My son was diagnoised with gastroparesis He also has other problems

I guess i should start at the beginning... When my son was born he ended up back in the hospital 2 weeks after he was born i still don't know what happened. As he got a little older he would get sick so of course I took him to the ER and was told that he had the flu, that was only 1 time though, all the other times he had double ear infections and sinus infections. well in 2006 I took him to the ER and they were trying to tell me that my son had the flu, they could see he was doubled over in pain and after i jumped all over these dumb ass doctors they started doing they're job. After they got my sons vomitting and pain under control they did a CT scan it showed that he had a partial obstruction, but I didn't get the results of that till a week later. His pediatrician had referred him to a surgeon and told me to call to get the appt. well i called this surgeon and she told me that i had to drive an hour to go to the hospital. I went to this hospital they did all the same tests and said theres nothing wrong, treating me like i'm stupid. Well in 2007 he had another attack i took him back to the hospital where i live they did another CT scan and he had the partial obstruction again, the same thing in 2008. Well last year he had another attack and had another ct scan and it showed the same thing he ended up in the hospital at Easter cause the pain had gotten so bad, that his heart rate was high and his blood pressure was very high. We finally go and see a Gi specialist for kids and had alot of tests. Well this dr. did blood work and xrays well got the results and my son has a fatty liver, his liver enzymes were elevated a little but no hepatitis. He had a colonoscopy done and the dr couldn't get the scope into his small intestine. He also had him swallow a pill where it was taking pictures as it was traveling through the digestive, then he had the tube going down his throat and said his stomach was full so we did the gastric emptying study and that's how we know that he has gastroparesis. I have asked this doctor if the liver is also apart of the problem he didn't seem to concerned. My son has jaundice in the whites of his eyes and his bilirubin levels are extremely high but because he has a fatty liver i don't know. Well my son will be having surgery on tuesday and i'm going to ask the surgeon while he has my son open to check for other problems. He is 15 years old, plays football, has a 4.0 grade average, he doesn't want to miss school and with these attacks that he is having it's getting worse and more frequent any advice as to what might be happening besides the gastroparesis?

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So sorry for your son and all that he (and you) have been through. My 16yo daughter is having GP issues now and I know what you mean about all the testing and lack of answers. Praying for him and for you!

Dawn

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So sorry for your son and all that he (and you) have been through. My 16yo daughter is having GP issues now and I know what you mean about all the testing and lack of answers. Praying for him and for you!

Dawn

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Hi Auntteeny. I hope that you have a great gastroenterologist who is also a 'gastric motility specialist' (not all of them are). However, if your doc didn't seem concerned about your son's liver, I think that's a problem! Here is a list of some motility specialists...

http://www.digestivedistress.com/main/page.php?page_id=116

You didn't mention your son's diet, but I know it is very important in controlling symptoms, such as no fiber or foods high in fat, very small portions at a time, or maybe even an all-liquid diet. All I can think of to tell you is to ask your doc for a very specific diet. I'm not sure what a 'fatty liver' is, but the liver is part of the digestive system so it is connected to his diet.

Also, there is such a thing at "Intestinal Pseudo Obstruction", where your intestines behave as if there is an obstruction, but there really is nothing there. It seems that beyond the gastroparisis, the rest of his digestive system also has something (that has not been diagnosed yet).

I hope you get some answers for him quickly, and I hope the surgery will help him!!

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Also, was he tested for H. Pylori or Celiac disease? There are so many possibilities, but these are routinely checked during an endoscopy.

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Hi AT. It sounds like you and your son have been thru a lot. I read your other post too, where your son is afraid for you to tell his dad about his surgery, and that BROKE my heart. Its bad enough to be dealing with GP, but to be dealing with GP with non compassionate family members makes it worse. I am sure it makes a BIG difference he has you in his corner.

I know you say your dr is not concerned about your son's eyes being yellow, and I am not a dr, but that does not sound normal, nor is that a part of GP. DOes he take any other meds that can effect the liver? Drs really are so quick to write things off, aren't they?

Please keep me updated on how your son and you are doing. I look fwd to chatting with you more.

Love,

Lauren

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Have you considered having your son see a Pediatric GI who specializes in Hepatology (Liver Disease)? Good luck with everything.

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My 7 month old daughter was diagnosed with severe gp at 3 weeks old and with CIPO at four months old, she was jaundiced a lot when little due to poor feeding however she went under those lights a couple of times and was ok after that and hasn't had problems since, were is the blockage is it the pyloric (when your stomach gets blocked) or in the small intestines?, my daughter has had a stomach blockage which is called a bozoar and had a bowel obruction, what is the surgery for and has he had surgery in. The past to remove the blockages, is he on the gp diet or any medication? My daughter is tube fed through a jejunostomy (into small intestines) on a continous drip feed and has a nasogastric tube for stomach drainage, and regular enemas and laxitives to help her stool, does he suffer with constipation? Sorry to hear ytour having problems.

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