Hi all, I have severe dysmotility syndrome (i.e gastroparesis and motility problems in oeasophagus, intestines and bladder). I have a jejunostomy for feeding, medication and fluid and a gastrostomy for venting and draining. I use fentanyl patches, amitriptyline and morphine for the pain.
Does anyone else have problems with disproportionate levels of pain and fatigue NOT caused by abdominal problems? For example, I hung the washing out one day and spent the next week or so feeling like I'd been hit by a train.
I've spoken to my consultant about this; he says it's common in patients with dysmotility, but he doesn't know why, or how to treat it.
Does anyone have any suggestions?





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