torture

• By chewy1
• Posted November 6, 2009 at 6:10 pm
• Report post

I don't think you are too far off when you say your stomach has a mind of it's own...my doctor says that the stomach basically has it's "own brain" that controls it!

• Reply

• By clarabee
• Posted November 6, 2009 at 6:13 pm
• Report post

Hi Herbie,
I was thinking the same thoughts about myself this afternoon. I have lived like this for several years, I have a pancreatic disorder and lymphatic colitis. Without thinking I ate a piece of my grandsons Halloween candy and boom!, a bellyache. You think I would learn by now. I have the Mayo Clinic book on chronic pain and periodically I browse through to see what I can do to help myself. I landed on the page telling about the benefits of deep breathing, started in right then and there. Now, I can't breathe my illness away yet I am always surprised the amount of tension in my body, especially the abdomen. This breathing gives me a bit of a pickup. My meds are critical to my wellbeing, but, a "natural" respite is a very welcome.
I hope you feal better soon.

Clarabee

• Reply

• By spiritlove
• Posted November 6, 2009 at 6:17 pm
• Report post

Relax! Yes, it will take time plus you are so lucky you can still enjoy solid foods.
It's tough to deal with and can feel like torture at times but, you can learn to live with it. Yes, there will be times when you eat something and it turns on you.
You're right it's tough. Is erithromycin the only thing you're doing for it. By the way what is your diagnosis? There are a lot of us on here with many different problems so it's easier if we understand what your problem is.
I'm not unsympathetic and I do understand how you feel but, when you begin to see what others are dealing with you'll be thankful you're as well as you are.
I'd love a steak and lobster but, man would I pay for it.
Take care. Believe you'll learn to handle this and know we're here to listen.
Just want you to stop a minute and think how lucky you really are in comparison to others with g and j tubes.
spiritlove

• Reply

• By herbie1
• Posted November 6, 2009 at 6:34 pm
• Report post

You are right. I have been diagnosed with MSA multiple symptom atrophy because of the trouble swallowing, no stomach motility, and neurogenic syncopy. Now my doc said they can just all be seperate issues or one in the same. If it is one in the same I have a long road ahead of me with MSA. If it's not great. My doctor mentioned it could be from past radation and chemotherapy I had back in 1994. I am opting for this reason. I have already had my fight and thought I was done I survived that so I guess I will survive this too. Thanks to everyone who commented. Daniele

• Reply

• By spiritlove
• Posted November 7, 2009 at 3:57 pm
• Report post

Hi herbie,

I just reread my post. Sorry, I came down on you so hard.
I've been having some rough times this year and with sjogrens 2-1/2 days with nothing by mouth left me with a new understanding of torture!
I do understand how you feel and agree the stomach has a mind of its own and rarely is willing to compromise.
I'm having a bad "mental health day", that's what I prefer to call deep depression. Since I'm miserable anyway I decided to have a peanut butter sandwich (something I love and it kills me my husband eats almost every day). Surprisingly, I'm not even belching.
Usually be now I would have lost it. That's just shows what the stomach wants it accepts!
Please don't get discouraged, I know how hard it is and now you've told us what you've already been through it's easier to understand how you feel.
Loving thoughts and prayers are with you.
spiritlove

• Reply

• By gpgirl5
• Posted November 7, 2009 at 9:26 pm
• Report post

When I eat out (not often), I always go for the seafood if I am getting food. I can tolerate it very well. It always laste me for 3 or 4 meals once I take it home. So... I can understand the lobster. But the steak? My stomach cringed on that one. Be careful!

• Reply

• By GGCPTEACH
• Posted November 12, 2009 at 9:44 pm
• Report post

Hi Herbie 1,

I just read your post. My mother was diagnosed with MSA and Gastroparesis. I am thinking they are closely related. She has difficulty swallowing, passes out due to orthostatic hypertension, and has stomach motility problems. She has Parkinson type features. How did they diagnosis your condition? Interesting enough, my mom also had chemotherapy after she was diagnosed with lung cancer. She also had trauma many years ago to her pancreas. I am always trying to learn about MSA and gastroparesis. It is hard to find folks with both. Do you have any support groups in your area for MSA? My mom enjoys lobster, but definitely can't eat the beef. She also likes broiled fish and scallops. This is what she usual has when she eats out. Love to keep in touch.
Gayle

• Reply

Add to the discussion