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Pediatric
Issues pertaining to the pediatric patient such as maintaining nutrition; school; finding a doctor; potty training, and any other concern that impacts the pediatric patient and his/her family
for those of you with port a caths
- By Little_Turtle · Posted January 26, 2009
- 0 replies
- I'm still trying to convince my mom to agree to talking to the docs about a port since im now a human pincushion. If you have a port, it'd be great if you could tell me everything you can about having ...
Demanding a PICC or central line of some sort
- By Little_Turtle · New reply January 25, 2009
- 4 replies
- Well, I'm remaining a pin cushion. My arms are covered with bruises. Sometimes they even have to use my feet for IVs. Yet my mom still doesn't think I need a central line because they're only for "people ...
Help!
- By Little_Turtle · New reply January 20, 2009
- 6 replies
- ARGH!!!! well. the good news is I got outta the hospital today. The bad news is, the idiot doctors STILL won't put back in the gj tube! I mean, I've lost 10 lbs., I can't go to school, and my potassium ...
How do I say enough is enough?
- By Little_Turtle · New reply January 13, 2009
- 2 replies
- Well I've been trying to live with a g tube instead of a gj (they won't re-float my gj because they're concerned that since it was changed twice in the last month it'd be too much radiation exposure ...
Upcoming surgery
- By deb777 · New reply December 24, 2008
- 6 replies
- I am new here. I hope someone can help me. My daughter is 14. She is scheduled to have an open colectomy to remove about half of her colon. The surgery is scheduled for Dec. 22. She will be admitted on ...
HELP
- By Little_Turtle · New reply December 13, 2008
- 4 replies
- im 16 and have gastroparesis. i was recently hospitalized for an ileus, a paralysis of a part of the intestine. im home now and the ileus is healing. the hospital stay was hell. they refused to give me ...
port?picc?help!
- By Little_Turtle · New reply December 2, 2008
- 1 reply
- my names kaitlyn and im 16 and have had gastroparesis for almost 4 years. I am dependant on J tube feeds for all my nutrition. I want to go on TPN because even at a slow rate the feeds give me severe ...
Godchild
- By Pebbles5410 · New reply October 17, 2008
- 6 replies
- My godchild has been having diarrhea for 5 weeks and he is going to the bathroom at least 5 times a day and has bright red blood that drips every time he goes. The doc did a rectal exam and said everything ...
VSL #3
- By MadelynsMom · New reply October 10, 2008
- 8 replies
- Does anyone have any experience in taking VSL #3 in pseudo-obstruction? One GI doc has recommended this for my daughter and another has said that it would not help ...
Chronic Intestinal Pseudo Obstruction Forum
- By Achilles_Heart · New reply June 12, 2008
- 2 replies
- Hello. There is a new forum for parents or carers of children with CIPO or a motility disorder. I think that this will be the perfect place for us to chat in a relaxed environment and keep each other ...
Cisapride/Prepulsid
- By MadelynsMom · New reply May 14, 2008
- 7 replies
- Anyone out there currently on Cisapride/Prepulsid for motility? We are in the process of getting FDA approval for compassionate use for our daughter. Thanks, Tammy ...
children with GP
- By revery · New reply April 1, 2008
- 3 replies
- Hi, I am a Mom with 2 boys with GP. There sx are so different, but could they have the same thing. My 7 yr old was dx with the upper GI series (eating eggs that were tagged with a radioisotope). The results ...
getting diagnosed
- By rileysmom · New reply March 22, 2008
- 4 replies
- My 6 week old daughter has been hospitalized at CHKD since she was 3 days old after vomiting bile. She has had an exploratory surgery, full thickness rectal biopsy, an endoscopy, barium enema, and dozens ...
Strep infections and sinus problems
- By darla34 · New reply February 19, 2008
- 2 replies
- Has anyone else with digestive problems had numerous strep throat infections and sinus problems over the years? My teenage daughter has severe constipation with a pseduo(false) blockage, CIPO. Since she ...
Gastroperesis
- By Malibusunset20 · New reply February 6, 2008
- 10 replies
- I have a 6 year old son that has Idiopathic Gastroperesis. He was a perfectly fine 6 yeasr old one day and woke up at 4:00 am the next day sick and is just now starting to get a little better. This was ...
Atonic Colon
- By phoebemom · New reply December 19, 2007
- 3 replies
- My 3 1/2 year old was diagnosed with an atonic colon. We have her on Miralax, but she seems to ALWAYS be pooping a little bit with weekly bouts of what can only be described as explosions. Does anyone ...
Cause of CIPO
- By kaaye · Posted July 9, 2007
- 0 replies
- This is my first message with the board but have been with AGMD for a while. I am a parent to an almost 7 yr old boy. He has been dx with neuropathic CIPO. Things have not been easy and right now he is ...
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