The ALS Advocacy Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group
All new and active discussions & journals
brand new member
- By Myron110 · Posted January 27, 2010
- Journal · 0 replies
- My wife and i are caregivers and have a freind and client with ALS. We have had Darwin since his DX about 8 months ago. It has been a fast moving form as he is now at a place where all he can do is breath ...
Vomiting
- By barbaraf · New reply January 9, 2010
- Journal · 1 reply
- My Mom who was diagnosed with aggressive bulbar als in June, 2009, has started vomiting within the last week. She is on a feeding tube and is not given any food through her mouth. I am curious as to what ...
Advocacy Day?
- By phlesq · Posted January 5, 2010
- Discussion in National ALS Advocacy Day · 0 replies
- Will there be a candlelight vigil gathering again on Sunday evening (May 9)? Thank you for any information ...
Scared to Death
- By donhing · New reply January 4, 2010
- Discussion in Children and families · 21 replies
- I need some honest feedback from my fellow PALS who have lived through what I’m about to live through. I’ll start out by describing my current limitations and why I’m scared to death about the next 3 ...
Never Give Up Lip Blaka, NOW AVAILABLE
- By NeverGiveUp4Pals · Posted January 3, 2010
- Journal · 0 replies
- Never Give Up, Support ALS Research Lip Blaka, are Now Available Agoura Hills, CA December 30, 2009 – In January 2010, the first shipment of "Never Give Up Lip Blaka†lip balms will be available for ...
Father who had ALS
- By Danielle987 · New reply December 25, 2009
- Journal · 4 replies
- Hi Im 22 and my father died February 2008 from ALS. He started having symptons in 1994 and was diagnosed in 1995. He lived with the disease for almost 13 years. He died when he was 41.The doctors thought ...
PBP
- By barbaraf · New reply December 18, 2009
- Discussion in Familial ALS · 2 replies
- Hello. I am a new memeber and I hope this can help my Mom and our family. My mother was diagnosed with PBP in June, 2009. Her symptoms included some difficulty walking, but it was her slurred speech that ...
PBP
- By barbaraf · Posted December 17, 2009
- Journal · 0 replies
- Hello. I am a new memeber and I hope this can help my Mom and our family. My mother was diagnosed with PBP in June, 2009. Her symptoms included some difficulty walking, but it was her slurred speech that ...
My Cousin wants to drive his own chair. suggestions?
- By Tom1972 · New reply December 14, 2009
- Discussion in Familial ALS · 3 replies
- My Cousin would like to drive his own wheel chair. he no longer has hand or shoulder use. Facial and eyes are ok. He uses the ERICA system for comunication and internet. He is begging for a way to get ...
wish granting
- By chick6666 · New reply December 2, 2009
- Discussion in Children and families · 8 replies
- Recently i was diagnosed with depression and I was wondering if there is any wish granting or similar organizations that would be willing to grant my wish. My wish is to meet the Princes of Wales. I don't ...
ALS Guardian Angels 2010 Kickoff!
- By smfarr · Posted December 2, 2009
- Discussion in Children and families · 0 replies
- http://is.gd/5a52y ALS Guardian Angel Network - Supporting The ALS Guardian Angels Foundation ~ answering the desperate calls, when no one else will. We are announcing our ALS Guardian Angel Network Kickoff ...
ALS and my beloved aunt
- By Sue13 · New reply December 1, 2009
- Journal · 12 replies
- Hi there I am new here and have been reading alot regarding ALS and searching for little new discoveries but not much yet. My aunt 63 years has been suffering from ALS for the past 2 years now and has ...
Hand Assistance
- By Steph09 · Posted December 1, 2009
- Journal · 0 replies
- Hello All! It's been a while since I have written and I can't explain why but I do have a question I am hoping to find help with. My brother is to the point he has extreme difficulty pulling his pants ...
Morteza Rasouli
- By Morteza · New reply November 30, 2009
- Discussion in Medicare prescription drug benefit · 2 replies
- hi my dear . I'm Morteza Rasouli . I'm from Iran , Esfahan . My uncle has ALS disease . I will send the information of disease to you in below : About 3 years ago disease had began with pain in right ...
NEED SOME HELP
- By jeremyswafford · New reply November 20, 2009
- Discussion in ALS and the military · 3 replies
- Well im new to this... First and formost. But im a military veteran of OIF 1,2,3. I suffered a class 3 tear of the ACL out there and it still hurts till this day I went and got treatment at my local va ...
VA ALS Benefit Claim
- By mike405 · New reply November 19, 2009
- Discussion in ALS and the military · 11 replies
- This may be helpful if you're a vet filing for VA ALS benefits: As a recently diagnosed ALS patient quite by accident I discovered the Paralyzed Veterens Of America (PVA) will gladly assist in filling ...
The Pain!
- By snowball123 · New reply November 15, 2009
- Discussion in Familial ALS · 2 replies
- for about a year and a half i have been having pain in my lower back, kidney area, i have been to doctors and have had every scan and test done. they gave me an antibiotic, after about 3 months the pain ...
Last year's IPLEX demonstration
- By Eddiespaza · New reply November 9, 2009
- Discussion in National ALS Advocacy Day · 1 reply
- Dear Brothers and Sisters, Until our (Team IPLEX's) very noble action/demonstration last year (November 11 Veterans Day 2008) all previous attempts to procure IPLEX had failed. Despite continuous contact ...
ALS Support Groups
- By mike405 · Posted November 5, 2009
- Discussion in Children and families · 0 replies
- If available in your nearby area I would encourage anyone to attend ALS support group meetings. In mine, the meetings are held at the hospital once a month and I cannot express in words how appreciative ...
Inspire members featured
- By Brian · New reply November 4, 2009
- Journal · 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
- More »
- New
- Active
- Discussions
- Journals
Sign in to see more
Inspire others
Group leaders
Discussion topics
You
About this group
The ALS Advocacy Support Community connects patients, families, friends and caregivers for support and inspiration. The ALS Advocacy Support Community is sponsored by The ALS Association in partnership with Inspire.