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Discussions

And the winner of the post chemo joint pain contest is...........ARTHRITIS

jeaniet
  • By jeaniet · Posted yesterday at 4:28 pm
  • In Side effects of treatment · 1 reply
  • For those who have been following the discussions about the post chemo pain that some of us have.......the MRI confirmed what the PET indicated. I have osteoarthritis in my shoulders. No Rotator Cuff ...

Alternatives to Taxol, etc

JohnnyL
  • By JohnnyL · Posted yesterday at 12:08 pm
  • In Newly diagnosed · 2 replies
  • My sister just underwent surgery for ovarian cancer. Started treatment of Taxol, and suffered severe reaction, seizures, etc. Information is sketchy, but apparently the alternative chemo treatment needs ...

help

snowwhite83
  • By snowwhite83 · Posted yesterday at 6:19 am
  • In Young survivors · 1 reply
  • I only joined this site today but I can see under posts that there are seperate topics, ie. this one i have put under young survivors. Is there a way to go direct to different topic groups. Someone has ...

why not go for avastin for first line chemo?

mathwhiz
  • By mathwhiz · Posted yesterday at 3:53 am
  • In Treatment · 11 replies
  • everyone here seems to have carbo/taxol for first time chemo, why can't we go for drugs like avastin or the platinum based drugs directly for first time chemo? why wait for recurrence before trying out ...

Another sister taken by The Beast

Jennali
  • By Jennali · Posted July 2, 2009
  • In Late stage · 5 replies
  • A woman who was doing chemo at the same time as me for an ovarian cancer recurrence died on Monday. She had been heavy on my mind this week, so tonight I Googled her name and found the sad news. Her husband ...

What is with my appetite?

moorejmo
  • By moorejmo · Posted July 2, 2009
  • In Treatment · 13 replies
  • Okay- I had my first treatment a week ago today. The last 2 days I have been starving! I mean...I eat and then I want to eat again 2 seconds later. If I keep this up I am going to need some new pants ...

Hope4seka: The switching of Hats while Fighting Cancer

kibbitzqueen
  • By kibbitzqueen · Posted July 2, 2009
  • In Caregivers and family members · 1 reply
  • My mother felt the very same way. The ironic thing is, she had cancer and passed away while I was in what I call 'remission-ish'. She found out about her cancer in February (on my birthday mind you) and ...

It's back continued

zircons
  • By zircons · Posted July 2, 2009
  • In Recurrence · 7 replies
  • Well, I got confirmation yesterday that I do have recurrence. There are two 1 cm nodules on my left pelvic area. My doctor has suggested that I be in a Phase 1B clinical study. It would consist of carboplatin ...

What should you eat or take to build good cells?

kimsmom
  • By kimsmom · Posted July 2, 2009
  • In Late stage · 8 replies
  • My daughter has had but one chemo..carbo/taxol combo, and it was done IV. She is still leaking ascites fluid and they cannot do the IP catheter until that stops. She is worried about neuropathy and anemia ...

Twelve years and going strong

LilySue
  • By LilySue · Posted July 2, 2009
  • In Survivor stories · 6 replies
  • July 1997, I was diagnosed with stage IIIC. Had a long remission and then recurrence four years ago with huge metastatic ovarian tumor in my chest. Had surgery, no chemo and am still NED. Life is great ...

Roll call for the Conference

hinsopa
  • By hinsopa · Posted July 2, 2009
  • In OCNA Annual Conference · 6 replies
  • Let's get a list of who's coming! Maybe just first names so we'll recognize our nametags? I'll start. I'm looking forward to meeting you all. Patsy in NC ...

Parking Rant!

kibbitzqueen
  • By kibbitzqueen · Posted July 1, 2009
  • In What, me worry? · 24 replies
  • Yet again I was 'confronted' if you will, with a rude comment from some man I didn't know in a Parking lot. It seems he took it upon himself to be judge and jury in a situation he knew nothing about by ...

drinking Hydrogen perioxide, Anyone tried this?

deeanlan
  • By deeanlan · Posted July 1, 2009
  • In Treatment · 16 replies
  • My friend has breast cancer and went to a natural doctor and since it was stage I they believe in using natural treatments. One treatment she is using is Hydrogen peroxide (pharm.grade) drops in her water ...

cost of chemotherapy for uninsured patient

mathwhiz
  • By mathwhiz · Posted June 30, 2009
  • In Financial and insurance issues · 16 replies
  • hi, my mother doesn't have insurance nor does she qualify for medical/medicare because of immigration status. She is 65. so I am going to be paying for surgery/chemotherapy out of my pocket. Does anyone ...

Recurrence / Residual CLEAR CELL ????

GEPI
  • By GEPI · Posted June 30, 2009
  • In Help desk · 7 replies
  • Hello, So many on this site are successfully battling with residual disease or multiple recurrences, but I would appreciate it if I could hear from any of you diagnosed with clear cell and facing recurrence ...

Virtual Lemonade Stand - Kelly Ripa

acosta1027
  • By acosta1027 · Posted June 30, 2009
  • In Awareness and fundraising events · 1 reply
  • I received a message from Electrolux and Kelly Ripa regarding their latest OVCA fundraiser. It is a virtual lemonade stand that you create and send to friends or post on Facebook or Twitter. For every ...

doctor recommending chemo before and after surgery

mathwhiz
  • By mathwhiz · Posted June 29, 2009
  • In Treatment · 10 replies
  • mother is diagnosed with stage IIIb ovarian cancer. oncologist said size of tumor is big and there are many small nodules all over the peritoneal area. In addition the big tumor might be adhered to the ...

best doctor,best hospital in SF bay area

mathwhiz
  • By mathwhiz · Posted June 29, 2009
  • In Treatment · 8 replies
  • hi, my mother has just been diagnosed with stage III ovarian cancer. We live in san jose, CA, so i am wondering who is the best doctor to visit to do the surgery, and where is the best hospital to do ...

The kindness of strangers

Patricia123
  • By Patricia123 · Posted June 29, 2009
  • In Good news · 23 replies
  • I have been overwhelmed by the "kindness of strangers" and wonder if this has happened to others ...

Consuming Alcohol while on Taxol/carbo

moorejmo
  • By moorejmo · Posted June 28, 2009
  • In Side effects of treatment · 13 replies
  • I was wondering if any of you had advice about drinking alcohol while receiving treatment. Before everything...I enjoyed a glass (or 2) of wine with dinner. I Just had my first treatment on Thursday and ...

Register for the Ovarian Cancer National Alliance's annual conference

OCNA: The Ovarian Cancer National Alliance Invited to Testify on Capitol Hill. See OCNA Policy Director's testimony: http://tinyurl.com/n6k8wd

OCNA: Johanna's Law introduced in the House. Take Action: http://bit.ly/1ddLKL

OCNA: Only a Few More Days to Receive Discounted Hotel Room for OCNA Conference! Deadline June 15th. Go to http://tinyurl.com/kt5yvc

OCNA: 615 page health care reform proposal from Mr. Kennedy's office: http://help.senate.gov/BAI09A84_xml.pdf

OCNA: our discussion on health care reform representing OvCa Community. Go to http://tinyurl.com/l9zm2k

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