD in SALS is analogous to impaired, hypoactive cortisol in arthritis!
Could you explain that last post in simpler terms? I got bogged down and confused. Thanks.
Hi Hidrmamama--
What are you confused about?
FALS gives us the key to SALS?
The scientific paper and the central role of zinc in ALS...
Trends Neurosci. 2001 Nov;24(11 Suppl):S15-20.
“Superoxide dismutase and the death of motoneurons in ALS.”
Beckman JS, Estévez AG, Crow JP, Barbeito L. Linus Pauling Institute, and Dept of Biochemistry and Biophysics, Oregon State University, Corvallis 97331, USA.
"Amyotrophic lateral sclerosis (ALS) is a lethal disease that is characterized by the relentless death of motoneurons. Mutations to Cu-Zn superoxide dismutase (SOD), though occurring in just 2-3% of individuals with ALS, remain the only proven cause of the disease. These mutations structurally weaken SOD, which indirectly decreases its affinity for Zn. Zn-deficient SOD induces apoptosis in motoneurons through a mechanism involving peroxynitrite. Importantly, Zn-deficient wild-type SOD is just as toxic as Zn-deficient ALS mutant SOD, suggesting that the loss of Zn from wild-type SOD could be involved in the other 98% of cases of ALS. Zn-deficient SOD could therefore be an important therapeutic target in all forms of ALS."
And so what is the cause of SALS?
"LOSS OF ZINC," WHICH CAUSES ZINC-COPPER-IRON MISMANAGEMENT AND "ZN-DEFICIENT WILD-TYPE SOD."
There must be a SALS triggering event?
A new theory of human health and disease, Equilibrium Theory?
For the scientific paper on Equilibrium Theory, go to: http://www.townsendletter.com/July2008/equilib0708.htm
PREVENTING SALS after a healing trauma or insult requires generously supplying all healing nutrients, especially zinc to prevent zinc deprivation, loss of zinc-copper-iron homeostasis, and loss of the CuZnSOD protective enzyme.
CURING SALS after a healing trauma or insult requires much more! The impaired CuZnSOD hypoactivity must be overcome. To accomplish this, HYPOACTIVE functioning must be nourished with HYPERACTIVE complete nutrition. So, the solution to SALS lies in a powerful synergy of functionally on-target and homeostatically-balanced complete nutrition, including copper (trace metal for energy/nerves) and zinc (trace metal for healing) to propel CuZnSOD and possibly other zinc dysfunctions up and over the “disease cliff” of impaired, hypoactive functioning and to back to normal health and homeostasis.
_____________
WHAT IS A THEORY?
Significant advances in science often come through theories, for example Pasteur’s germ theory, Darwin’s theory of evolution and Einstein’s theory of relativity. In these and many other theories, an underlying general principle explains complicated observations and phenomena. By finding this general principle, a theory organizes and simplifies knowledge in a particular field. It transforms thinking – the old familiar world gives way to new understanding.
The search for truth remains the grand adventure of life. The human mind has two ways of thinking and coming to the truth about anything in existence, and the ancient Greeks were the first to describe and put names to both methods: (1) empiricism is practical experience – what your senses, observations and experiences tell you about this complicated world. Your mind interprets these facts; therefore empiricism is subjective. And (2) rationalism is the search for truth independent of experience. Rationalism is objective, i.e. evidence determines true or false. It is reason over opinion and belief. These two different ways of thinking can be at loggerheads, or they can be combined to solve difficult problems. This combined effort is the essence and purpose of a theory – integrate proven, objective science with subjective insight and discovery to explain the currently unexplainable and understand the world more completely. Rationalism supplies the pieces to a jigsaw puzzle; empiricism can put the puzzle together to form a beautiful picture!
__________
The role of Western drugs?
Chronic dis-ease doesn’t not respond well to Western drugs, because homeostasis cannot be achieved through drugs! For example, a common worldwide scenario is a lifetime of too much stress. This wears out and exhausts cortisol functioning and stress ability in your body, creating an imbalance between stress and immune systems. The immune system dominates, leading to autoimmune disease arthritis. Cortisone, a chemically-similar steroidal hormone to the human body’s own cortisol, is an imperfect attempt by MDs to restore proper functioning to your stress system and balance to the stress-immune equilibrium; BUT it brings only temporary relief from arthritis because natural cortisol remains suppressed, and so homeostasis cannot be achieved. What is needed to permanently cure arthritis is a natural way of restoring cortisol functioning and overall stress-immune equilibrium. This is what Equilibrium Theory is all about – finding that natural solution to chronic disease in physiology and in nutrition, nature’s original and only true chemistry for the human body.
Impaired, hypoactive CuZnSOD in SALS is analogous to impaired, hypoactive cortisol in arthritis!
Wayne,
I had a friend from the ALS Support Group here that started with Alternative Treatments (vitimans & diet) he lost a lot of weight and it DIDN'T HELP him at all. He passed away in 18 months from time of DX. My doctor at the Cleveland Clinic says not to lose weight because weight loss is muscle loss as well. I was first told ALS in December of 1995 not confirmed until August of 2001. I take some vitimans (B-12, multivitiam, C, and E) See my profile, I eat what I want and I am still walking with a 3 wheeled walker, I go to baseball games, shopping with the wife and YES I still work. my feeling is that the only benifit to Alternative Medicine is to make someone money and that someone is not you. I know that if may work for Cancer but to date I have not seen any god for ALS. I have not read any other replys so if someone out there has had success I Apologize to them, I am just stating my feeling. Joe
Add to the discussion