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Pediatric
Issues pertaining to the pediatric patient such as maintaining nutrition; school; finding a doctor; potty training, and any other concern that impacts the pediatric patient and his/her family
My daughter may have GP
- By DawnTB · New reply November 17, 2009
- 16 replies
- HI. I am new here, and glad to have found this group. My almost 16 year old has been having symptoms and all the tests have come back "normal". The prescription meds do not seem to work, and I am trying ...
Vaccines and motility problems
- By Dominics_Mom · New reply November 17, 2009
- 6 replies
- Hi there, I'm wondering if anyone has any information or any thoughts about giving vaccinations to kids with horrible motility. My two year-old has had some vaccines but my husband and I discontinued ...
Cecostomy Question
- By JMedlin9425 · Posted September 30, 2009
- 0 replies
- For those who have been down the road of a Cecostomy..... I would like to know the "Pros/Cons" ...... We have a 3yr old that may be undergoing this procedure. Appreciate your input. Julie in AZ ...
Baby with Chronic Intestinal Pseudo Obstruction
- By Achilles_Heart · New reply September 13, 2009
- 11 replies
- My name is Lucy, and my little girl is 11 months old and has suspected Chronic Intestinal Pseudo Obstruction, present since birth. Ruby will have to have a full thickness biopsy soon (she has had 2 other ...
Doperidone
- By revery · New reply September 4, 2009
- 8 replies
- My 9 yr old has severe GP. Does anyone know how to get doperidone? We go to CHOP for his care and his GI only mentioned reglan, erythromyacin and a drug used in urology (I can't remember the name). We ...
Ileostomy vs. Colostomy- 3yr old Motility Issues
- By JMedlin9425 · New reply September 2, 2009
- 2 replies
- Question to the Group: Hello from AZ... I'm new to this site and saw a discussion regarding Ileostomies.... I thought I would throw this discussion out there... We have a 3yr old daughter, diagnosed with ...
getting an NJ feeding tube tomorrow
- By slbriggs · New reply August 27, 2009
- 2 replies
- My daughter Destiny is getting an NJ feeding tube tomorrow. In short, she has proven that her reflux is causing her apnea and bradycardia, so it's this or the nissen fundoplication surgery. This is to ...
stomach wraps and Gastroparesis
- By mammadoddlebug · New reply August 4, 2009
- 5 replies
- Hi, My son was diagnosised with Gastroparesis. He has had a stomach bypass, small bowel operation and now a stomach wrap. He also has a heart condition and acid refulx. He is also on TPN. We are attempting ...
clean-outs
- By dzeldin · New reply August 3, 2009
- 14 replies
- Has anyone had unsuccesful hospital bowel clean outs? My daughter is almost 5, and in the past 4 months has been in the hospital twice for NuLytely to clean out obstructions. The first time, it was run ...
8 months baby hospitalization - Short Gut - no ileo-cecal valve
- By LMBRJ · New reply July 28, 2009
- 2 replies
- Hi everyone, my baby frequently gets a lot of infections and bacteria overgrowth because she´s missing the ileo cecal valve. We live at the hospital since she was born (almost 8 months) and the medicine ...
Gastric Pacer for pediatric patients yet?
- By momto5kiddos · Posted July 18, 2009
- 0 replies
- Does anyone know if there are trials for Enterra Therapy yet for pediatric patients? Has it been approved for children under the age of 18 ...
5 Year Old Gagging
- By proudmom2x · New reply July 10, 2009
- 6 replies
- My daughter was recently diagnosed with Intestinal Pseudo Obstructive Motility Disorder. She just got out of the hospital a week ago tomorrow. She is 5 years old and had to be hospitalized due to an illeus ...
cecostomy for CIPO?
- By dzeldin · New reply July 3, 2009
- 4 replies
- I am very new to this whole forum, but could really use some advice. My 4 year old daughter has a congenital form of muscular dystrophy. It is also thought that she has a chronic pseudo-obstruction disorder ...
Stomach Spasms VENT
- By proudmom2x · New reply July 1, 2009
- 9 replies
- Ok so this is likely to be a vent but I would love to get others input on some options for Gracie. My daughter will be 5 on the 4th of May. Every since the day she was born she has had trouble with her ...
Gastric output
- By momto5kiddos · New reply June 25, 2009
- 1 reply
- So, my child has a GJ tube with GP and gets an elemental formula. Does gravity drainage of 800-900 cc of GT output a day seem normal? Seems to be far out of normal range and our doctor said we would have ...
chronic constipation and crohn's disease
- By rlsnights · New reply June 3, 2009
- 9 replies
- My 11 year old son was dxd with Crohn's Disease 3/06. His diagnosis was delayed because his presenting problem was encopresis due to constipation. 4 months after he developed severely bloody stools they ...
gastric emptying study and results
- By revery · New reply May 21, 2009
- 43 replies
- Hi- Does anyone know how to interpret results from a gastric emptying study? My 8 yr old son only has 14% emptying at 2 hrs compared to 44% emptying at 2 hrs a few yrs ago. He is worse at night and can ...
Tried TPN-lots of questions???
- By naomi12345 · New reply April 16, 2009
- 8 replies
- Hi everyone, I posted a while a go about my special needs child who has a multitude of issues that the doctors can't figure out. She has a undiagnosed geneitc condition that continues to elude the doctors ...
Pediatric Motility Specialist SF Bay area?
- By LylasMom · New reply April 1, 2009
- 2 replies
- Does anyone know of a pediatric gastric motility specialist in the San Francisco Bay Area that they would recommend ...
GJ tube for my son
- By Carsten · New reply March 20, 2009
- 4 replies
- I have a question for anyone doing GJ feeds with their little one. We just started GJ tube feedings two days ago with my 14 month old son. The tubing is so long from the bag to his stomach and there is ...
