The Ovarian Cancer National Alliance Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

All new and active discussions & journals

The Little Things...

goldi111
  • By goldi111 · New reply 7:58 pm
  • Journal · 5 replies
  • Today I went in to my doc for a mammogram and pre-op kidney and liver blood work. I was feeling very teary today, don't know why..like anything could make me burst into tears. (I was feeling a little ...

Doxil- round 3

okeedoakee
  • By okeedoakee · New reply 7:56 pm
  • Journal · 4 replies
  • Not sure whether round 4 of Doxil will be happening. My side effects are not making my doctor happy and he may change the drug. I have had ongoing rashes and hand and foot syndrome. One week the rash ...

why not go for avastin for first line chemo?

mathwhiz
  • By mathwhiz · New reply 7:37 pm
  • Discussion in Treatment · 7 replies
  • everyone here seems to have carbo/taxol for first time chemo, why can't we go for drugs like avastin or the platinum based drugs directly for first time chemo? why wait for recurrence before trying out ...

Any Suggestions

vicki40
  • By vicki40 · New reply 7:11 pm
  • Journal · 5 replies
  • I've posted before letting everyone know about my cancer, Ovarian, 7 years, over 80 chemos, running out of options, NOW i have bowel cancer. Doc picked up a mass 4.5cm inside the bowel area. Thinks it ...

Parking Rant!

kibbitzqueen
  • By kibbitzqueen · New reply 6:58 pm
  • Discussion in What, me worry? · 23 replies
  • Yet again I was 'confronted' if you will, with a rude comment from some man I didn't know in a Parking lot. It seems he took it upon himself to be judge and jury in a situation he knew nothing about by ...

Steroids

dardar38
  • By dardar38 · New reply 6:38 pm
  • Journal · 9 replies
  • I am sick of the side effects of the dexamethasone that they give me orally before my gemzar treatment. I have gained 10 pounds since I started Gemzar on 5/9 - lots of water retension. (I had been on ...

What is with my appetite?

moorejmo
  • By moorejmo · New reply 5:57 pm
  • Discussion in Treatment · 12 replies
  • Okay- I had my first treatment a week ago today. The last 2 days I have been starving! I mean...I eat and then I want to eat again 2 seconds later. If I keep this up I am going to need some new pants ...

Another sister taken by The Beast

Jennali
  • By Jennali · New reply 5:41 pm
  • Discussion in Late stage · 4 replies
  • A woman who was doing chemo at the same time as me for an ovarian cancer recurrence died on Monday. She had been heavy on my mind this week, so tonight I Googled her name and found the sad news. Her husband ...

Estrogen Sensitivity and Stuff to Avoid?

Brown_Eyes
  • By Brown_Eyes · New reply 5:10 pm
  • Discussion in Side effects of treatment · 22 replies
  • Hey Ladies, I'm going to see my Dr on Monday for a CT scan, Avastin/placebo etc... And I have a list of questions for him. One question is are there things like black cohosh or soy that may aggravate ...

What should you eat or take to build good cells?

kimsmom
  • By kimsmom · New reply 4:56 pm
  • Discussion in Late stage · 7 replies
  • My daughter has had but one chemo..carbo/taxol combo, and it was done IV. She is still leaking ascites fluid and they cannot do the IP catheter until that stops. She is worried about neuropathy and anemia ...

cost of chemotherapy for uninsured patient

mathwhiz
  • By mathwhiz · New reply 4:37 pm
  • Discussion in Financial and insurance issues · 16 replies
  • hi, my mother doesn't have insurance nor does she qualify for medical/medicare because of immigration status. She is 65. so I am going to be paying for surgery/chemotherapy out of my pocket. Does anyone ...

And the winner of the post chemo joint pain contest is...........ARTHRITIS

jeaniet
  • By jeaniet · Posted 4:28 pm
  • Discussion in Side effects of treatment · 0 replies
  • For those who have been following the discussions about the post chemo pain that some of us have.......the MRI confirmed what the PET indicated. I have osteoarthritis in my shoulders. No Rotator Cuff ...

Alternatives to Taxol, etc

JohnnyL
  • By JohnnyL · New reply 3:18 pm
  • Discussion in Newly diagnosed · 1 reply
  • My sister just underwent surgery for ovarian cancer. Started treatment of Taxol, and suffered severe reaction, seizures, etc. Information is sketchy, but apparently the alternative chemo treatment needs ...

help

snowwhite83
  • By snowwhite83 · New reply 3:17 pm
  • Discussion in Young survivors · 1 reply
  • I only joined this site today but I can see under posts that there are seperate topics, ie. this one i have put under young survivors. Is there a way to go direct to different topic groups. Someone has ...

My first day looking for answers...

nickelle33
  • By nickelle33 · New reply 3:11 pm
  • Journal · 19 replies
  • I found this site hoping to find people like me and my mom. I am trying to be positive, but I am so scared this time. I have no idea what I would do with out my mom. She is my best friend. Who will I ...

Help!! CA 125 numbers and lymphodima??

nickelle33
  • By nickelle33 · Posted 3:03 pm
  • Journal · 0 replies
  • Can Lymphodima cause CA 125 numbers to increase? My mom's leg has swollen over the last two month. She has Ovarian for the third time and is on Chemo monthly for good. She just had a CA 125 done in June ...

drinking Hydrogen perioxide, Anyone tried this?

deeanlan
  • By deeanlan · New reply 2:33 pm
  • Discussion in Treatment · 16 replies
  • My friend has breast cancer and went to a natural doctor and since it was stage I they believe in using natural treatments. One treatment she is using is Hydrogen peroxide (pharm.grade) drops in her water ...

The kindness of strangers

Patricia123
  • By Patricia123 · New reply 2:19 pm
  • Discussion in Good news · 23 replies
  • I have been overwhelmed by the "kindness of strangers" and wonder if this has happened to others ...

Apprehension and Anxiety

goldi111
  • By goldi111 · New reply 12:48 pm
  • Journal · 11 replies
  • Part of me wishes it was time for my appointment with the surgeon on Tuesday. The other part of me wishes the days could just go on & on because I need more time to adjust to this new idea of being "sick ...

Recurrence / Residual CLEAR CELL ????

GEPI
  • By GEPI · New reply 12:47 pm
  • Discussion in Help desk · 7 replies
  • Hello, So many on this site are successfully battling with residual disease or multiple recurrences, but I would appreciate it if I could hear from any of you diagnosed with clear cell and facing recurrence ...

Sign in to see more

Don't have an Inspire account? Join now!
Forgot password?
Keep me signed in on this computer until I sign out

Inspire others

Register for the Ovarian Cancer National Alliance's annual conference

OCNA: The Ovarian Cancer National Alliance Invited to Testify on Capitol Hill. See OCNA Policy Director's testimony: http://tinyurl.com/n6k8wd

OCNA: Johanna's Law introduced in the House. Take Action: http://bit.ly/1ddLKL

OCNA: Only a Few More Days to Receive Discounted Hotel Room for OCNA Conference! Deadline June 15th. Go to http://tinyurl.com/kt5yvc

OCNA: 615 page health care reform proposal from Mr. Kennedy's office: http://help.senate.gov/BAI09A84_xml.pdf

OCNA: our discussion on health care reform representing OvCa Community. Go to http://tinyurl.com/l9zm2k

Group leaders

Discussion topics

You

About this group

The Ovarian Cancer National Alliance Support Community connects patients, families, friends and caregivers for support and inspiration. The Ovarian Cancer National Alliance Support Community is sponsored by the Ovarian Cancer National Alliance in partnership with Inspire.