I want OFF This Roller Coaster,,,now!!!!

• By mary_randall
• Posted July 22, 2008 at 9:00 pm

I will be thinking of you, good thoughts and best wishes mary

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• By jolock2004
• Posted July 23, 2008 at 7:52 am

I had to have the ascites drained from me last Dec,that coupled with suspicious ct and pet scans put me back on chemo. Sorry to have to tell you that. I have always had a little bit of fluid in that area,but it finally got really bad,and I was in extreme pain. I hope all goes well with your up coming tests~~~Joanne

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• By FavoriteAunt
• Posted July 23, 2008 at 8:04 am

Yes, this is one roller coaster ride I'd give up too, but try not to panic. Wait to see what the blood test shows and the CT scan. Just when you think you can exhale, something else happens.

I had blood drawn on Mon. so let's hope we both get good reports. Hang in there.
Prayers and hugs,
Jo

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• By Eileen1941
• Posted July 23, 2008 at 10:04 am

Hi Phoenix,

My prayers are with you too. I can relate totally to how you feel. I had CT scans yesterday and get the results tomorrow. I'm trying to keep my head on straight until then, but think I'll need some "Crazy Glue" to do it! I know I have a recurrence, we are just trying to see if the Doxil is doing any good. I've had a lot of skin problems from the Doxil so I don't know if I can really tolerate the medication. Guess I'll know more tomrrow. So lets just hang in there together! Please pass the "Crazy Glue"!! Love, Eileen

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• By melf
• Posted July 23, 2008 at 11:07 am

We must all be at the same "Amusement park". My ride will reach its peak next week when I too go in for "the blood test". Im a wreck as well and am trying to keep myself together and not think about it. I've been real grouchy and not sure that I feel quite normal either. Hoping its all in my head...

"Feel the fear and do it anyway". I have it pinned over my desk where I can see it.

Prayers to us all for good results!

MEL

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• By songbird78
• Posted July 23, 2008 at 11:53 am

Mary I can really really understand, Im like you all on that rollercoaster, and just got to ride, its scary sometimes EACH time I go for that test for CA I get worked a week before, I got another one coming July 30th. Just hang in there, I wishing you GREAT results you and JO and hoping for the best outcome for you both. And sending you hugs too....

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• By momanderson920
• Posted July 24, 2008 at 1:04 am

You are in my prayers. I know this is very anxiety provoking. I will pray that God will give you a peace. You could be going through all this anxiety for nothing. Hang in there.

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• By chelle64
• Posted July 24, 2008 at 9:57 am

Take five deep breathes and don't waste another precious moment worrying. I will pray for you.

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• By ThePhoenix
• Posted July 24, 2008 at 10:02 am

Part 1 ca125 results - 10!!!!!!!!! Down from 12. Whew!! I go for the ct scan today at 2pm

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• By ReneeK1
• Posted July 24, 2008 at 5:03 pm

CA125 results are awesome! Keeping fingers crossed the CT scan is fine. It sucks that we have to constantly be worried. Hate it hate it hate it.

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• By verlinda
• Posted July 25, 2008 at 1:25 am

You're in my prayers. Let us know what the CT scan shows. With that CA125, things are looking up!

Blessings

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• By Eileen1941
• Posted July 25, 2008 at 11:50 am

Hi Phoenix,

Great going on the CA-125!! Congratulations!! Good luck on the scans.

I had some good news/bad news on my scans. My cancer is quite wide spread: pelvis, lung, spleen and thyroid. But none of the areas seem to be growing right now. So we are going to continue with the Doxil, but at a lower dose. Hope my skin can tolerate that because otherwise I feel pretty good.

Please let us know the results of your scans as soon as you can. Keeping you and everyone on this site in my prayers! We are a strong group and not willing to back down to cancer or anything else!! God Bless!
Eileen

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• By VictoryLight
• Posted July 28, 2008 at 3:07 pm

Those are awesome results! My next check is in a couple of weeks and I can't say that I don't get nervous about it even though my numbers are holding low. Something I learned way back in the beginning of all this is that our human frames just weren't meant to go through so many ups and downs. We have to keep breathing and have a Big Hope. As you can imagine, I can jump back into that roller coaster car quicker than a greyhound on RedBull but when I am grounded in my Big Hope, God, it doesn't happen quite as much or as dramatically. Please let us know what you find out w/ the CT scan. Don't give up!

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• By ThePhoenix
• Posted July 28, 2008 at 9:08 pm

Yipeee!!!! CT scan was clear!!! The bad news, I really DID gain 6 pounds in 2 months. Oops :)

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• By gg1
• Posted August 8, 2008 at 12:51 am

CONGRADULATIONS! Phoenix! Now you can soar with those eagles! I'm right there where you were last week (me supposed to have my first 3 month check up and ca 125 test on Aug 5th, only to be canceled till the 18th) so now I have all this extra time to fret and wonder if these symptoms are lingering ones or new and indicative of a recurrance. I'm sick too so that only complicates my feelings. BUT your results remind me to be faithful and give me much hope. Thank you for that. I'll always pray for good health of mind, body and spirit, for all of us.
Again, CONGRADULATIONS!

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• By jt1
• Posted August 8, 2008 at 12:20 pm

Hi The Phoenix,
I was just wondering what your last ca 125 was and what is it now? I also get very bloated but my ca 125 was a 5. The doctor will do a ct scan on the next visit. I was told after the surgeries I did not have ascites and was a stage 1a but I am very bloated all the time. I was told that in menopause your weight shifts and I think all of mine went to my stomach and I also gained 5 pounds since the last visit and hardly eat anything-if this makes you feel any better. JT

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• By jt1
• Posted August 8, 2008 at 12:21 pm

to phoenix,
one more question, what is your stage and when were you diagnosed and have you had any reoccurences? JT

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• By jt1
• Posted August 8, 2008 at 12:23 pm

Hi reneek1,
I was curious as to your stage and when were you diagnosed and have you had any reoccurences? You look so healthy!!!! JT

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• By ReneeK1
• Posted August 8, 2008 at 12:36 pm

Hi JT, I was diagnosed Dec. 07, stage 3C. I have not had a recurrence, (hopefully NEVER will!); actually just was "officially" in remission in July, but it's a fear that I pretty much have to deal with daily. All my stats are on my 'about me' section if you click on my name...

PS this picture was taken last May 07 before I was diagnosed and went through chemo. I WAS healthy until I got this crap!

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• By Deb49
• Posted August 8, 2008 at 4:54 pm

Hi Everyone,

I'm having a ct scan on Monday after having a rising ca125. This could be my first ride on this roller coaster. I was diagnosed July '07 and had surgery in Aug. I finished chemo March '08 and I'm in a double blind study for the drug avastin. My ca125 was 22 in May and 37 in June. In July it went to 112. I was retested the other day and it was 145. Now my stomach feels bloated and crampy. I saw my gyn/onc 3 weeks ago and he said he thought I was doing great and he felt nothing in the exam. The June ct scan was the best one yet. Could things change so fast or could this be fluid building up? It was the acities symptom that let me know something was wrong before the diagnosis last year. I had the fluid drained a few weeks before the surgery but it came back.
I would appreciate your comments.

Deb

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