My daugther has had a PEG tube since April and for the most part has really helped. The J (feeding tube) portion has come out of her intestine into her stomach 3 times over the last 2 months and has had to be replaced. It just happened again and the Dr want to try and have it replaced via Interventional Radilogy vs. a Endoscopy. The Dr. has no idea why the tube keeps coming out on average every 2 weeks. Has anyone else had this type of problem?
It's very fainful when the tube comes out and coils in her stomach.