Discussion topics

Nutrition

Dietary suggestions; maintaining nutritional needs; TPN, other nutritional concerns

Does anyone have a secret for staying away from forbidden foods?

NancyL
  • By NancyL · September 4, 2008
  • 13 replies
  • I am supposed to stick to a liquid diet. But I am having a lot of trouble making myself stay away from the foods that make me sick. It wasn't so hard the first two years because I was just to sick to ...

All 31 discussions...

Pediatric

Issues pertaining to the pediatric patient such as maintaining nutrition; school; finding a doctor; potty training, and any other concern that impacts the pediatric patient and his/her family

Chronic Intestinal Pseudo Obstruction Forum

Achilles_Heart
  • By Achilles_Heart · June 12, 2008
  • 2 replies
  • Hello. There is a new forum for parents or carers of children with CIPO or a motility disorder. I think that this will be the perfect place for us to chat in a relaxed environment and keep each other ...

All 11 discussions...

Inability to eat

Coping with the inability to eat and how it impacts the patient's life

Frustration with the MD

SeussRN1
  • By SeussRN1 · Yesterday at 11:37 pm
  • 5 replies
  • I am venting and very frustrated with my in town GI guy. Last week I was taken off of my TPN - this of course should be a good thing - if I were able to tolerate more than bread as a diet! So I have been ...

All 18 discussions...

Dealing with the fear

Addressing fears and illness and coping strategies

Gastroparesis bloating

lagirl1966
  • By lagirl1966 · August 19, 2008
  • 17 replies
  • Hi everyone. I am new here. I was diagnosed with Gastroparesis 3 years ago and have been suffering with SEVERE bloating ever since. I dont have any vomiting though. I was reading up on this on the web ...

All 6 discussions...

Living with an invisible illness

Issues related to being chronically ill with motility disease/disorder and not looking ill

depression cause gastroparesis or gastroparesis cause depression?

cha
  • By cha · Yesterday at 2:41 pm
  • 11 replies
  • im tired of this issue, a group of doctors says that im depressed because of my symptoms, and another group of doctors says that my depression cause my gastrointestinal symptoms.... what can i do? i know ...

All 11 discussions...

Coping with chronic illness

Coping with life with chronic illness such as, emotions, impact of illness, acceptance, finding hope, purpose, faith, support

Newbie Looking for Clues

blackbear26
  • By blackbear26 · August 15, 2008
  • 6 replies
  • Hi to everyone, I have been reading non-stop all of the information that relates to why I have bloating,pain under my right ribcage,bowel movements,etc. I'm new and I'm thrilled to be here reading forums ...

All 23 discussions...

Depression

Recognizing the signs of depression, identifying reasons and finding help

Trying to stay strong...

Kate1
  • By Kate1 · March 10, 2008
  • 9 replies
  • Hi, everyone. I just got some bad news and I'm having trouble keeping myself together, and I thought it might help to write. I finally took an official medical leave from work due to GP. The past 5 weeks ...

All 4 discussions...

Understanding

Coping with the lack of understanding or being believed and how to help others understand

I need your thoughts!!

kimbella
  • By kimbella · Yesterday at 9:58 pm
  • 5 replies
  • I have just been diagnosed with Gp last wk. I have been sick for about 3 months so after about 2 mos of indigestion,heart burn,chest pain,nausea,vomiting and etc. I visit my GI Dr. He did a upper endo ...

All 10 discussions...

Social impact

Impact of disease on social life such as, smaller social perimeters due to illness; unpredictable nature of motility diseases; having to be near a bathroom; school problems; dating; intimacy issues, working

Pooping

sprite
  • By sprite · June 24, 2008
  • 8 replies
  • I haven't seen any direct focus on... Well, BMs. I've had chronic diarrhea for years and years but NOTHING like this. It comes on fast and strong and noisy. I had my gallbladder out a year ago and experienced ...

All 5 discussions...

Issues pertaining to young adults

Any area of concern to the young adult patient such as, school; social issues; dating; being believed; making decisions; trying to explain to others; living with an invisible illness; hospitalizations; self-image; working

SUPERSERENDIPITOUS

Mags1
  • By Mags1 · January 31, 2008
  • 0 replies
  • Hi Superserendipitous. First of all let me say Welcome to this Community, you will definately find some very good information and support here and also realise that you are not alone. Ask your GI doctor ...

All 2 discussions...

Pain issues

How to address pain with doctors; coping with pain; getting help

Chronic Pain

midsomersdream13
  • By midsomersdream13 · August 20, 2008
  • 11 replies
  • Hi, I am asking for help on the subject of how to deal with the constant chronic stomach pain, especially after eating. I feel bad asking my doctor for pain meds all the time but to be honest I am not ...

All 8 discussions...

Relationships

Having a spouse, companion, or friend understand, intimacy, adjusting to life of illness, financial impact, having a child, raising a family, pregnancy, impact of illness on family

recently married and recently diagnosed with GP

Molly2
  • By Molly2 · Yesterday at 8:19 am
  • 13 replies
  • I am 31, I have only been married 2 years and was diagnosed with GP about 1 month ago, after being in crippling pain for 2 weeks (with a "nervous stomach" according to the ER). Finally they found out ...

All 2 discussions...

Finding encouragement

Having faith; looking for support; needing prayers, finding a purpose

Colonic Inertia with Pelvic floor dysfunction

hopenpeace420
  • By hopenpeace420 · September 2, 2008
  • 12 replies
  • I'm a 46 year old female and I have been diagnosed with colonic inertia and pelvic floor dysfunction through every test under the sun. I am currently taking 5 full capfulls of miralax per day along with ...

All 3 discussions...

Alternative therapies

Types of alternative therapies and their effectiveness in regard to digestive motility.

acupuncture

bell
  • By bell · Yesterday at 8:23 am
  • 4 replies
  • Hi. I am just wondering if anyone has had any luck with acupuncture. I have been on domperidone for gp and my dr just told me I have to stop because my prolactin levels have gone really high. Reglan didn't ...

All 15 discussions...

Caregivers

Problems related to the caregiver and coping strategies.

motility specialist recommendation

curlyq24
  • By curlyq24 · June 30, 2008
  • 4 replies
  • Does anyone have a recommendation for a GI doctor in the Northern NJ area that deals with motility issues and TPN related complications? I would be most appreciative for a name or 2 that I could meet ...

All 3 discussions...

Open discussion

Issues that are not addressed in topics presented that concern the patient.

Gastric Pacemaker

cindyinjersey
  • By cindyinjersey · Yesterday at 11:31 pm
  • 2 replies
  • Hi, I am new to this group. My name is Cindy and I live in NJ. has anyone heard of the gastric pacemaker?? I have severe motility issues. was diagnosed with gastroparesis and I have chronic constipation ...

All 118 discussions...

Help desk

Have a question about using the site? An idea for making it better? Post here and let us know how we can help.

A New Problem

sprite
  • By sprite · June 30, 2008
  • 0 replies
  • I'm not sure if anybody else has noticed this problem. When I take either med for GP my urine out-put exceeds my intake. This is dangerous for my Addison's Disease and my inability to retain sodium. Losing ...

All 4 discussions...

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The AGMD GI Motility Disorders Support Community connects patients, families, friends and caregivers for support and inspiration. The AGMD GI Motility Disorders Support Community is sponsored by the Association of Gastrointestinal Motility Disorders in partnership with Inspire.