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My Mom

mymotherwithals
  • By mymotherwithals · New reply July 29, 2010
  • Journal · 2 replies
  • She has ALS and has started biting her lower lip...mouth guards seem to gag her and don't stay in..I would appreciate any suggestion that might help. Bernadee ...

Looking for siblings of people with ALS

TRAVELGIRL
  • By TRAVELGIRL · New reply July 29, 2010
  • Discussion in Children and families · 5 replies
  • I would like to start a monthly conference call to support other siblings of people with ALS and as a support for myself. Is anyone out there interested in attending? Let me know and I will get it set ...

Recently diagnosed with ALS

4thson
  • By 4thson · New reply July 29, 2010
  • Discussion in ALS and the military · 15 replies
  • Hello, I've been diagnosed with ALS and Im living in Germany. I want to apply for VA benefits, but I don't know where to begin. Also Is there an ALSA in Germany ...

PEOPLE, PLEASE TELL ME HOW YOU KNOW THE END IS NEAR!

hopeful_relative
  • By hopeful_relative · New reply July 24, 2010
  • Discussion in Children and families · 7 replies
  • He struggles to breathe. Can no longer lay down in his bed and is now in his chair 24/7. The only thing he eats is maybe one ensure a day or one jello. Water intake is good. Some days it looks like he ...

How long does he have?

hopeful_relative
  • By hopeful_relative · New reply July 15, 2010
  • Discussion in Children and families · 16 replies
  • I wish someone could give me an idea as to how long he has? I know I should be thankful for every day that I have him in my life, but I still wish I knew ...

My Mom

mymotherwithals
  • By mymotherwithals · Posted July 7, 2010
  • Journal · 0 replies
  • She has ALS and is now biting her lower lip, mouth guards seem to gag her..any suggestions that might help would be greatly appreciated ...

My Mom

lsumsgirl
  • By lsumsgirl · New reply July 6, 2010
  • Journal · 5 replies
  • My mom Melba Martin was diagnosed with ALS in September 2009. It has progressed very rapidly. She is now in a Nursing Home because both her arms are paralyzed and she has to have 24 hour care. I knew ...

Father who had ALS

Danielle987
  • By Danielle987 · New reply July 6, 2010
  • Journal · 5 replies
  • Hi Im 22 and my father died February 2008 from ALS. He started having symptons in 1994 and was diagnosed in 1995. He lived with the disease for almost 13 years. He died when he was 41.The doctors thought ...

Biting Tongue

joe
  • By joe · New reply July 4, 2010
  • Journal · 1 reply
  • I not only bite my tongue but I also bite my lower lip and the inside of my cheeks. I’ve had ALS since 1995 but wasn’t confirmed until 2001 and the most annoying part is biting my lower lip; the lip ...

my wife wants divroce

max-3
  • By max-3 · New reply July 4, 2010
  • Discussion in Familial ALS · 1 reply
  • I have ALS (although it's a mild strain of it) and was diagnosed in 2001. I can still do some things around the house like mow lawn with the lawn tractor. Although I can barely walk, I can ride my scooter ...

Support your group and raise awareness with badges

Walter
  • By Walter · New reply July 4, 2010
  • Journal · 71 replies
  • Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...

DENTAL ISSUES - BITING TONGUE

MikeLil
  • By MikeLil · New reply June 29, 2010
  • Discussion in Familial ALS · 1 reply
  • Hello Everyone: Well, I thought we had seen most everything ALS can throw at one, but we started into a new area this past week. Quick history...wife was diagnosed in Sept '08 with bulbar onset ALS. She ...

Does it start like this?

Brandyburke
  • By Brandyburke · New reply June 26, 2010
  • Discussion in National ALS Advocacy Day · 3 replies
  • I'm sorry to trouble anyone - I've not been able to find much reliable research online (stories from surviving members etc) and I hate to intrude, but I have a question. Beginning Monday I started having ...

Mom had it..Do you think?

medicjoey
  • By medicjoey · New reply June 26, 2010
  • Discussion in Familial ALS · 15 replies
  • My Mom passed away June 09' from ALS. In the past several months I have had an onset of major muscle-atrophy and weakness, chiefly in my shoulders, upper-back, and biceps. I have noticed on occassion ...

Stopping the Feeding Tube

barbaraf
  • By barbaraf · New reply June 26, 2010
  • Discussion in National ALS Advocacy Day · 3 replies
  • My mother, age 77, was diagnosed with aggressive bulbar ALS in June, 2009. My Dad, age 81 was her caregiver. I am an only child who lives in Rochester, NY. They live in North Carolina. I get there every ...

Bowel trouble

hopeful_relative
  • By hopeful_relative · New reply June 25, 2010
  • Discussion in ALS and the military · 1 reply
  • Enemas no longer working... now he pretty much has enough meds to put him into diapers. Im wondering what is next? This disease is relentless ...

What are the odds that I will inherit ALS from my father?

paulandpaul
  • By paulandpaul · New reply June 24, 2010
  • Discussion in Familial ALS · 12 replies
  • My father is 47 and has ALS. I was really sad when the doctor told me this. And I did some research online and found that ALS might be hereditary. Will I get/inherit this disease? Is the chance high ...

My Daddy's battle with ALS has ended

purpleunicorn
  • By purpleunicorn · New reply June 15, 2010
  • Discussion in Children and families · 8 replies
  • My Daddy's battle with ALS ended Feb 3, 2010, it had gotten really bad in the last 2 weeks. He fought to the very end. I just wanted to update to everyone that has been keeping up with him and help anyone ...

ALS Books

Dolphindawn
  • By Dolphindawn · New reply June 15, 2010
  • Discussion in Children and families · 2 replies
  • Does anyone know of any good (reputable) books on ALS for patients with ALS and their families? I am looking for one about someone who has/had ALS that can offer GOOD advice and/or tip/tricks for getting ...

Please send me in the right direction

hopeful_relative
  • By hopeful_relative · New reply June 14, 2010
  • Discussion in Children and families · 9 replies
  • My uncle has been put into a nursing facility and I am trying to exhaust every effort and resource into getting him home so that I can care for him. If anyone has any advice, please do advise. He wants ...

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The ALS Advocacy Support Community connects patients, families, friends and caregivers for support and inspiration. The ALS Advocacy Support Community is sponsored by The ALS Association in partnership with Inspire.