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iplex
- By kmsr · New reply 1:54 pm
- Discussion in Children and families · 1 reply
- Does anyone know how to get iplex in the US? If not, how would one get enrolled in Italy? My father's disease is progressing rapidly and I would really like to give iplex a try. The neurologists I have ...
I have a question about ALS symptoms?
- By CMAC143 · New reply yesterday at 11:22 am
- Journal · 9 replies
- I joined this site a few months ago, but have never actually posted anything. I'm not really sure how to go about this, but here goes...my husband (Charley) was diagnosed with ALS on 12/7/08. He has been ...
Searching For WV PALS
- By Steph09 · New reply yesterday at 10:27 am
- Journal · 5 replies
- My newly diagnosed brother lives in Charleston, WV. The closest ALS support group is in Pittsburgh, PA. That's just not acceptable. I am searching for other WV PALS and CALS in the hopes a support group ...
Emotional Rollercoaster
- By Steph09 · New reply July 1, 2009
- Journal · 11 replies
- Here is what I hate about ALS. Just exactly that! I hate that ALS makes me hate. I hate that it makes me feel powerless and I don't even have the damn disease!! I try to encourage my brother to do the ...
ALS--A PRESUMPTIVE DISEASE FOR-ALL-VETERANS
- By timecard · New reply June 30, 2009
- Discussion in ALS and the military · 8 replies
- HAS ANYBODY HEARD ANY MORE ABOUT THE LEGISLATION THAT VA SECRETARY-JAMES PEARSE-SAID WOULD BE EFFECTIVE AUG. 1-TO MAKE -ALS -A PRESUMPTIVE DISEASE FOR ALL VETS. OUR VA OFFICE HERE IS MS. TOLD ME THEY ...
STATINS AND ALS-LIKE SYNDROME
- By moaningminnie · Posted June 29, 2009
- Discussion in National ALS Advocacy Day · 0 replies
- When researching information on peripheral neuropathy I found this information: “For susceptible individuals, the use of a statin drug can interfere with proper functioning of peripheral nerves. Researchers ...
True Story: The Foolish Gentlemen
- By KarenDawn · New reply June 24, 2009
- Journal · 4 replies
- The Foolish Gentlemen 6-19-09 I sat in the corner sipping my wine Glad to be out in, it’s been a long time The band was playing, the lights were dimmed When a man came to me and asked me to dance. Take ...
ALS RESIDENCE
- By Barry2 · New reply June 24, 2009
- Discussion in Children and families · 17 replies
- If a residence for individuals with ALS were to be built what do you think it would have to look and feel like to make it appealing to an ALS resident. Let's assume it would be a 10 private bed room house ...
My Best Friend
- By healALS · Posted June 23, 2009
- Journal · 0 replies
- My cousin, who was my best friend, just passed a month ago from ALS. It was a difficult four years, although out of it all, came positive experiences and lots of love. We created a lifetime of cherished ...
Share your story via video!
- By TeamInspire · New reply June 23, 2009
- Journal · 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Support your group and raise awareness with badges
- By Walter · New reply June 22, 2009
- Journal · 39 replies
- Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...
BIG FAT LOVE - My Friend Frank Teixeira
- By AnMre · Posted June 19, 2009
- Discussion in Children and families · 0 replies
- My schoolmate, Frank, was diagnosed with ALS a few years back. Before the diagnosis, he was a lifelong surfer and enjoyed riding motorcycles. He worked as a prison guard down in San Diego. At one point ...
Our Journey of Nineteen Month's in Hell with Lou Gehrig's Disease
- By CharlesHaleSrWife · Posted June 14, 2009
- Discussion in Children and families · 0 replies
- Hello to all, I lost my Husband of 25 yrs to A.LS. 7yrs ago He was 42 and it took him in only 19 month's. I saw thing's that I wish I had not seen I stopped being a house wife and began being a caretaker.this ...
Talkingtracheotomy
- By pjf · New reply June 14, 2009
- Journal · 12 replies
- Will someone with a trach & respirator or ventilator PLEASE respond. How is it working? Are there problems associated with these things? My husband is on a bi pap at night & more frequently during the ...
What are the odds that I will inherit ALS from my father?
- By paulandpaul · New reply June 14, 2009
- Discussion in Familial ALS · 7 replies
- My father is 47 and has ALS. I was really sad when the doctor told me this. And I did some research online and found that ALS might be hereditary. Will I get/inherit this disease? Is the chance high ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · New reply June 12, 2009
- Journal · 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Marriage... Yet another loss due to ALS
- By Eddiespaza · New reply June 11, 2009
- Discussion in National ALS Advocacy Day · 6 replies
- My name is Eddie, I am 50 years old, I was diagnosed the 2005 I live in the Chicagoland area and own my house. I have been married for 26 years, it seems like my marriage is going to be a fatality of ...
I am happy...
- By metaroc · New reply June 10, 2009
- Journal · 5 replies
- Hi I am Mike Rayl I am new here too... I am a PAL. dx/03/99 onset/6/96 I have seemed to stabilized. I eat regular food, but i used to choke... it seems to have stopped. I talk with a computer, a Franklin ...
NEW BOOK ON LOU GEHRIG'S DISEASE
- By CharlesHaleSrWife · New reply June 10, 2009
- Journal · 3 replies
- HI TO ALL IF YOUR IN THIS SIGHT THEN YOU PROBALY HAVE SEEN A.L.S. I HAVE WROTE A BOOK MY HUSBAND DIED 7 YRS AGO FROM A.L.S.THE BOOK WAS ONE OF THE HARDEST THING'S THAT I'VE EVER HAD TO FACE AND WRITE ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · New reply June 9, 2009
- Journal · 36 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
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The ALS Advocacy Support Community connects patients, families, friends and caregivers for support and inspiration. The ALS Advocacy Support Community is sponsored by The ALS Association in partnership with Inspire.