So, I still have my problems of on and off pain and nausea, but *knock on wood* things have been somewhat better than they were in the winter. I am in constant fear of the real bad stuff coming back.
One thing that has not leveled off is weight loss. I don't know if this is b.c I still do not consume as many calories as I did before all this crap started. I am eating more now than I was when I was real sick, but I still don't eat as much as I did when I was well. However, now I am wondering if I have something really bad wrong with me. And I HATE the idea of going to the dr, b.c they never take this seriously!
I do not like this weight loss! I would have been happy with the first 15 lbs, but now my clothes are lose! I have lost 30lbs since this started. Meanwhile, when I try to talk to ppl about how this is scaring me, I get "oh, you need to lose the weight, you look good". They don't get what I am going thru. I guess looks come before health!
Does anyone have any ideas on how I can stop this? Today I really counted my calories and am trying to get in 2000. Although once I knew I was eating more (than i previously was) I stopped paying attn. Its something I have to take note of now again.
Love,
Lauren
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unstable weight?
- By Lauren2006
- Posted July 27, 2009 at 9:28 pm · 6 replies
- In Nutrition
- Shared with the public
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- By nanascorner
- Posted July 28, 2009 at 8:17 am
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There are meal replacment shakes that are designed for people that need to gain weight! Ask someone at the health food store... My grandmother used one because she lost so much weight from crohn's disease. weight loss does not seem to be a real issue for me despite the reality of Crohn'd disease and GP..
Barbara
- By margamouse
- Posted July 28, 2009 at 8:44 am
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There is an additive available that will give you a lot of calories and add little bulk to your meal. It's called BENECALORIE. Perhaps that would work.
Wishing you lots of love and FEEL BETTER!!
I've been through the whole weight loss thing and mine got so bad, I ended up with a j-tube (that was temporary, had it removed 2 weeks ago!) but without it I wouldnot be here right now.
I'll pray that yours doesn't go that far!!
margaret
- By GPAllie
- Posted July 28, 2009 at 11:51 am
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I understand.
I lost 7 pounds in the last 10 days and I was eating more than I had been. I still don't get an entire meal a day but I am getting more small bites more often.
I have another 20lbs before I start to go below weight. I wasn't happy with the severe weight gain I had experienced from inactivity and other medical issues over the last few years but I never wanted stomach probs to be the answer to weight loss. I'm down 50+ since the fall. I hide my weight gain well so I don't think it's quite as noticeable to many. I worry about the coming weeks...
Ensure didn't sit well with me so I am not planning on trying that again. My stomach cramped.
Take care.
- By Roscoelady1974
- Posted July 28, 2009 at 6:47 pm
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I use the Benecalorie too. I order it through walgreens.com. 330 liquid calories you can add to yogurt, shakes, soup.....
Yeah, I just got the "You look great!" several times today and I wanted to deck them. :)
It's SO frustrating!
I was bad about counting my calories too and can still be bad about it. I did start to write them down and I need to do that again.
Take care,
Sarah
- By alphabubo
- Posted July 31, 2009 at 9:33 am
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Dear Lauren,
I can understand your frustration with the weight issue. I have struggled with being underweight ever since I was first diagnosed with gastroparesis in 2002, and although I have tried I have not gotten above being underweight since. I also use the Benecalorie supplements that are mentioned and they have helped to at least stabilize my weight. I think what would hurt me is that whenever I went into the hospital, I would lose a little weight which I could never seem to regain. I also agree that keeping a diary of what you eat each day may be helpful.
I am currently trying to increase my calories with g-tube feedings at night, but I can not do this at too fast a rate or this will worsen my reflux or make me more likely to vomit it up.
It seems to that the more I eat, the more bowel movements I have. I just wonder if I am passing out too much through them and not absorbing enough as I should.
I truly hope that you can find some ways to gain too. Remember though that getting in some exercise is still important even if you are trying to gain because it helps build muscle mass, keep the bones strong, and prevents you from becoming weaker. One just has to try and find a balance so that one does not burn off too many calories from exercising while doing enough to keep from getting weak. My doctor even sent out a physical therapist out to my through my visiting nurse service to help me.
It also bothers me when people tell me that I look so good, when I know that when I look in the mirror, I know that I look way too thin and would love to have extra weight on. It is much harder to find sights encouraging those who want to gain weight versus those wanting to lose as society seems to focus much more on the latter.
I will be sure to keep you in my prayers and all those who are struggling with this same issue. Many, many hugs.
Warm regards,
Bobbiejo
- By Lynee
- Posted July 31, 2009 at 12:40 pm
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I hear you on the weight gain issues. When this first happened to me, I thought "15 pounds down without trying - cool!", but 15 became 25 and then 50 and before I knew it I weighed 82 pounds and looked like a death camp survivor - and I started having heart issues because my body was literally eating itself. I've been on the other end of the spectrum trying to lose weight and it's hard, but this is ridiculous. Be careful what you wish for is what I tell people when they talk about wanting to make it so they can't eat. What the heck are people thinking - who in their right mind would ever choose to do this to themselves?
My son just got married a month ago and the pictures came back - when looking through them I still think I look like a scarecrow and everyone kept saying "how good you look!". It's just crazy how our society values being thin even when it isn't healthy.
Lynee
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