stomach wraps and Gastroparesis

• By plushy
• Posted August 2, 2009 at 11:30 pm
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Mammadoddlebug,
I do not have the tubes or have heard of wraps but please know your son and your family are in my thoughts and prayers.

Marie

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• By Novagrad
• Posted August 3, 2009 at 5:52 pm
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By a wrap, I think you mean a nissen fundoplication? I had one too. I also have gastroparesis but I am fed via a j-tube, which is much more tolerable than a g-tube. If you have gastroparesis, usually a g-tube is avoided since food of any kind is too slow to empty from the stomach. Anyway, even with the j-tube, I sleep rather upright. I have reflux from the intestines to the stomach as well and that is much worse if I don't sleep upright. Lots of pillows!

Mimi

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• By mammadoddlebug
• Posted August 3, 2009 at 6:00 pm
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Novagrad,
This is day 3. He had the wrap done on Friday. They have already started feeding him through the Gtube. I have been sick on the stomach looking at what he is going through. Gagging, cramping, screaming with pain. We had a GJ tube but it would not stay ib place. As someone who knows first had how can I help him with the pain and discomfort

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• By alphabubo
• Posted August 4, 2009 at 2:00 pm
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My heart aches to hear what all your son is going through. I had a nissen fundoplication through an open surgery which had to be taken down about seven years later due to a build up of scar tissue that caused difficulty in swallowing. I was diagnosed with gastroparesis soon after the take down. My doctors are uncertain what caused my gastroparesis as one thought I may have had it before the nissen was first placed. I agree that if he has gastroparesis, it probably would be better for him to get his feedings through a j-tube which would bypass the stomach, especially as the wrap prevents him from getting relief by vomiting. I have both a separate j-tube and g-tube. Perhaps it might help if he tried a separate j-tube and then could use the g-tube to drain his stomach when he needs to. That is what I found the g-tube to be good for, although I am currently using it for feeds as my j-tube is not working right at the moment and is thus useless. I am so sorry that he is in so much pain. If I were him, I think that the best thing would just to know that you were there to support him through whatever he goes through. If he is still in the hospital, you can make sure that his needs are attended to as best as possible. You could also tell him that if his abdomen hurts that sometimes holding a pillow close to it helps. I hope that the doctors will soon be able to find a way to allow him to feel better. I will be sure to keep you in my thoughts and prayers. Many hugs.

Warm regards,
Bobbiejo

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• By mammadoddlebug
• Posted August 4, 2009 at 5:58 pm
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Listen, thanks for your prayers. We have looked at our situation and feel like this is a good course of action. We are on day four and my son is able to tolerant more on his stomach today. We have faith that we can find the right combination to make him comfortable.

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