nausea HELP HELP

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So my biggest complaint with my post viral gastroparesis has always been my chronic-unbelievable amount of nausea. It has stopped me from doing almost everything. I am a month or so away from heading 3 hour away to college studying to be a physician assistant in a 6 year program. I am beginning to doubt every decision.

For 1/3 of my senior year at high school i was doing great. Even after i was doing great. I gained some of my weight back that i lost a year ago. Then a month or two ago i hit a rough spot and are starting to have more days that are hard to get through because of my nausea. I had my tonsils out 2 weeks ago-worst thing ever when you have a stomach disease. I got sick off of every single medicine even the anti-swelling medicine. it was hell for everyone around me and watching me be that sick. Ever sense the surgery and being that sick due to the medicines-my stomach disease has come back and 10X worse i feel like. I can hardly eat or drink because i'm very nauseated. I'm nervous going into college and orientation that i won't be able to make it because even smells have been bothering me and making my nausea worse.

When I was this sick a half a year to a year ago I tried every medicine for nausea. I did acupuncture, naturalist who tried giving me herbal stuff that did nothing, and nutritionist. My attitude went from positive and determined to now becoming negative and scared to death of the future because of how sick i got. I thought sense I was feeling better, i would only get better.

When i was hospitalized last year they put me on even the highest anti-nausea medicine possible through IV and it still did nothing.

I now am quitting my summer job earlier then planned because standing up for 4-8 hours 4 days a week drains everything out of me. I become lifeless because of how tired I am.

any suggestion? I'm very very frustrated and losing hope to my future and am praying it is just still trying to adjust from surgery and it will just fix itself.

I haven't been to my gastroenterologist in almost a year because things started to improve with my physical therapy and now i'm thinking maybe I should go back before I head off to college in a month and 8 days!

note: when I have nausea i hardly ever throw up..i feel like I have thrown up for the past day or week and i want to but I never do. I don't hold it in, no way anyone could that's why i don't understand how i don't throw up and one reason doctors dont look as serious to my issue of nausea sense i'm not throwing up. Sometimes throwing up feels better and relieves me.. then having my constant nausea. I dont and wont ever make myself throw up though.

I also have other symptoms like fullness, sometimes really bad indigestion where I can taste everything i ate without throwing up (if that makes sense), bloating, cramped feeling, pains near the stomach and liver and the other part after my stomach that starts with D (can't think of medical term). I've had gall bladder out, tonsils, surgery on both ankles, and a bizillion endoscopies and a couple colonoscopies.

My main thing is nausea. I constantly feel like I have the flu or that i'm car sick and all I want to do is stay in sweat pants and lay around and stay still without moving. Again, any help?

there are 4 things that keep me sane while i'm feeling very sick and i will lose the 2 most important thing when i go to college. 1. my dog Sadie (yorkiepoo) 2.Listening to celine dion (going to concert aug. 12 if i can handle it) 3. the internet (lets me vent like this lol) 4. my mom (she is 10000% there for me)

16 replies

Go to your GI. He needs to know how you're feeling. He can prescribe phenergan or other anti-nausea medication.

Pending that, have you tried ginger tea or ginger candy. A lot of people use it for the nausea that accompanies motion sickness. You can get it in health food stores and even in Target, or order it online at www.gingerpeople.com.

There are some college age people with GP at the Gastroparesis Support Group in Yahoo groups. Have you been over there? (http://health.groups.yahoo.com/group/gastroparesis/)
Maybe they could give you pointers on how to handle things. I saw them giving similar advice a week or so sago to someone. Unfortunately , I don't remember what was said. I didn't pay a lot of attention because it wasn't relevant to me.

Good luck with school and I hope you start feeling better soon!

Jo

i've tried the anti-nausea med and doesn't help at all. ginger is gross and no way i can even swallow it but i have tried it. Thanks though.
I really think I should contact my GI doc though but i'm afraid like always it's gonna build my hopes up and then bam or that it'll be completely pointless.
I have two GI docs. one in boston and one in maine...which one should I try to get a hold of?
i'll be in boston soon but he is very hard to get ahold of but the one in maine doesn't specialize in gastroparesis and never helps me.

thank you again for your very fast response and ideas. maybe i'll force myself to try ginger again in the meantime.

do you experience a lot of nausea? It almost seems like the morning is my favorite part of day now because by then I am empty stomach (as long as I dont eat late or its not good waking up). As soon as i drink or eat food nausea is brought on.

I know there are a lot of people worse off then me and i pray for all of you and a cure everyday.

I have had nausea with other problems in the past. With GP now, I'd describe it more as queasy 50% of the time rather than out right nausea so far. I haven't been diagnosed very long.

I'm allergic to phenergan so I can't do that. I happen to like ginger, been using it for years for motion sickness, so that's what I use.

My GI guy is sometimes hard to get a hold of too. Instead of trying to call for ages, I tend to write him a letter. That way I can tell him exactly what's going on and how I feel without feeling rushed, getting interrupted or getting distracted. (He doesn't do e-mails or I'd e-mail him.) Then his nurse calls me & tells me what to do or gives me an appointment.

I don't know which to tell you to see. My gut says the one in Boston since you'll be there and he knows GP. But if he's hard to get into...well, you know them, it's more your call, I think. You could write the Boston guy first, see if that helps?

Jo

Jo

It definitely does help. I think i'm going to try contacting him Monday!

I agree that trying to contact a GI doctor is a good idea. I do know though how hard it is to get in to some of them.
It sounds like you have all the classic symptoms as the rest of us. I am able to vomit though but I know others say they can't. I get tired of vomiting all the time but I know what you mean about it can also provide some relief when you do throw up, and when you can't it just seems to increase the pain and nausea.
You said you have tried phenergan and it didn't work. What strength have you tried? Have you tried the injections? Have you tried any other anti-nausea meds like Zofran, Marinol, Compazine, Scopolamine patch? I know some people find Zofran to help them a lot. It doesn't do much for me. Marinol is good but it's not one you can take if you need to be functioning. I only take it on days when nothing else works and I can just stay in bed.
I can relate to your comment about morning being the least nauseaus time of the day too. There are days that I won't eat anything just because I want to hold off on the nausea...of course, that leads to low blood sugar and dizziness.
I can't stand ginger either except in the form of Ginger Snaps. I'm not crazy about them either but I can at least tolerate them. I will say that sometimes a few ginger snaps does seem to ease the nausea.
I know that the thought of starting to college is stressful enough but then to add the fear of GP related trouble must be even worse.
Just remember that you have everyone on this site to offer support and advice anytime you get overwhelmed.
Keep us all posted.
Judy

Thank Judy!

Scopolamine patch is the one thing that I haven't tried that you listed. I am not sure the strength of others because it's been a while sense I have been on meds for my nausea. I do know I still have some zofran and it doesn't help at all. I also use promethazine, only sometimes because it makes me so drowsy and tired that I have to have a free day to take it.

Can you tell me more about Scopolamine patch? Does it have to be prescribed?

Hi,
I am new here, and although I have not been diagnosed as having GP I suffer with exactly the same symptoms - to the letter! I have been diagnosed as having Irritable Bowel Syndrome, everyone thinks that it's not a very serious condition and that it just means that if I eat something that doesn't agree with me all that happens is that I have to go to the loo a couple of times - this really is not the case. I have been suffering with symptoms identical to yours, including the nausea and not being able to vomit, for 3 years now. To begin with it was life destroying, I could not do anything - I could not eat, leave the house - I was a wreck.
However, over time I have found a few things that have helped me.

1 - Is I began to try to control my anxiety (easier said than done, I know). I eased into doing things that made me uncomfortable, tried to eat small portions of food frequently - things like that.

2 - I paid attention to what my body was telling me. I began to find out the foods that were upsetting my condition through trial and error (I admit that this has taken me a very long time).

3 - I eat my larger meals in the early afternoon when I can, I find that my digestion is at it's best then, and find that if I eat meals later on in the day (6pm onwards) I tend to feel worse.

4 - I began to take a multi-vitamin with pro-biotic. I did not see results with this for quite a few months, and it is really gradual, but it really does help to take the edge off.

5 - I started taking Domperidone (Motilium) which has really helped.

I must admit many days I still feel really poorly, but I have definately improved as a result of these things.

I really hope that some of what I have said helps you. Don't give up hope!

LauraJW.

Laura - You should have a gastric emptying scan. It's painless. They make you eat a radio active egg or oatmeal and then you lay under a machine and they watch your stomach empty for 90 minutes. Then you will know for sure if you have gp.

ktmorong - if it takes a while to make an appointment with your gi doctor in Boston, you should make it now. It will probably take a month or so and you will be in Boston by then. You really need to see the dr. I, too, feel the same way you do. The nausea or being queasy is there at least 50% of the time. I don't vomit either. The doctor told me not to chew any kind of mint gum. That makes it worse. You really need to eat very low fat meals. I feel much better when I do that. And, no soda. I am now drinking a lot water with lemon. And I changed from 1% milk to skim. At night, I try not to eat past 7 because I was waking up in the night really feeling bad. It helps a lot reading everyone elses suggestions of what works for them.

Ktmorong- I am so sorry that you are having to go through so much as such a young age when you have your whole life just beginning. Does your doctor have you on anything for the anxiety and panic attacks?

I am on Xanax, low dose of .25 twice a day as I was having a horrible time coping with my Gastroparesis and other health problems that I have when I got diagnosed. I couldn't handle all the bad days of being sick without it. I know that alot of us are on different medications for it, so finding one that works best for you is something you would need to discuss with your doctor. I don't know how anyone with GP can function without some form of medication for it.

I have a mixture of having periods of throwing up all the time, then I go through spells in which I can't throw up to save my life. It just makes for an even longer miserable period of hoping your tummy will settle down. I understand your misery of constantly feeling sick,and bloating as that is a part of the GP, it is so draining and just trying to function as a normal human being can be impossible.

I hope that the medication that Judy recommended for you will be helpful to you if you can get it. Hang in there I know it is hard. Hopefully you are watching what you eat and keeping it low fat and low fiber as much as possible. Keep us posted if you get that medication and if it helps.

Laura-- I agree with Daisy, that you should ask your doctor for a Gastric Emptying Test. That way you would know for sure if you have GP to see if that is adding to your symptoms. I have had IBS for years and I know that it can give you all the same feelings of GP. IBS can make you very sick and people that don't have it really don't understand the down side of it.

I also want to welcome you to our group. I am so glad that you found us. I know for myself I couldn't of coped with my GP and other health issues like I do, had it not been for the people here. You are certainly not alone as you will find that there are so many here that suffer with so many different health problems. I have learned so much here.

I am by your side,

Whispper

The Scopolamine patch does have to be prescribed...it is sometimes called a transderm patch too. You place one behind your ear and wear it for 3 days, then change it.
I was first prescribed it in 2004 when I saw GI specialist in Kansas City who is supposed to be one of the leading doctors in the area of GP. It did help me but I started having trouble with the pupil in my right eye dilating so the opthamologist I was seeing told me he thought it was caused from the patch and told me to stop using it. We found out later that it wasn't the cause of the eye problem but I never started usuing the patch again until this year. The other nausea meds were not doing the job so my GI doctor at Mayo called in the prescription for the patches again. They helped again. Now, none of the different nausea meds have been a total success and I have to switched them around because sometimes it seems like my body gets too used to them and they don't work as well. That is why I have so many different ones to work with..I have learned by the way I'm feeling which medicine will work best each time.
The patch is definitely a good alternative for when you can't keep medicines down and since it works for several days you don't have the time between doses to deal with...
It is definitely worth asking your doctor about it.
Judy

I am so sorry that you are going through this. The medicine that I take when I suffer form endless nausea is Zofran. They have a quick disolve one that works wonders. You may want to discuss it with your GI if you have not tried it yet.

Laura..gastric emptying test might not prove you have gp I had 4 and they couldn't tell by any of them that's what I had. 3 of them I stood up for to so its even better. I had to have this weird test in Boston like ad. Mamatry or something like that. Its a bad bad tests. Worst one anyone could take but worth it. Its more precise then others.



Also, I've had anxiety meds and stuff nothing helps. That's not s big issue under my doctors eyes or mine.

Low fat doesn't seem to matter. Its always different. I went on strict diet and it didn't do anything so I was just told to be careful. Somedays I eat pizza fine and others I don't.

it' weird how this disease works...i've had it for 6 years and still can't figure it out!

Hi everyone,

I just wanted to thank you all for your advice and support - it really is a comfort to know that there are people out there who understand, and, who care enough to read my posts and give a response.

ktmorong, I hope that you find the answers you are looking for.

LauraJW.

I would go to your GI and tell him what is going on and your fears. I take a cocktail of Ativan (for Nausea and Tramadol for pain.) I have a j-g tube (Duodernam) that has been my life saver. I able to administerer drugs even when I'm nauseaous.
Check w/your GI if you have not already tried these drugs.

Who is your DR. in Boston??
Have you asked you Dr.'d about Ativan for the Nausea, it is helpful to me and my late sister-in-law used it to curb the nausea from her kemo.
Nothing else has seemed to work, so if you haven't already, give this a try:)

I find Tigan (very old anti-nausea medication) to be very Helpful. And, with horribly severe nausea Thorazine is sometimes used. Best of luck?

Linda

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