Home - ALS Advocacy Support Community - Inspire

The ALS Advocacy Support Community connects patients, families, friends and caregivers for support and inspiration...More about this group

All new and active discussions & journals

Depression/anxiety/winter blahs'

By BarbH · New reply 3:20 pm
Discussion in Children and families · 2 replies
One never really knows what is going through another person's mind. Yesterday was my husband's 45th birthday. That is amazing for her was diagnosised with ALS 14 years ago. He has done well, although ...

Ken Patterson reaches Washington D.C.

By BobbyB · Posted yesterday at 9:26 pm
Discussion in National ALS Advocacy Day · 0 replies
Ken Patterson reaches Washington D.C. Rolling Over ALS Ken Patterson Sr. has ALS. He is riding in a motorized wheelchair from Florida to Washington, D.C. This video is from YouTube. There is news clip ...

Service Update

By Beth · Posted yesterday at 4:00 pm
Journal · 0 replies
We have some security updates to apply to our servers and we're planning to install the updates on Friday morning at 7:00 AM EST. There will be a brief period of downtime for all sites (expected to be ...

breath

By greensmile · New reply yesterday at 2:14 am
Journal · 8 replies
hello and happy purim and happy easter.my vent was upgraded to the top with total back-up in every aspect.now i'm on the vent just under 24 hrs per day as compared to 20 up till now.still working but ...

pics

By greensmile · Posted May 13, 2008
Journal · 0 replies
well ,,hello to all, i've finally put a pic of me up together with my grandsmile.he loves sitting on my lap and doing bagels(doughnuts) and always holds on to my hoses.it's funny because he thinks that ...

Why are we here?

By Brian · New reply May 10, 2008
Journal · 46 replies
When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

New feature - additional reply notifications

By Walter · New reply May 9, 2008
Journal · 19 replies
Hello everyone. We just added a new feature to help you follow the conversations that you are participating in. You will now get a notification whenever someone replies directly to one of your replies ...

My mumma passed away yesterday . . .

By afbrown5 · New reply May 8, 2008
Journal · 7 replies
My mumma, Debra Grimm, passed away in her sleep yesterday morning. She is finally healed, and dancing like she never did before. Please pray for our family and that we may have the strength to pull through ...

Explaining to kids

By WayneLampe · New reply May 5, 2008
Journal · 1 reply
Have you been able to explain things ...

Why does God allow Pain & Suffering

By WayneLampe · New reply May 4, 2008
Journal · 2 replies
We often look for a physical cure but we know our spirit inside is who we really are. My web site is devoted to helping people seek the truth about God and Jesus Christ. If posted 16 lessons about 30 ...

feeding tube

By helen · New reply May 1, 2008
Journal · 6 replies
i was scheduled for a feeding tube next week but now sick with a cold and i have to reshedule but i have a question about the tube. i am a stomach sleeper , will i be able to sleep on my side or belly ...

New feature - See what you've replied to

By Walter · New reply April 30, 2008
Journal · 27 replies
Hello everyone. We just added a feature that many of you have requested - a list of all of the posts that you have replied to. To get to your list, all you need to do is: 1. Sign in 2. Click "Me" in the ...

Frustration!

By angelplus5 · New reply April 19, 2008
Journal · 4 replies
Good morning to all. Since writing is my outlet, bear with me please. As a nurse who has cared for ALS patients, I have never had to deal with the insurance side of this disease until I became a patient ...

my life in march

By DEBRA · New reply April 17, 2008
Journal · 1 reply
Hello. I'm doing fine. Just a note to let you know all is well. I have had a lot going on as usual. So much for my short updates. March came and went before I had a chance to finish typing this and then ...

Filing For VA Compensation

By smith48327 · New reply April 17, 2008
Journal · 1 reply
I have had a few respondents from WW II, Korea and Vietnam eras ask if it's worth applying for benefits, since ALS isn't considered a service-connected disability by the DVA. The answer to the question ...

strange beats

By greensmile · New reply April 17, 2008
Journal · 2 replies
hi every one, it has been discovered that have periventricular beats or contractions.the docs say i have nothing to worry about,but i am concerned.does any one out their know about this?if so please fill ...

BiPap intervention

By Ann8 · New reply April 15, 2008
Discussion in Familial ALS · 15 replies
My neurologist has suggested I start using BiPap since I have had a slight decrease in my ability for intake of air. I would appreciate any comments pro or con regarding experiences with BiPap. God Bless ...

Changes that you have requested are on the way

By Beth · New reply April 7, 2008
Journal · 16 replies
Hello everyone. We've been hard at work on many of the great suggestions that you've sent us. This week we've been cooking up some changes to the group home page, and hope to make them public very soon ...

Welcome from TeamInspire!

By TeamInspire · New reply April 7, 2008
Journal · 35 replies
Hello, old friends and new. Today is a big day for us! We have made numerous improvements to your community, most that were suggestions from you. As you can see the site is very different then before ...

Welcome!

By Brian · New reply April 7, 2008
Journal · 19 replies
I am pleased to present Inspire 2.0 -- the result of many months of fun and hard work. We have made numerous improvements to your community, the vast majority of which are ideas that came from you! We ...

New members

Discussion topics

You

About this group

The ALS Advocacy Support Community connects patients, families, friends and caregivers for support and inspiration. The ALS Advocacy Support Community is sponsored by The ALS Association in partnership with Inspire.