inability to eat

my son is nil by mouth cos of swalloing problems. he has a pej tube. he used to have drinks, but since a severe bout of pneumonia he cant have any thing or he risks chocking. he isnt happy knows the risks but gets very cross about it. he is very intelligant, but proufoundly disabled, very ill at present which doesent help. this is very hard to live with, as a parent you want to do what is best for your child, but the risks are very high. mouth care advice is non exsistent, its just a few swabs and thats it.we really need more help ,but dont know where from