I am new to this site & don't know if I am doing this correctly. My daughter was just diagnoised with gastroparesis about a month ago after undergoing so many tests. Reglan and Tigan did not help the nausea so she is now on Domperidone. It is helping a little better than the other two meds. She only started that last week as she had to wait 3 weeks for it to come from Canada. She also cannot tolerate Ensure any longer although we do freeze it into pops some times. She does Instant Breakfast, skim milk & fat free frozen yogurt. The Doctor thinks this problem was caused by the meds she was taking to control the pain she has from another incurable chronic disorder called Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome that she has had for 14 years. Does anyone else out suffer from this disorder?
She still doesn't know how serious and long lasting this can be and I don't have the heart to tell her yet that she has yet another incureable chronic disease to deal with.
I have become very scared & depressed reading about the horrible monster that is effecting so many of you & now my daughter. Thankfully right now she only has the neausea, no vomiting. She does have chronic constripation but has had that her whole life. She is 42. Has a very supportive husband and 9 year old twin boys. Any ideas or hints for food would be so helpful.Has anyone been to the Mayo Clinic for help? Thinking of taking her there. Thanks for any help you can give me.