pouchitis

• By flhawe
• Posted December 1, 2008 at 4:35 pm
• Report post

I had several bouts of pouchitis and had three week doses of Cipro but the last one was the worst one I was bleeding from the pouch it got so bad. I had to instil liquid carafate for awhile a couple of times a day. I was on Cipro 500 mg twice a day for about three months and it cleared it up. Most MD's are used to a 10 day regime but my GI MD was aware of pouchitis and said to really get it resolved we would have to go with the three month treatment plan. I have not had any since then. I hope this helps. Cipro seems to be the calmest antibiotic if you get stomach or bowel spasms. I can't tolerate many antibiotics. I hope you get some relief soon, I know how pouchitis feels, and it sucks. Barb

• Reply

• By jpoucher
• Posted December 3, 2008 at 8:52 am
• Report post

I've gone on/off Cipro alone, Cipro with Flagyl, Flagyl alone, probiotics for years. I don't remember doing a 3 month stint with the antibiotics, though. Yesterday I went to ER for severe bleeding. They didn't do anything for it, I was so upset. Bleeding still persists today. I told them it would - they didn't believe me. Tomorrow I see my surgeon - wonderful. Not sure if I even want to keep the appt. I'm so discourage with everything. Thank you for the info. I'm glad to hear you're doing better and that the Cipro is working for you. How long have had you had a pouch? Just wondering.

Judi

• Reply

• By flhawe
• Posted December 5, 2008 at 5:59 pm
• Report post

July 2005 I had an internal continent resevoir with Dr Rehnke at Palms of Pasadena in St Petersburg Florida. I have an opening the size of my baby finger that I put a hard plastic tube in a couple times of day to drain the pouch. From a cosmetic standpoint it is great. I was bleeding a lot. I ended up getting three iron transfusions. I have not had any bleeding since then. Back on Cipro now for a sinus infection. I cant take anything else or my stomach and bowels go into severe spasms. Until you find a MD who is experienced with pouches you will not get any resoultion. There are so few out there. Hang in there I know the feeling about not wanting to go to see the surgeon, I have had that same thought many times.
Barb

• Reply

• By Jenauto
• Posted March 26, 2009 at 9:08 pm
• Report post

I have had a j pouch for 19 years and I have found that I am suffering from pouchitis more often and it is driving me mad Just had 2 weeks of I.V flagyl because I can't stomach flagyl orally and the pain is driving me mad. Any ideas

• Reply

• By flhawe
• Posted March 29, 2009 at 5:51 pm
• Report post

I guess I am lucky that way I have only a couple of bouts of pouchitis and it was cleared up with Cipro. Good thing because I have enough other problems to deal with.
Barb

• Reply

• By GI_dysmotility
• Posted March 30, 2009 at 4:50 pm
• Report post

Hi Judi,

OK - I beat you all; I've had the ileo-anal anastomosis/j-pouch for 21, going on 22 years. What about Rowasa (mesalamine) or Cortenema or Entecort (same thing??). They're all bottles of topicals which you insert/squirt into your anus x7 days. It used to work for me. I now have more than just pouchitis. I have Crohn's symptoms which includes a previous peri-anal fistula as well as small bowel obstructions (last one was in December '08). On Asacol for now.

• Reply

Add to the discussion