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Understanding

Coping with the lack of understanding or being believed and how to help others understand

New GP diagnoses, many questions and concerns

jmullen
  • By jmullen · New reply 10:35 pm
  • 8 replies
  • I have been recently diagnosed with gastroparesis after many of tests; my doctor has seemed to dismissed it by telling me "there are not always answers." And concluding our visit after confirming my question ...

Physicians List

msc
  • By msc · New reply 9:54 pm
  • 22 replies
  • Im looking for GI specialists who specialize in slow transit constipation or colonic inertia. Anyone care to nominate their physician? Name of physician and where he/she located. thx ...

Idiopathic Gastroparesis/ Ehlers-Danlos Syndrome

deathofurheart
  • By deathofurheart · New reply yesterday at 8:19 am
  • 23 replies
  • Hi everyone. I'm new here. I am interested in talking to anyone with gastroparesis caused by Ehlers-Danlos Syndrome. I was diagnosed with idiopathic gastroparesis a year ago and waiting on insurance to ...

Child with Severe GP want to understand better

yweinst
  • By yweinst · New reply November 15, 2009
  • 9 replies
  • Hello, I have posted here a few times about my 3 and half year old who has severe GP amoung other complications. I was hoping that some of you who are adults can describe the pain you are in. My yoi is ...

went to doctor today

Juliettesue77
  • By Juliettesue77 · New reply November 11, 2009
  • 2 replies
  • I went to the doctor today in the University of Iowa, center of digestive disease. Going back up on December 2nd to have a small bowel manometry. Is this the test they use to see if I have psuedo obstruction ...

Checking for true vagus nerve damage?

Lauren2006
  • By Lauren2006 · New reply November 10, 2009
  • 29 replies
  • Does anyone know how I can (and who) and what test I can ask for to truly see if my vagus nerve is damaged? I know the GES only shows how you empty on one day, and is variable from day to day. What I ...

Could drugs be making my symptoms worse?

gaa
  • By gaa · New reply October 22, 2009
  • 17 replies
  • I was diagnosed with severe GERD over five years ago, but just a week ago I was also diagnosed with GP. It is clear from the posts on this site that my symptoms are realatively mild, but I would still ...

Is it true, "colonic Inertia" that ostomies are only 13% effective?

JCatGuy
  • By JCatGuy · New reply October 12, 2009
  • 19 replies
  • Just came from my Colorectal Surgeon and blew my mind after all my GI MDs ((I've seen many) and with after 5 days of Scintigraphy, the contrast only reached cecum to rt. side of Ascending colon...I never ...

A question about raising awareness of motility problems!

Lauren2006
  • By Lauren2006 · New reply October 12, 2009
  • 3 replies
  • I know someone just posted yesterday about raising awareness about GP. I think that ANY effort to raise awareness about these to little understood disorders is great! But I was thinking if there is anyway ...

Testing for Cipo

JEM
  • By JEM · New reply October 3, 2009
  • 2 replies
  • Hi. I am wondering if anyone can give me some info on testing for CIPO. I have GP and take domperidone but feel I have some sort of motility problem with my bowels. I have been on a liquid diet of ensure ...

Failing to eat correctly....

Wondering79
  • By Wondering79 · New reply September 23, 2009
  • 15 replies
  • Hi everyone.. I haven't really been active on this site, but come to the boards every once in while for tips and insight on GP. How do you finally start eating correctly for GP? I had mild GP for about ...

Mold Related to Digestive Disorders?

Mom2Tierney
  • By Mom2Tierney · New reply September 21, 2009
  • 2 replies
  • We have lived her for 13-plus years and my question is this. My daughter, Tierney, who passed away March 21, 2009, was immuno-compromised due to residual leakage around one remaining hole in her heart ...

Went to doctor today

Juliettesue77
  • By Juliettesue77 · New reply September 17, 2009
  • 10 replies
  • I went to the doctor today for my recheck after upperscope. He said that I have severe gastroparesis and IBS with constipation. I am a little confused about this. He told me to relax and eat soft foods ...

New to Gastroparesis

Wondering79
  • By Wondering79 · New reply September 16, 2009
  • 8 replies
  • Hi everyone!! I am very new to the world of gastroparesis. A little info about me.. I was diagnosed in 2005 with mild gastroparesis and my doctor said everything was fine, not to worry and just treated ...

VACATION

plushy
  • By plushy · New reply September 13, 2009
  • 2 replies
  • Hi Everyone, I am going on a 4 day mini vacation and i am a little scared as to how i will manage. I am off to Nags Head N C Its a nice place to relax and watch the ocean but i worry about my GP and since ...

got new news from the doc..not sure what it means

beachbum16
  • By beachbum16 · New reply September 4, 2009
  • 4 replies
  • So, today the doctor called and finally gave me percentages from my GP test. She had called about a week and half ago and said i had GP but today she told me some new things that i don't know how to quiet ...

Has Anyone been To G-Pact.org ?

Darkanian
  • By Darkanian · New reply August 16, 2009
  • 4 replies
  • Has anyone been to G-pact.org ? This is a site for Gastroparesis /CIP. Very helpful. They also are on facebook. If you search for Gastroparesis. In regards, to recipes, I find that when I cannot eat which ...

Help me deal with Pseudo Obstruction

shamrockmom
  • By shamrockmom · New reply August 9, 2009
  • 8 replies
  • I have had 3 complete bowel obstructions within the last 5 years. As a result I found out I have Gastroparesis and now Pseudo Obstruction. I have been unable to tolerate solid food since my last obstruction ...

FINDING SOMEONE WHO REALLY KNOWS ABOUT GP

plushy
  • By plushy · New reply August 4, 2009
  • 14 replies
  • Hi all, I am so confused on all of the advice i have been getting from the so called experts, I went to a nutrition person who charged me 95 bucks to agrue with me and tell me i do have diabetes when ...

Gallbladder pain

Nikki333
  • By Nikki333 · New reply July 31, 2009
  • 1 reply
  • So glad to find this disscussion group. I have all mobility issues with the esop.,stomach, bowels, etc. I have had enough test for a lifetime and know that they are just starting. I have sclerodema. And ...

gimotility: RE: 2009 AGMD Digest.Motility Symp. "Hirschsprung's dis., most common cause of lower intest. obstruct. in neonates," Rodriguez MD.

gimotility: RE: 2009 AGMD Digest. Motility Symp."IBS accounts for 30% of all health related costs in gastroenterology" www.agmd-gimotility.org

gimotility: From 2009 AGMD Motility Symp.: "IBS is the most common chronic med. cond. worldwide" Pimentel, MD, http://www.agmd-gimotility.org

gimotility: AGMD Digestive Motility Symposium-Much Information & Insight. Stay Tuned For Highlights. AGMD: http://www.agmd-gimotility.org

gimotility: Hurry And Register For Extraordinary Symposium Featuring Renowned Experts In Digestive Motility. http://www.agmd-gimotility.org

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