Coping with chronic illness

Coping with life with chronic illness such as, emotions, impact of illness, acceptance, finding hope, purpose, faith, support

Gastroparesis

Sue43
  • By Sue43 · July 11, 2008
  • 12 replies
  • I too, have been diagnosed with GP. I am a full-time teacher this year due to my husband's lay-off. I pray I will be able to fulfill my duties. I take domperidone. It works for me as long as I eat properly ...

Spouse is withdrawing

soccamom
  • By soccamom · July 8, 2008
  • 21 replies
  • Has anyone had personal issues dealing with gastroparesis. This is going to sound terrible but I've had GP for 2 years now and my husband has totally withdrawn from me. At times he is angry. For instance ...

What would you do? Orask the Dr. to do?

stekcsf
  • By stekcsf · June 17, 2008
  • 4 replies
  • Hi all! My 11 yr. old daughter has GP. But the Dr just did the monametry study a few weeks ago and said her intestines look fine. Then they placed a J tube, kept the G tube open to drain. She is still ...

I need some advice-Ican't work from my disorders

lagirl1966
  • By lagirl1966 · June 15, 2008
  • 13 replies
  • I need some advice from someone. I have IBS-D and Gastroparesis (delayed emptying of the stomach) I have severe bloating everyday everytime I eat, and bloating even when I don't eat. I think that is from ...

Difficulty staying optimistic...

Kate1
  • By Kate1 · June 10, 2008
  • 8 replies
  • Hi, everyone. I've been having a hard time dealing with so many parts of this illness and I thought it might be a good idea to write. This may be a long one, so I apologize in advance... Maybe I should ...

THROWING UP BROWN STREAKS THAT LOOK LIKE BLOOD

stekcsf
  • By stekcsf · May 13, 2008
  • 6 replies
  • would you call the DR? i call then sooo much, and she does in tomorrow(11 yr old duaaghter) for another monametry study and J only tube placed thanks everyone tricia ...

SMA Syndrome

DK9497
  • By DK9497 · April 26, 2008
  • 5 replies
  • Has anyone been treated for SMA Syndrome? My doctor thinks I may have it, but is not sure whether it is just due to my rapid weight loss. The big question is whether to try and gain back the 20 lbs that ...

Gastroparesis

michdey
  • By michdey · April 21, 2008
  • 17 replies
  • Hey Everyone-- I haven't written in quite a while so I thought I would and update everybody. When last we spoke I think I had just started my tube feedings which were going well. Well, fast forward to ...

Replacement for Cisapride

Sherri1
  • By Sherri1 · April 18, 2008
  • 0 replies
  • For those of you who were taking Cisapride, what drug are you taking now in its replacement ...

Colonic Inertia

cmullenix
  • By cmullenix · April 10, 2008
  • 6 replies
  • I have recently been diagnosed with colonic inertia. My doc is having me try different meds. He started me on Amitizia and when I called them and told them that it made me feel like I had the flu. They ...

I NEED YOR HELP

stekcsf
  • By stekcsf · April 10, 2008
  • 7 replies
  • my daughter is 11, has been dealing with this GP and CPIO(possible)...since oct 2006. up until recently she's been in good spirits. She has reason to feel down and frustrated i know! she just got the ...

Full thickness biopsy.

Achilles_Heart
  • By Achilles_Heart · March 10, 2008
  • 2 replies
  • Hello, you may have read my other posts about my daughter. Her doc has told us that the next step is to have a full thickness biopsy, to try and confirm CIPO. At the biopsy the would do a temporary ileostomy ...

chronic intestinal Psuedo Obstruction

keg
  • By keg · March 9, 2008
  • 2 replies
  • Hi Everyone, My sister has been diagnosed with CIPO. She is 41 years only and lived for her first 37 years with no problems at all. At 37 she started getting heartburn and bouts of the ruuns. Her bowels ...

Reassurance

SeussRN1
  • By SeussRN1 · February 25, 2008
  • 2 replies
  • Hello All - I have been sitting at the computer most of the day. I seem to be having one of those feeling sorry for myself days. I am 5 weeks away from completing my MSN and recently had my PEG tube removed ...

Asphirating

michdey
  • By michdey · February 14, 2008
  • 1 reply
  • Hey has ayone ever asphirated on bile or their own vomit? I think I just did--I think the bile went into my lungs because it hurts something awful when I breathe in and it sounds like there are "bubbles ...

esophagitis

yellarose
  • By yellarose · January 25, 2008
  • 4 replies
  • it was not enough to be gluten-intolerant, idiopathic delayed digestion/gastroparesis but to have problems of having food get stuck in your esophagus or deal with esophagus spasms that mimic chest pain ...

dizziness

marietta1
  • By marietta1 · January 22, 2008
  • 14 replies
  • Does anybody ever experience dizziness with constipation and/or diarrhea? I have gastroparesis and dizziness is a new lovely symptom. it is freaking me out ...

Loss of energy, pain in lower extremeties and cold

karendiane
  • By karendiane · January 22, 2008
  • 9 replies
  • My husband was diagnosed with diabetics about 5 years ago, for a 3 year period he exhibited indications of being healed with normal range sugar readings and all over good heath after changing his diet ...

Teeth

Char
  • By Char · January 16, 2008
  • 5 replies
  • I'm getting ready to head to the dentist to have some cavities filled. I'm nervous, because I've never had real dental work done. I had braces many years ago, but I don't think that counts. Anyways, I ...

Pacer/Feeding Tubes

michdey
  • By michdey · November 13, 2007
  • 19 replies
  • Hey Everyone-- The surgeon I have been seeing has finally agreed to the Gastric Pacemaker surgery on me. The problem is he is being deployed to Iraq at the end of December and won't be back until sometime ...

You

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The AGMD GI Motility Disorders Support Community connects patients, families, friends and caregivers for support and inspiration. The AGMD GI Motility Disorders Support Community is sponsored by the Association of Gastrointestinal Motility Disorders in partnership with Inspire.